Author: David Gable

Fight for Sight / Keratoconus Group Small Grant Award

We are pleased to announce that we have entered in to an agreement with Fight for Sight to support an award up to the value of £15,000 to fund research into the condition Keratoconus.

The Award will be funded as to 50% by Keratoconus Group and 50% by Fight for Sight.

Latest Update

We can now announce that the funding has been awarded to a team led by Dr Mouhamed Al-Aqaba at Nottingham University .  The project is titled – “The involvement of corneal nerves in the pathogenesis and progression of keratoconus”.  The research team has already identified that corneal nerves are dramatically altered in KC and will now be looking at whether these changes have a relation to the severity and progression of KC and identifying the types of nerves involved. This promises to increase the understanding of the condition, and may eventually lead to new interventions.

This is an exciting adventure made possible by the generous sponsorship of Barbican Insurance.

For full details are on the the Fight for Sight website – Here

Concert in aid of KC research


What a wonderful evening.  An intimate setting with a glass of wine.  Perfect lighting bringing her sisters paintings to life.
Australian viola player  Michelle Urquhart and her friend Marco van Pagee gave a delightful solo viola and viola duet recital.
Michelle is the NSW representative for Keratoconus Australia and all proceeds from tickets/donations will come to the KC Group to be used for research into KC to benefit those with KC worldwide.
It is worth quoting this from the programme:
“It was whilst studying music at the Sydney Conservatorium that Michelle’s eyesight started to fail.  She underwent her first corneal graft.  It failed, and for four and a half years she was legally blind.  Following serious eye infections and rejection she underwent an emergency graft.
Sight restored, Michelle threw herself back into her music.  ‘Having my sight taken away and then having a second chance at music with my successful transplants has been a miracle and the great gift of my life.  I want to make the most of every moment and share my music with the world, and support others with Keratoconus.’ “

Visualise Resource Pack

Visualise is a charity that helps organisations find the answers that make their services more inclusive and accessible to people with a visual impairment and other disabilities. As leaders in their field, they bring extensive experience and knowledge of disability, both personally and professionally, to business and organisations.

To access the Resource Pack For Health & Social Care Professionals Supporting People With Sight Loss
– Click on this link

The Man with the Funny Shaped Eyes

A while ago I wrote this, just really to get it off my mind and keep it down to look back on in the future, but if my experiences can help just one other person feel a bit more at ease about the whole thing then even better. KC really disrupted my travel plans aha, but I didn’t really know what to expect or what was normal. So, have a read, and leave some feedback if you want  Continue reading “The Man with the Funny Shaped Eyes”

Dougie’s Story

I’m 27 and live in edinburgh and was originally told I had KC when I was 12 years old I can remember it well as I was surprised being told I had this strange condition that I’d never heard of, before being told by my optition that I had nothing to worry about. Looking back at the memory and knowing what I know now I would have called up my GP myself as a 12 year old child and demanded a referral straight to the ophthalmic department but because at the time I had excellent vision in both eyes the optition thought it best not to act so quickly and watch it progress. Because I was told not to worry it was as if i was being told not to act and so I never.  Continue reading “Dougie’s Story”

Richard’s Story

I was first diagnosed with KC around 11 years ago, but I really didn’t think that much about it at the time, and it hardly bothered me for the first few years. I used to go for regular eye tests and the opticians would always mention it, but we tend to move areas quite regularly due to work so I hardly ever saw the same optician twice so no one was really monitoring it to notice it getting progressively worse.   Continue reading “Richard’s Story”