Finally HAD a graft

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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John Smith
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Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Wed 31 Aug 2005 12:28 pm

Absolutely, I've always recovered to the point where I have a nice clear cornea again. Sometimes though, the shape of the graft changes, either for better or for worse. This does however usually mean a new specs prescription though!

In terms of symptoms, this time I just had the blurry vision. No redness or pain. It was like looking through a fogged-up windscreen, except that I couldn't clean it!
John

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jayuk
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Location: London / Manchester / Cheshire

Postby jayuk » Wed 31 Aug 2005 12:31 pm

ok thats good to know!...looks like ur an expert at spotting the initial signs of rejection! ... thats the single worrying thing about this whole thing..knowing that when it kicks off you are against time to get treatment and be seen.
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

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John Smith
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Moderator
Posts: 1941
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Thu 01 Sep 2005 12:48 pm

True. Just remember RSVP (Redness, Sensitivity to light, Vision change, Pain) as the four signs of rejection.

If you're worried about a possible episode, just get yourself to your local A&E with an eye dept, and I've found you usually get seen rather quickly!

It doesn't seem to matter if your graft was done privately, the NHS will always help out in such an emergency.
John

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Sweet
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Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Postby Sweet » Sat 01 Oct 2005 3:13 pm

Ok, now almost seven weeks post graft, doesn't time go so quick!!

Everything has healed really well, in fact too well, in that the surgeon is not too sure how many stitches he will be able to remove, which is annoying. Vision is still no better, but i'm told it is now +7, so just waiting!

Am now off abx and maxidex, and now have FML four times a day, another steroid so i am told. This is so much better, as now i don't need a fridge for the abx one, so things are getting better. Pressure is fine as well, so no problems there. Have appt in six weeks time, so here's hoping for some vision changes! Hope everyone is ok?

Sweet X x X
Sweet X x X

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John Smith
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Posts: 1941
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Sat 01 Oct 2005 4:11 pm

Hi Claire,

As I understand it, FML is a much weaker steroid than Maxidex. I've been on FML (currently every 2 hours) almost continuously since the graft over 3.5 years ago without much ill-effect, but I found that long-term Maxidex use made my eye pressure high.

Very glad to hear that you're progressing well though. Fingers crossed that you'll see an improvement when the first stitches are out.
John

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jayuk
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Postby jayuk » Sun 02 Oct 2005 9:31 am

Sweet

Thats quick!...being off the meds at 7 weeks!...guess thats the difference between the Partial and the Full!

+7 is good....as in all honesty this is more likely to go down as the cornea heals / the stiches are removed. Depending on your astigamtism you may actually be able to see with glasses.....that may be worth a shot I guess...or hell just leave it till 6 weeks time!

Sounds like the cornea has healed over from what you say which is really good news!!
KC is about facing the challenges it creates rather than accepting the problems it generates -

(C) Copyright 2005 KP


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