Lenses

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
Kathy Hobkirk
Contributor
Contributor
Posts: 43
Joined: Mon 08 Nov 2004 7:51 pm
Keratoconus: Yes, I have KC
Vision: I have Intacs implanted
Location: Blackburn, Lancashire

Lenses

Postby Kathy Hobkirk » Fri 23 Dec 2005 1:33 pm

Hi All :)

Can anybody help me with some advice?

I have been unable to wear my lenses since August and after seeing my consultant I have been on steriod drops for atopic conjunctivitus ever since. I have been back to see him and and things are getting better and was told to try my lenses again. In the space of about 2 weeks I managed to get the wear upto 40 minutes before they start to hurt.

Since I was diagnosed I have tried a number of different lenses - RGP's (which needed changing about every 3-4 months), then I went onto piggy back then on to the Kerasoft.
My optician had to change from RGP's because they didn't sit central, and were getting painful, as I have 2 "hot spots" in one eye and 3 in the other which makes the fitting difficult.

Went back to the opticians yesterday and in case it is the kerasoft causing the inflamation he wants to change my lenses but I'm not really sure which he wants to try next as the RGP's don't work.

Has anyone any suggestions?

Thanks Kathy

User avatar
mickcoleman
Newbie
Newbie
Posts: 2
Joined: Fri 23 Dec 2005 1:50 pm

Postby mickcoleman » Fri 23 Dec 2005 1:57 pm

I use Rose K and after the usual initial couple of weeks I found them so comfortable that I forget I have them in.
The only one prblem I have is mixing up right and left, but now my prescription has changed I have had the lenses colour coded Blue for Left and Grey for Right

User avatar
Richard Godbolt
Contributor
Contributor
Posts: 26
Joined: Thu 21 Oct 2004 8:52 pm
Location: East Horsley, Surrey

Postby Richard Godbolt » Fri 23 Dec 2005 10:42 pm

Hi Kathy

Sorry to hear of your problems.

I see you have tried piggybacking, obviously without success. If it helps, after 40 years contact lens wear and a recent complete intolerance to RGP's and Rose-K's, I have had amazing success with piggybacks but only after I changed to daily disposable soft lenses ( my tolerance went from 30 mins daily to 12 + hours overnight ) plus the use of Systane hydrating drops.

For me the difference is huge, particularly with the drops - I "forgot" them for a couple of days recently and could not believe the diffence in comfort and vision - if you want more info please let me know.

Good luck

User avatar
Kathy Hobkirk
Contributor
Contributor
Posts: 43
Joined: Mon 08 Nov 2004 7:51 pm
Keratoconus: Yes, I have KC
Vision: I have Intacs implanted
Location: Blackburn, Lancashire

lens

Postby Kathy Hobkirk » Fri 23 Dec 2005 11:55 pm

Thanks!!

At the min I a also using carbomer 980 (viscotears) 3-4 times a day which was what my new consultant prescribed instead of the ususal minims artificial tears prescribed earlier.

The main problem is that I don't have one ridge (or hot spot per eye). I have 2 in one eye and 3 in the other, that is the problem my optician is having.

My consultant has mentioned the intacks op before but where I live it is only available privately,

kathy x

User avatar
GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Sat 24 Dec 2005 9:38 am

Hi Katherine,

I appreciate the problem you have with comfortable lens fit, the eye I have trouble with, there are 4 distinct points of distortion in my field of view. In addition to the scar around the cornea where I have had a graft and the KC at the corneal marging has meant monthly visits for the last six months.

For comfort I have to experiemnt with different lens solutiions that really helped and then experimented with different lubricating eye drops. Systane is the best for me, but the lens moves from the comfortable off centre pointing to my nose which gives best vision and best comfort. Throughout the day the lens migrates up and across the eye.

I have been told that the vision might be the best we can get and perhaps I should reconsider trying to get 6/6 vision in that eye. Decided to ask further about eye drops and now using Systane every three hours and taking the lens out to put the drops in although in convenient is working. Only problem with Christmas the new stock of eye drops has yet to arrive, have not found anyone in the Midlands that stock Systane whic means much of Christmas is going to be more of a blur than usual.

Systane does have fast results, but when used over time it appears to have a cumulative effect to make lens wear more comfortable. It would appear that I am deficient in the lubricating component of tears.

I do have one question, when the lenses cause discomfort, is the irritiation on the eye lid or the cornea?

Regards

Gareth
Gareth

User avatar
Kathy Hobkirk
Contributor
Contributor
Posts: 43
Joined: Mon 08 Nov 2004 7:51 pm
Keratoconus: Yes, I have KC
Vision: I have Intacs implanted
Location: Blackburn, Lancashire

lenses

Postby Kathy Hobkirk » Sun 25 Dec 2005 10:48 pm

Hi Gareth

I would have to say that the discomfort is more cornea than lid. When my lenses are in they sting and when I take them out I get pain in my eyes, and seen as I am only up to 40 mins wear I don't think that is right. Before I got the inflamation I could cope with 10 hours + depending on what I had done on a day to day basis.

Have you any experience on the intacks? When I have spoken to my consultant and my optician nobody will give me definate answer, whether that is because it is a private op I don't know but I don't know what to do. I want to go back to work but whether I can go back to doing the job I did I don't know.

I went to my works xmas do the other week and apart from the senior staff collegues ignored me and I don't know whether I can go back to that kind of environment. I have been off work since August and I thought they thought more of me than that. It might be me reading more into it but I don't know.

Kathy x

User avatar
malcolm cohen
Newbie
Newbie
Posts: 1
Joined: Mon 12 Dec 2005 7:03 pm
Location: israel

proclear compatable

Postby malcolm cohen » Mon 26 Dec 2005 2:16 pm

hi
i am new to this forum briefly 8 years ago transplant in right eye 5 years ago in left.i piggyback and have tried nearly all the new silicon hydrogel lenses on the market.i am now trying a 30 day lens from cooper vision which is fantastic the proclear compatable lens i recommend to everyone who has a problem wearing contact lenses to ask their optician about it
merry christmas to you all
Malcolm
mb cohen

User avatar
GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Mon 26 Dec 2005 6:31 pm

Hi Kathy,

Sounds like you have more than a fit problem.

It took me time to find the right drops, which means I can get descent wear time.

I wounder if there is an oxygen transfer through the lens that can make things uncomfortable.

Many here would say to overcome the fit, a sclearl lens would be better as depending on the scleral design, it can be made so it does not touch the cornea. I have heard the visual aquity is not as good, but with glasses on top they are very comfortable and the aquity then becomes excellent.

Gareth
Gareth

User avatar
Kathy Hobkirk
Contributor
Contributor
Posts: 43
Joined: Mon 08 Nov 2004 7:51 pm
Keratoconus: Yes, I have KC
Vision: I have Intacs implanted
Location: Blackburn, Lancashire

lenses

Postby Kathy Hobkirk » Wed 18 Jan 2006 6:46 pm

Hi all

Just a quick up date.

My optician is still trying to find lenses that fit. The pair he has tried hurt like hell!

I did ask him what my options are if he can't find any to fit and he said "intacs". Thats the first time I have been told that it is possibly the best option.

I waiting for another pair to come and try those - fingers crossed, I want to get back to work!!

Kathy

User avatar
John Smith
Moderator
Moderator
Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Wed 18 Jan 2006 7:01 pm

That's possibly the iirst time that I've heard of Intacs being mentioned by an Optician rather than by a knowing patient! You must have a good Optom!

Do you go to a hospital clinic or a high-street opticians?
John


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 23 guests