New to this

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
andy
Newbie
Newbie
Posts: 1
Joined: Sat 23 Jul 2005 8:32 pm
Location: Mid Wales

New to this

Postby andy » Sun 24 Jul 2005 2:56 pm

I have KC in both eyes and had a detached retina which left me with a cataract after the operation.
Question how bad is my KC likely to get I have had it about 18 months and is there anything I can do to make it less problematic.
Many of you seem to be much worse than me since I have no pain and just find it a nuisance.

User avatar
jayuk
Ambassador
Ambassador
Posts: 2148
Joined: Sun 21 Mar 2004 1:50 pm
Location: London / Manchester / Cheshire

Postby jayuk » Sun 24 Jul 2005 4:20 pm

Hi

To answer your question, there is nothing you can do currently that will halt the progression. Its just so unpredictable that you may find nothing changes for months/years; on the other side, you may find things getting worse by the week..............thats the nature of this beast
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

User avatar
John Smith
Moderator
Moderator
Posts: 1941
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Sun 24 Jul 2005 8:40 pm

Hi Andy and welcome to the forum.

You're right that you are better of than some of the posters on the forum, but please remember that most people with no problems don't actually post on the forum.

Most of us just cope with our KC using contacts or glasses; a few of us have had grafts. Very few of us are in actual pain, although some people find wearing contact lenses can be painful.

Jayuk is right- there is nothing we know you can do to slow down or reverse your KC progression. The best advice I can give is to seek out the best advice (!) and to live your life accordingly!

All the best,
John

User avatar
Lynn White
Optometrist
Optometrist
Posts: 1398
Joined: Sat 12 Mar 2005 8:00 pm
Location: Leighton Buzzard

Postby Lynn White » Tue 26 Jul 2005 5:59 pm

Andy -

You ask if there is anything you can do to make it less problematic. Well... telling us what the problems ARE for you might help hehe!!

Just a thought! (tongue firmly in cheek!)

Seriously though... your cataract might complicate the way you see so a few more details would certainly help here!

Lynn

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Wed 03 Aug 2005 9:30 am

Hi Andy

Nothing really to add, just thought I'd say hello.

Andrew
Andrew MacLean


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 36 guests