Don't know about Lasik/Lasek or whatever, but I was offered "refractive surgery" with a laser to help correct some of my post-graft astygmatism. It was suggested that this would be done at Moorfields.
In the end, we went for a scleral lens post-graft instead in an attempt to avoid further surgery.
Unfortunately, I ended up with poor wearing time for the scleral for my grafted eye (max 4-5 hours per day), but my non-grafted eye can tolerate a scleral for about double that time. So now you can catch me wearing a single scleral in the non-grafted eye and specs lenses over both eyes.
Dealing with reduced sight without lenses
Moderators: Anne Klepacz, John Smith, Sweet
- John Smith
- Moderator
- Posts: 1941
- Joined: Thu 08 Jan 2004 12:48 am
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
- Location: Sidcup, Kent
First of all! Happy new year to all KC people all over the world.
Then; Sweet and Louise! I don´t like the tone in your discussion. I want you all to benefit from this forum. not end up like this, arguing about details and nonsense.
I invite you both to be my debate mates in 2006 and bring all good things for all KC people come true in 2006. So, hug and kiss from Scandinavia to both of you girls!
Cheers!
Then; Sweet and Louise! I don´t like the tone in your discussion. I want you all to benefit from this forum. not end up like this, arguing about details and nonsense.
I invite you both to be my debate mates in 2006 and bring all good things for all KC people come true in 2006. So, hug and kiss from Scandinavia to both of you girls!
Cheers!
- Sweet
- Committee
- Posts: 2240
- Joined: Sun 10 Apr 2005 11:22 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: London / South Wales
Hehe, i for one can't promise that, i have never been good! LOL!! I'm sure that i'm called Sweet for a reason though, in that i lure people into a false sense of security with them thinking i'm sweet and innocent, and then i can cause mischief!!!!!
LOL, maybe not! I am generally very nice and haven't attacked anyone else here, so i do promise not to create a bad atmosphere again as i didn't like it either!
Have a good year! Sweet X x X


LOL, maybe not! I am generally very nice and haven't attacked anyone else here, so i do promise not to create a bad atmosphere again as i didn't like it either!

