The Charity’s work is concentrated in the following areas:
– A discussion forum where those affected can share their problems and solutions
– Arranging conferences and speakers
– Liaising with hospitals to improve patient experience
– Supporting research projects
– Representing the interests of our members at a national and local level
– Providing a friendly voice on the end of the telephone
Times have changed and information is becoming more freely available. With the development of crosslinking the future is brighter but the questions have increased. At what stage or age should crosslinking take place. Is it available throughout the country? Which type of contact lens should I use? At what point should I undergo a corneal transplant and how long is it likely to last? Will I be able to continue working or studying?
There is a danger that research into such a little known condition will lose out to much larger and well known projects. Therefore, it is essential that there is a body able to represent the interests of keratoconus patients and foster the dissemination of information.