Eye health experts seek to refresh eye research priorities

Eye experts across the UK are calling for your input into a new survey designed to refresh the James Lind Alliance Sight Loss and Vision research priorities that were first published in 2013.Despite on-going eye research taking place across the world, there are still many questions about the prevention, diagnosis and treatment of sight loss and eye conditions that remain unanswered. Funding for research is limited, so it is important for research funders to understand the unanswered questions of greatest importance to patients, relatives, carers and eye health professionals so that future research can be targeted accordingly.Following a review of the existing eye research priorities by the NIHR Ophthalmology Specialty group and the UK Clinical Eye Research Strategy earlier this year, a survey has been developed to help fine tune which of the 98 potential research questions should be taken forward as part of the refresh.Professor Rupert Bourne, NIHR National Specialty Lead for Ophthalmology said:“It’s almost 10 years since the UK last published its eye research priorities and progress has been made in learning more about each of those 12 key areas that were set at the time. This survey is designed to help us assess whether these are still the right priorities for us to be focusing our attention on, and to delve deeper into some of those, or whether there are new areas of eye research that we now need to make a priority.“We are encouraging all those with an interest in eye health and research to take part in the survey to help shape the direction of future eye research.” The Eye Research Priority survey is open to all eye healthcare professionals and researchers as well as patients, carers and members of the public to participate in; and will be open until 9 August 2022. The survey feedback will inform the final Top 10 updated priorities across different eye sub-specialties.

Sight Village

Come and see us at Sight Villiage, at the moment we have not booked the Central event in Birmingham but we will definitely be at the Leeds and London events.

Do stop by and say hello. Full details can be found – here

SIGHT VILLAGE 2022 DATES:
Central (Cranmore Park) 28th & 29th June
North East (Leeds) 21st September
South East (London) 8th November

Moorfields Eye to Eye Walk

This was the fourth year we have entered a KC team to this event. It was very kind of Moorfields to add an extra mile to the previous 14 but we managed it with smiles on our faces. The first time we entered in 2018 there was ice floating on the Regents Canal. This year while crossing the millennium bridge we spotted a resident in her bikini sunbathing on a balcony. The weather was glorious.  As you can see we had a coffee stop at a converted phone box near Borough Market.
 
The route wound through the iconic sights of the city both old and new then headed off to Limehouse in the east end. Following the Regent Canal back to City Road. There was a detour around Victoria Park. 
 
It was a thoroughly enjoyable day and we hope more of our members will join us next year
Look out for the date.
 

For more information contact me on 079 2717 8716.

David Gable (Chairman)

 

2022 Team
2020 KC Team
2019 KC Team
2o18 KC Team

Genetic Research

Members will remember the talk given by Professor Alison Hardcastle at our AGM in 2019, updating us on her work as part of the Genome-Wide Association Studies (GWAS). The talk was summarised in our Summer 2019 newsletter.

The authors from UCL Institute of Ophthalmology, Moorfields Eye Hospitaland many other institutions from around the world, have recently published a very significant paper outlining the results of their research to date.

The paper can be read here: https://www.nature.com/articles/s42003-021-01784-0#MOESM9

AGM and Speaker Meeting

Notice of Annual General Meeting
Saturday 19th March at 11am

We are very excited to be hosting our first live event for two years. Our AGM and speaker meeting is going to be held at the Moorfields Education Hub 1st Floor 15 Ebenezer Street (the hub is opposite the main hospital).  Cross City Road and go up Provost Street to the next corner and the Hub is facing you on the left. 

Our guest speaker will be Marcello Leucci, he is the Principal Optometrist who leads the Keratoconus Monitoring Service at Moorfields Eye Hospital, London. Marcello will bring us up to date with the latest thinking on the treatment of Keratoconus as well as explaining how the KC service operates at Moorfields. He is well placed to answer our questions and no doubt will be just as interested in hearing from us, as we will be listening to him. We provide a free sandwich lunch which is always a good opportunity to meet other members and share stories. If you are coming please register by sending an email to anne@kcgroup.org.uk so we can cater for numbers. For more information phone Anne on 020-8993 4759.

It is intended that the AGM will be a formality and should last no longer that 10 minutes. Should there be any significant matters to discuss, we shall adjourn until after Marcello’s presentation to allow him to start on time at 11:10. The following papers will be presented at the AGM:

Agenda
Minutes of last years Meeting
Accounts
Chairmans Report

2021 Photo Contest Winners

We would like to thank our friends at the National Keratoconus Foundation in America and Keratoconus Australia for organising this competition. Congratulations to our own Ashley Winter for his winning entry.

You can see all the winning entries here: 2021 PHOTO CONTEST WINNERS

Featured image:

“Visual aids are beneficial for my patients in everyday life to see a more defined world.“ Chiara (Italy)

KeraClub 2021

Keratoconus – Now and Beyond: This year, the 6th annual community event for people with keratoconus ‘KeraClub 2021’ was organised as a webinar. The Save Sight Institute and Keratoconus Australia co-hosted the webinar for people with keratoconus, their families, friends, and carers. The speakers were Professor Stephanie Watson, Associate Professor Mark Roth OAM, Mr Larry Kornhauser OAM, Ms Chloe Davies, and Dr Himal Kandel. The event was moderated by Ms Michelle Pritchard. The talks were followed by a panel discussion.

Talk by Howard Maile

At our previous Zoom coffee morning, we were treated to an excellent talk by Howard Mailes, a PhD candidate at UCL. He was talking about his research into using artificial intelligence to assist with the initial diagnosis of Keratoconus, and detecting progression.

Here is a recording of that talk.

The talk is also available on our Youtube channel

We hope you will find it interesting.