Soft Lenses - For Keratoconus - Kerasoft and Soflex

General forum for the UK Keratoconus and self-help group members.

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jayuk
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Postby jayuk » Tue 29 Nov 2005 7:53 am

Ali / Lynn

I completely agree with you!....

Interestingly enough; KC management with Soft Lenses is a little ahead of us in the USA; where the softlex lens has been used with great success for a while now.

However, in the UK we are still a little behind, primarily because the Opts havent embraced the lens....for the reasons you mentioned!.....

Just with these options would be given across the UK; rather then rubbish them without trying them! and thats why ppl have to than go private!!.. MAYBE you have answered my query! Because of the time involved to fit these lenses ; the NHS funded units dont see it as a benefit?.....Yikes! No! That couldnt be so could it!! LOL
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

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Lynn White
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Postby Lynn White » Tue 29 Nov 2005 9:18 pm

Ahem Jay...

Actually I think Ali has hit the spot... if you have a few bad experiences with a lens then you just don't bother in a busy clinic to try again.

I remember many years ago now, I was asked by a rep to try a certain soft lens - nothing to do with KC actually. Well, with my first few patients it didn't work at all, so I gave the rep a piece of my mind for sending me such a duff product!

He showed me the results others had got with it and I went away and thought about it and realised that my failure was a combination of me not getting the hang of the fitting technique and also that I had gone in more or less expecting it wouldn't work.

So, I looked at it again more positively and everything just clicked. It taught me a valuable lesson that I have never fogotten. However, this was in private practice and in hospital clinics there is not much time for trying out new lenses - especially if you have had poor results before.

Its always worth giving them a go... or as with Sweet, trying a piggyback before you give up on uncomfortable RGP's.

Lynn

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rosemary johnson
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Keratoconus: Yes, I have KC
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Postby rosemary johnson » Tue 29 Nov 2005 9:50 pm

Wonder what (potential) wearer perceptions tere are muddying the waters, too??
I grew up with the idea what for KC one needs sclerals.
This is probably a reflection of my being as old as 24-yet-again!

I certainly grew up with the idea that soft lenses wouldn't work.
At a considerably later date, I lived in digs with a landlord who wore soft lenses, and when he didn't have them in wore the sort of specs that make (some) people make jokes about the bottoms of milk bottles. and shortly thereafter got registered as P/S.
The meant I witnessed the palaver he went through with soaking solutions, cleaning solutions, de-proteining chemicals, etc etc and the problems on the occasions when either some proteins or some chemicals were left on the lenses despite all this.

When Ken first suggested piggybacking sclerals, my heart sank.
OH no!!!! NOt that whole dratted rigmarole, and faff, and problem-laden scenario of keeping soft lenses clean and usable.
My one-time landlord did at least have his -22 specs to wear while he did this routine.

The idea that the NHS would actually provide daily disposables that didn't need any of that was a revelation!
I have to admit that if they didn't, I can't see myself piggybacking more that every so often when desperate.

Maybe it's a bit of a tangent - but I wonder how many other people would be put off by the thought of the rigmarole? - or the thought to trying to getsomeone who couldn't see what they were doing without their lenses in to follow it?

Fairy Liquid is so much easier...... and back in the days or PMMA, only needed doing every so often, too.

Oh BTW, another complete tangent, but has anyone ever heard of piggybacking under PMMA lenses (sclerals with two fenestrations each, in my case, but corneals too for that matter)??

Rosemary


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