Our Policy on Data Protection

General Data Protection Regulation (GDPR).

We believe that the GDPR is a good initiative for the charitable and voluntary sectors because it confirms and enhances the rights of people who give their information to charities like ours – you’ll have the right to be informed what data is held by a charity about you, for example, as well as the right to correct errors in the data held and the right to restrict what your data is used for (among many other provisions in the GDPR).

For our own compliance with the GDPR, we’re sharing our own newly-written Privacy Policy. We’ll also tell you here how you can make any changes to the data we hold about you – or even if you want us to remove any data we hold about you.

Our Privacy Policy

The charity will collect only the minimum data about you which we know is essential for us to provide our services to you. This data is used for the sole purpose of being able to communicate by us to you, our members. We will never sell your data to any third parties. We will never use your data to solicit individual donations directly – all our fundraising from our members is done as part of a general campaign such as the reminder you can donate to us by Standing Order which we’ve included in this edition of our newsletter. We will limit the data we collect about you to:

  • Your Name and Postal Address
  • Your email address and/or telephone number, if you have chosen to advise us of them. 

Unless compelled to do so by law, we will only share your data with a third party when it is necessary to produce our own communications to members (for example, to generate the mailing list for this newsletter where we send our printing company the current membership’s names and postal addresses) or when necessary to carry out your specific instructions to us (for example, if you’ve asked us to reclaim Gift Aid and we need to notify HM Revenue & Customs).

You have the right to ask us what specific data we hold about you. You may want to do this to confirm we have the right information. You also have the right to request us to remove any of your data from our records at any time. If you want us to do this – or just want to make any enquiry at all about what data we hold about you – please do not hesitate to contact us by email at chair@keratoconus-group.org.uk or by post at the address shown below:

Keratoconus Self Help and Support Group
P O Box 26251
W3 9WQ

We will not make any charge for responding to these requests and we will respond within 30 days of our receiving the request.

Finally, our Data Protection Officer is the Chair of our Trustees. If we consider making any changes to this Policy in the future, our Data Protection Officer will consult with our members first, before making any changes.