Helping people live with Keratoconus
The videos taken at the 2018 KC Group Conference held in Birmingham in September are now online and ready to view.
They can all be viewed on the video page in postage stamp format, and you can click the icon on the bottom right of each video to make it full screen for easier viewing.
The videos are also available on our YouTube channel.
This is an interesting article published by the National Keratoconus Foundation in America:
The analysis that KC occurs in 1 in every 2,000 people was derived from a patient registry that was initiated in part by NKCF, over the span of fifty years from the 1930s to the 1980s. Some early supporters of NKCF likely participated in the voluntary survey. Read More…
We are pleased to announce that we have entered in to an agreement with Fight for Sight to support an award up to the value of £15,000 to fund research into the condition Keratoconus.
The Award will be funded as to 50% by Keratoconus Group and 50% by Fight for Sight.
We can now announce that the funding has been awarded to a team led by Dr Mouhamed Al-Aqaba at Nottingham University . The project is titled – “The involvement of corneal nerves in the pathogenesis and progression of keratoconus”. The research team has already identified that corneal nerves are dramatically altered in KC and will now be looking at whether these changes have a relation to the severity and progression of KC and identifying the types of nerves involved. This promises to increase the understanding of the condition, and may eventually lead to new interventions.
This is an exciting adventure made possible by the generous sponsorship of Barbican Insurance.
For full details are on the the Fight for Sight website – Here
“It was whilst studying music at the Sydney Conservatorium that Michelle’s eyesight started to fail. She underwent her first corneal graft. It failed, and for four and a half years she was legally blind. Following serious eye infections and rejection she underwent an emergency graft.Sight restored, Michelle threw herself back into her music. ‘Having my sight taken away and then having a second chance at music with my successful transplants has been a miracle and the great gift of my life. I want to make the most of every moment and share my music with the world, and support others with Keratoconus.’ “
Visualise is a charity that helps organisations find the answers that make their services more inclusive and accessible to people with a visual impairment and other disabilities. As leaders in their field, they bring extensive experience and knowledge of disability, both personally and professionally, to business and organisations.
To access the Resource Pack For Health & Social Care Professionals Supporting People With Sight Loss
– Click on this link
It means the technique could be used in the future to ensure an unlimited supply of corneas.
Moorfields have carried out 4,620 Corneal Collagen Crosslinking treatments and have recently published their results. View the results.
This Report on photochemical corneal collagen cross-linkage using riboflavin and ultraviolet A for keratoconus and keratectasia was issued in September 2013.
While there have been a number of studies demonstrating the effectiveness of CXL in adults and the procedure has been approved by NICE for use in the NHS, much less is known about the effectiveness of CXL in children.
A while ago I wrote this, just really to get it off my mind and keep it down to look back on in the future, but if my experiences can help just one other person feel a bit more at ease about the whole thing then even better. KC really disrupted my travel plans aha, but I didn’t really know what to expect or what was normal. So, have a read, and leave some feedback if you want Continue reading “The Man with the Funny Shaped Eyes”