crosslinking

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danieljdavies
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Keratoconus: Yes, I have KC

crosslinking

Postby danieljdavies » Thu 16 Feb 2012 9:07 pm

hi al,

just wondering what this is costing at the moment per eye??

I have read a few prices, and also that its cheaper to go abroad to get it done e.g. germany

if someone could give me some feedback that would be great

thanks
dan

dalbeath
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Re: crosslinking

Postby dalbeath » Thu 16 Feb 2012 10:20 pm

I paid £1200 for one eye. Worth every penny :D

danieljdavies
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Keratoconus: Yes, I have KC

Re: crosslinking

Postby danieljdavies » Fri 17 Feb 2012 8:52 am

ey,

thanks for the reply.

where did you get your procedure done?

glad you think its worth it. how long ago did you have it done? also do you have to have both eyes done at once?


thanks
dan

dalbeath
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Posts: 104
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Keratoconus: Yes, I have KC
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Re: crosslinking

Postby dalbeath » Fri 17 Feb 2012 10:09 am

I had it done in Ayr (Scotland) in June last year. Just one eye as my left eye cornea is too thin and too knackered and beyond CXL.

I have unusual KC in that my left eye went from no sign to too damaged for CXL in just 6 months. So as soon as I saw symptoms in my right eye I had it CXL. 8 months later and my right eye has definitely halted. Left one went on to have a perforated hydrops and am now bind in that eye. Considering a graft. So to have my right one stabalised is a total God send.

I'm not 100% sure but I think they would not allow you to have both eyes done at the same time. Also having had one eye done I would not recommend doing 2 at once as you need your other eye to put drops in etc in your CXL eye. My vision was pretty poor for the first couple of days in the CXL eye and very sensitive to light for about a month.

liam82
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Keratoconus: Yes, I have KC
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Re: crosslinking

Postby liam82 » Fri 17 Feb 2012 10:40 am

dalbeath wrote:I paid £1200 for one eye. Worth every penny :D


Me to!

danieljdavies
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Joined: Mon 31 Jan 2011 11:14 am
Keratoconus: Yes, I have KC

Re: crosslinking

Postby danieljdavies » Fri 17 Feb 2012 1:08 pm

where in ayr did you get this done?

dalbeath
Regular contributor
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Posts: 104
Joined: Thu 06 Jan 2011 3:01 pm
Keratoconus: Yes, I have KC
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Location: Fife
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Re: crosslinking

Postby dalbeath » Fri 17 Feb 2012 1:51 pm

http://www.sathish-srinivasan.com/
Highly recommend him
Carrick Glen Hospital :D

Rose
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Re: crosslinking

Postby Rose » Sun 19 Feb 2012 6:11 pm

Hi
I am looking into having crosslinking done for my son who was diagnosed in Dec 2011. I am interested in the thought of having the procedure done in Germany. I have written to the hospital in Dresden where it was first developed; not had a reply yet but I am thinking about it as they will have a lot of experience.
Also my son has asked the question at hospital visits and not yet had a reply - he has KC in one eye, the other eye has 4% change. He would like CXL in his good eye - to keep it good. Why not??? Any thoughts any one?? :D

Peter Goren
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Re: crosslinking

Postby Peter Goren » Sun 19 Feb 2012 6:37 pm

Hi Rose,

Crosslinking has the added benefit for many patients of improving vision a couple lines. That is because the shape of the cornea changes during the healing process. However, I wouldn't advise crosslinking an eye with close to 100% vision because at that point any surgical intervention risks changing the situation. In my opinion it is best to monitor the eye for changes and only intervene when necessary.

Regards,

Dr. Goren

Rose
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Keratoconus: No, I don't suffer from KC
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Re: crosslinking

Postby Rose » Sun 19 Feb 2012 6:45 pm

Thank you Dr Goren. It is good to have a honest clear answer. :D


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