Have a good year! Sweet X x X
Sweet X x X


- Louise Pembroke
- Champion
- Posts: 1482
- Joined: Sat 21 Aug 2004 11:34 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Thanks for your concern Per
Rest assured Sweet and I have spoken outside of the forum and have settled our differences and I too have deleted my posts. I also have no previous experience of differences with members but it is behind us now and we have wished each other a Happy New Year. New year, clean slate.
Warmest wishes to you Per
Warmest wishes to you Per
- Emma_Marie
- Regular contributor
- Posts: 64
- Joined: Mon 12 Dec 2005 10:28 pm
- Location: N. Ireland
hey louise,
yes they're alot of ignorant people out there who dnt understand what its like to be visually impaired.
Im not sure if any1 remembers as its a couple of years back now but when i was 15/16 and studying for my GCSEs at a grammar school in NI, my teachers refused to believe there was anythin wrong with me and told me outright that if i failed my exams, it was all my fault for not trying! (in that particular teachers class i got an A*) anyhow the board got together and sent a letter to my headmaster detailing the extent of KC and its effects. After all that i got an apology from the teacher and went on to study 4 my A Levels in the same school, prooving every1, including my optician wrong that i could have KC and STILL get good grades!
At the moment im studying at Queen's University Belfast, something i was told would never happen.
If your determined things will work out. there was many a time i felt like giving up because people didnt understand and many would laugh (in particular at my A3 exam papers! lol) but its what u believe in yourself that matters.
Take care and God Bless
Emma
yes they're alot of ignorant people out there who dnt understand what its like to be visually impaired.
Im not sure if any1 remembers as its a couple of years back now but when i was 15/16 and studying for my GCSEs at a grammar school in NI, my teachers refused to believe there was anythin wrong with me and told me outright that if i failed my exams, it was all my fault for not trying! (in that particular teachers class i got an A*) anyhow the board got together and sent a letter to my headmaster detailing the extent of KC and its effects. After all that i got an apology from the teacher and went on to study 4 my A Levels in the same school, prooving every1, including my optician wrong that i could have KC and STILL get good grades!
At the moment im studying at Queen's University Belfast, something i was told would never happen.
If your determined things will work out. there was many a time i felt like giving up because people didnt understand and many would laugh (in particular at my A3 exam papers! lol) but its what u believe in yourself that matters.
Take care and God Bless
Emma
- jayuk
- Ambassador
- Posts: 2148
- Joined: Sun 21 Mar 2004 1:50 pm
- Location: London / Manchester / Cheshire
Emma
Thats fantastic!..I also beleive that just cause we have KC, there is no need to quit as others would expect us to do!.....and whilst not disrespecting those with no vision, I do really feel that there are those whom have more severe visual problems not related to the cornea that do more or equal
Thats fantastic!..I also beleive that just cause we have KC, there is no need to quit as others would expect us to do!.....and whilst not disrespecting those with no vision, I do really feel that there are those whom have more severe visual problems not related to the cornea that do more or equal
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP
(C) Copyright 2005 KP
- Louise Pembroke
- Champion
- Posts: 1482
- Joined: Sat 21 Aug 2004 11:34 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Emma Marie
Emma, what a star you are, if there were KC Oscars I'd award you one! You're an inspiration to me and I'm delighted to hear your progress and glad you got redress with your school.
Yeah, being laughed at or disbelieved is really hard, that kind of stuff can be harder than the condition. I found it hard when I was a teenager and laughed at because I would walk straight past relatives in the street because I didn't see them. I laughed along but deep down I wasn't laughing.
Wow A3 exam papers, I've just looked at the size of A3 paper, I hope they give you extra time for your exams! Could you have a scribe if you wanted? Keep us posted with your progress Emma.
Yeah, being laughed at or disbelieved is really hard, that kind of stuff can be harder than the condition. I found it hard when I was a teenager and laughed at because I would walk straight past relatives in the street because I didn't see them. I laughed along but deep down I wasn't laughing.
Wow A3 exam papers, I've just looked at the size of A3 paper, I hope they give you extra time for your exams! Could you have a scribe if you wanted? Keep us posted with your progress Emma.
- Lynn White
- Optometrist
- Posts: 1398
- Joined: Sat 12 Mar 2005 8:00 pm
- Location: Leighton Buzzard
Louise...
As an optician I do understand your anxiety... but also, becasue I am very short sighted myself and have been in situations with having to take my lenses out when out and about, I can thoroughly personally sympathise as well!
I just wanted to ask if you have tried pinhole glasses? These are usually toted as glasses that "cure" your eyesight, which they don't, but they DO work in giving a good bit of vision without spec correction. Its based on the pinhole camera and generally look like dense sunglasses with lots of small holes in them. Also they have the visual advantage of signalling there is something wrong with your vision.
http://www.jdharris.co.uk/pinhole-glass ... index.html
http://www.eyetrainers.co.uk/
They would certainly help in an emergency.
Lynn
Oh and I just noticed! Thanks John for the robin and icicles!
As an optician I do understand your anxiety... but also, becasue I am very short sighted myself and have been in situations with having to take my lenses out when out and about, I can thoroughly personally sympathise as well!
I just wanted to ask if you have tried pinhole glasses? These are usually toted as glasses that "cure" your eyesight, which they don't, but they DO work in giving a good bit of vision without spec correction. Its based on the pinhole camera and generally look like dense sunglasses with lots of small holes in them. Also they have the visual advantage of signalling there is something wrong with your vision.
http://www.jdharris.co.uk/pinhole-glass ... index.html
http://www.eyetrainers.co.uk/
They would certainly help in an emergency.
Lynn
Oh and I just noticed! Thanks John for the robin and icicles!
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