Just been diagnosed with KC - 19 year old.

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starlight93
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Posts: 4
Joined: Sun 13 Jan 2013 6:07 am
Keratoconus: Yes, I have KC
Vision: Contact lenses

Just been diagnosed with KC - 19 year old.

Postby starlight93 » Wed 30 Jan 2013 10:54 am

Hi guys, I'm a 19 year old in India.

My power has always been bad from the time I can remember, when I was ten, I had -6 in both the eyes. By 17 my power was -8 in the left side and -10 in the right side.

Well to cut a long story short, I started developing KC 2 years ago, and thinking it was merely a case of astigmatism, put off doctors visit for a while. Bad move - I developed Acute Hydrops 2 months later and rushed to the hospital. It settled after a while , leaving a corneal scar that affected my vision. My KC eye is my left eye. After 1 year, I still can't read any text whatsoever in that eye. I've been surviving with my left eye, which btw is a -10. I'm in a very delicate situation. Anyways finally went to a doctor for the KC, and I've been advised to go for contact lens fittings in 2 days. I'm not very enthusiastic about it, but hey - anything is better than a transplant.

I'm still very nervous and very scared, I'm not even 20 and my eyes are in terrible condition.

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jay87
Regular contributor
Regular contributor
Posts: 146
Joined: Tue 11 Oct 2011 9:24 am
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: Peterborough, Cambs, UK

Re: Just been diagnosed with KC - 19 year old.

Postby jay87 » Wed 30 Jan 2013 5:17 pm

Hi Starlight and welcome to the forum!

I'm sure you'll find contacts give you much better vision than glasses, and there are lots of different types to choose from. They may take a bit of practice at first, but you'll be a pro in no time :D

Good luck, and let us know how you get on
Jake 8)
______________________________________________________
-4.75D Left eye -9.25D Right eye Specs. No change since 2011.
Dx with KC Oct 2011. Rose K2 lenses & specs for vision, using Peroxide & Pres. Free Eye Drops

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Charlottes mum
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Posts: 139
Joined: Tue 24 Nov 2009 5:14 pm
Keratoconus: No, I don't suffer from KC
Vision: I don't have KC

Re: Just been diagnosed with KC - 19 year old.

Postby Charlottes mum » Wed 30 Jan 2013 10:12 pm

good luck to you. my daughter was diagnosed age of just 17. its a bit of a journey for you but just remember to keep on asking questions all the time and you'll be alright. this forum is very good and lots of up to date info. much better than a lot of other sites some of which may seem daunting. we wish you all the best, sure you'll be just fine! Angie and Charlotte.
"Promise me you'll always remember that you're braver than you believe, you are stronger than you seem and smarter than you think" .....Winnie the Pooh

starlight93
Newbie
Newbie
Posts: 4
Joined: Sun 13 Jan 2013 6:07 am
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: Just been diagnosed with KC - 19 year old.

Postby starlight93 » Sat 02 Feb 2013 1:49 pm

Hi guys,

I'm back from the lens fitting and KC test. Not much good news :(

Have been told my Cornea is too steep for RGP and soft lens. My cornea microns are 330 in the KC eyes, which is super low, and i have a lot of scarring from my previous hydrops.

Consultant has advised either scleral lens (at 1000 dollars per eye its a little too steep) or a corneal graft. :(


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