Hey Claire from ... Claire! LOL!!
Hehehe, no horror stories here, we are all very nice and will be around if you need any help or support. Firstly i'm sorry that you have just been diagnosed, but am glad that you found us!
You don't say how old you are, but the fact that you get away wih wearing glasses is a good sign. Most people with KC, (myself included) could never see anything with glasses, so i think this is a positive thing!
The main thing with having KC is finding someone who is good at fitting you with contact lenses, which i am sure you already know, because when the time comes, this is the best way to get good vision. Please don't worry about getting a graft or anything like that, (which i know most posts have been about lately!) as most manage really well with lenses, so just take each day as it comes.
I have only just had my left eye grafted, but this is because i have never been able to see anything out of it, not because the eye got worse. My right eye is pretty good, and apart from a slight problem this year, have managed very well with a contact lens for fifteen years, so please don't stress too much on it.
The main thing to know is that your eyes are going to change, sometimes slowly but other times a little quickly, but it will all be ok. I know that lenses to someone who has never had any would seem rather daunting, but when you try them i'm sure that in time you will find them a godsend! Without them most people here wouldn't be able to see a thing!
There's a lot of info on the site about KC, but if you have any worries or concerns please just drop back in and someone will be happy to help! If the time comes when you are given a contact lens don't panic! There will always be someone here who has tried the lens, had all the problems you think you will have, been through all the same worries you have, started posting here thinking the worst but in the end, came out on the other side! And in the same breath, just as you are finding your feet on the KC scale, there will always be a little person just climbing up the stairs behind you, so you won't feel so new, and they will be asking for your help!! It is a small world isn't it!!
Take care, and hope to see you posting here soon.
Love Claire X x X
I've found very little about it on the web this afternoon (other than this particular site) so I'm a bit bowled over by the whole thing! At the moment it's not a problem. My prescription has worsened since my last test and my right eye has deteriorated noticibly, but I'm still OK with glasses and I have been told to go back in a year to see how it's going.
