Following on from my Foggy Vision topic, I saw my consultant again today, and the news is not as I'd hoped for.
It seems that, following my 7 rejection episodes, the endothelial cells on the back of the cornea are packing up - at least, not enough of them are doing their job.
So I'm now off the hourly Pred Forte drops, and back on FML 4 times a day, and staying on Timolol to keep the pressure down, as it is currently 26.
My consultant explained that she's now weaning me off the steroids that I've been on for the last 4 years, with a view to a re-graft sometime next year.
Graft failure
Moderators: Anne Klepacz, John Smith, Sweet
- John Smith
- Moderator
- Posts: 1941
- Joined: Thu 08 Jan 2004 12:48 am
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
- Location: Sidcup, Kent
Graft failure
John
- Sweet
- Committee
- Posts: 2240
- Joined: Sun 10 Apr 2005 11:22 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: London / South Wales
John, am really sorry to hear that. Am glad that you are off hourly drops though, and FML isn't so bad in that it doesn't really sting or 'taste' foul!
Regrafting sounds like a major thing, and i can only guess how hard that would be to go through it again. Am really hoping that that will work though. Keep us informed, and i have noticed my little graphic change! LOL!! Hehe i got it before Christmas! LMAO!!!
Sweet X x X
Regrafting sounds like a major thing, and i can only guess how hard that would be to go through it again. Am really hoping that that will work though. Keep us informed, and i have noticed my little graphic change! LOL!! Hehe i got it before Christmas! LMAO!!!
Sweet X x X
Sweet X x X


- Drew Radcliffe
- Regular contributor
- Posts: 142
- Joined: Tue 30 Mar 2004 9:02 pm
- Keratoconus: Yes, I have KC
- Location: Cardiff
- Susan Mason
- Forum Stalwart
- Posts: 414
- Joined: Sat 24 Jan 2004 11:27 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: Bolton Lancashire
Hello John
Sorry to hear your news.
I will keep my fingers crossed for you.
I suppose from the positive side at least they now know what the problem is and can start to take steps to attempt to make things better for you.
You must feel really fed up, we could definately all do with some santa magic wishes.
best wishes
Susan
Sorry to hear your news.
I will keep my fingers crossed for you.
I suppose from the positive side at least they now know what the problem is and can start to take steps to attempt to make things better for you.
You must feel really fed up, we could definately all do with some santa magic wishes.
best wishes
Susan
- james mckinlay
- Chatterbox
- Posts: 211
- Joined: Wed 01 Jun 2005 9:49 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
- Location: cumbernauld just outside glasgow
- Contact:
HELLO JOHN SORRY TO HEAR ABOUT YOUR REJECTION I MYSELF HAVE HAD 6 REJECTIONS THIS YEAR AND WAS ON HOURLY DROPS ITS NOT MUCH FUN I HOPE YOU ARE SUCCESSFUL THIS TIME AND ALSO THAT ITS A LONG HAUL FOR YOU. IF YOU WOULD LIKE TO DISCUSS IT JUST MESSAGE ME OR ANYONE NEEDING ANY INFORMATION ON MY EXPERIENCE OF GRAFTS AND HAVING IT REJECT PLEASE EMAIL ME jgm1981@yahoo.co.uk
i hope it works out keep posted and happy christmas chin up m8
i hope it works out keep posted and happy christmas chin up m8
- jayuk
- Ambassador
- Posts: 2148
- Joined: Sun 21 Mar 2004 1:50 pm
- Location: London / Manchester / Cheshire
James
May be an idea to write something about the episodes you have had in a post?..reason being is that I think that kind of real world experience is soo valuable to those that have had a Graft and MAY be going through a Rejection etc?..I guess similar to what John did with his initial post?
Unless of course you dont want to...in which case I completely understand..
May be an idea to write something about the episodes you have had in a post?..reason being is that I think that kind of real world experience is soo valuable to those that have had a Graft and MAY be going through a Rejection etc?..I guess similar to what John did with his initial post?
Unless of course you dont want to...in which case I completely understand..
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP
(C) Copyright 2005 KP
- Sweet
- Committee
- Posts: 2240
- Joined: Sun 10 Apr 2005 11:22 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: London / South Wales
I think it would be a great idea as well, as it would be very interesting to read and also give us some advice on what to look out for. I know we get advised on this, but it is so easy to forget what signs and symptoms could show a rejection and so your experiences would be really helpful!
Of course as Jay said, this is if you want to, as i can understand that posting here about six rejections would be hard. So will let you decide, hehe, byeeeeee!!
Sweet X x X
Of course as Jay said, this is if you want to, as i can understand that posting here about six rejections would be hard. So will let you decide, hehe, byeeeeee!!
Sweet X x X
Sweet X x X


Return to “General Discussion Forum”
Who is online
Users browsing this forum: No registered users and 36 guests