Social Media

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

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Emma J
Contributor
Contributor
Posts: 18
Joined: Sat 15 Jul 2006 8:20 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Derby

Social Media

Postby Emma J » Wed 02 Nov 2016 9:02 pm

Hi all,

Not been on for years still have KC in one eye, transplant to the other. Got my newsletter today thank you, it contained some interesting articles.

Just wondered if the group is planning a facebook group or any social media presence? Would be easier to keep up to date with the good work you are doing and interact wirh the group then?

Emma

Ali Momin
Newbie
Newbie
Posts: 1
Joined: Fri 04 Nov 2016 4:36 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: Social Media

Postby Ali Momin » Fri 04 Nov 2016 4:40 pm

What a great idea. Or even a WhatsApp group? Just seems to be the way forward these days

Ali

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space_cadet
Champion
Champion
Posts: 960
Joined: Tue 12 May 2009 11:46 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Leeds
Contact:

Re: Social Media

Postby space_cadet » Mon 07 Nov 2016 1:48 pm

agreed as personally speaking I can't read the newsletter and have to have someone read it to me which is lowsy as I am not a good auditory learner,

itd also save the group valuable funds if they didnt have to print n post so many hard copies of a newsletter
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world


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