That sounds like much better news on the lupus front, though frustrating that it sounds like a long wait for another transplant. But maybe it's not such a bad thing to let things settle more. The number of corneas donated has been going down in the last year or so, so I guess more of us will have longer waits if we need a transplant. We all need to encourage everyone we know to sign up to the donor register!
Fingers crossed for things to stay stable for you and not too long a wait. Keep in touch.
3rd transplant rejection episode
Moderators: Anne Klepacz, John Smith, Sweet
- Anne Klepacz
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Re: 3rd transplant rejection episode
Hi Sheila, I have just read your story and just wanted to wish you the best of luck. Hope things have got better x
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Re: 3rd transplant rejection episode
Hi through i do an update - thank you all for your best wishes. My Lupus seems to be under control so fingers crossed that it remains that way. I am still wearing a bandage lens, every time we try and leave it out things go wrong. I have been told that I am likely to have my next transplant in October. Just got to make sure I stay well and the eye remains stable.
- Anne Klepacz
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Re: 3rd transplant rejection episode
All the very best, Sheila. That all sounds much more promising.
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Re: 3rd transplant rejection episode
Hi All
My next transplant date has been set for 14 Dec think the delay was due to my thyroixe levels changing just before my pre op assessment the nurse said she thought they wouldn't do it in October as my thyroxin levels weren't stable. Then I got a call from the hospital saying they would book me in for the 14 Dec. So just over 6 years since this one was done and a year since it failed. Nearly there now.
My next transplant date has been set for 14 Dec think the delay was due to my thyroixe levels changing just before my pre op assessment the nurse said she thought they wouldn't do it in October as my thyroxin levels weren't stable. Then I got a call from the hospital saying they would book me in for the 14 Dec. So just over 6 years since this one was done and a year since it failed. Nearly there now.
- Anne Klepacz
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Re: 3rd transplant rejection episode
Will have all my fingers crossed for you on 14th December. Sounds like a great Xmas present! All the best
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Re: 3rd transplant rejection episode
My Transplant op due on the 14th Dec cancelled on the 13th due to lack of suitable material- next date given 8th Feb.
- Anne Klepacz
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Re: 3rd transplant rejection episode
So sorry you've been knocked back again. But enjoy a restful Christmas if you can, and all the very best in February.
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Re: 3rd transplant rejection episode
Thank you Anne. Hope you also have a good Christmas.
Wishing everyone one a a= Happy Christmas and a peacefully New Year
Sheila
Wishing everyone one a a= Happy Christmas and a peacefully New Year
Sheila
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Re: 3rd transplant rejection episode
Hello
Quick update. My transplant has now been delayed until the 15th Feb, as a emergency case came in for the 8th. fingers crossed for the 15th, third time lucky as my daughter says.
Sheila
Quick update. My transplant has now been delayed until the 15th Feb, as a emergency case came in for the 8th. fingers crossed for the 15th, third time lucky as my daughter says.
Sheila
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