NICE are reviewing the guidance on CXL that they issued back in 2009 www.nice.org.uk/IPG320 There will again be a consultation about the new guidelines. I'll post details of the consultation as soon as I have them and would urge all members who have anything to say on the procedure (positive or negative) to take part in the consultation. You can already register an interest on the link above.
Anne
CXL and NICE guidance
Moderators: Anne Klepacz, John Smith, Sweet
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Anne Klepacz
- Committee
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- Joined: Sat 20 Mar 2004 5:46 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
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space_cadet
- Champion
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- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
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Re: CXL and NICE guidance
I agree with Anne that the only way real voices with KC experience can be accounted for and taken on board is if we empower ourselves to use our voice,. so get involved 
x
xMay09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
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Elizabeth R
- Chatterbox
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- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: Wiltshire
Re: CXL and NICE guidance
i could do with that right now.cxl.how much does it cost.where do you get it.who do you ring.right changeing
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