keraflex

[drink]

Lynn, from your experiences, on average, if a person has only Crosslinking CXL done (on its own without keraflex), after the procedure, on average how long does the patient have to wait until contact lens fitting sessions?how long until they can wear contacts to correct their vision in the CXL operated eye?

Fully understand every patient is different, a rough average/guestimate figure would be really good.

Like you mentioned work can be put at risk if it takes too long, il be having one eye done at a time, but would like to know how long i need to take off work for each eye. Ideally need both eyes for my job, just wondering how long before vision is back on the operated eye...

[Luciano]

Today when i woke up i thought i sleept wiht cl , i went to the bathtroom and tryied 4 times take the contact lenses but i wasnt wearing cl. Vision was too good. Be at home for long time is not a big problem for me. Im a public work and the law protect you to be fired. You can stay out for a long time with 100% salary. This is very good here, you dont need to push to back to work very soon.

[Lynn White]

Ttuf,

Usually, people are off work for a week post CXL. I have fitted soft CLS as early as 2 weeks post op, though I wouldn't do that for an RGP lens. Therefore getting back to work is quite quick. However, if you are in, say, IT and rely on your eyesight to do work, then it can be a bit tricky working through the fluctuating vision. However, most people tend to manage this OK.

Luciano, you are indeed very lucky! There are not many people here in the UK that can do that!

Lynn

[drink]

Luciano you really are lucky!!

Thanks Lynn, I work in engineering, so constantly reading measuring equipment and work in fine detail so really do need both eyes. I think if i can get away with having say a month off work, that might be enough for the eye to settle in enough for CL fitting. There will be fluctuation, but hopefully not bad enough to get in my works way.

[drink]

Today when i woke up i thought i sleept wiht cl , i went to the bathtroom and tryied 4 times take the contact lenses but i wasnt wearing cl. Vision was too good. Be at home for long time is not a big problem for me. Im a public work and the law protect you to be fired. You can stay out for a long time with 100% salary. This is very good here, you dont need to push to back to work very soon.

sounds like you have had a very good result, if you dont mind me asking, what was the condition of your eyes before the keraflex+CXL surgery? also do you have any before keraflex and current topography graphs? would you like to share them please? would be very interesting to see to help me make my decision on what route to take.

[Luciano]

So, my keratoconus was stable for more than 15 years. I had a good life with hard cl. Now i did 4 topografies after keraflex. Some betters some worse. Now i have almost the same vision quality than before with glasses or soft cl. But i can see better without glasses. But this dont help me. I want see better with soft cl and glasses. Sometimes the vision become better but not toooo much. I hope the degree go down and vision quality get better too. But every day i can see little better. The halos and gosts are going out . My keratoconus was middle down the center, now is in the center, i expect after the scar go the center become better. I had 10 diopitries diference in 1 week, so this can change a lot. I wanna see the final results. But im not 100% percent sure it will be bette than before. I want wait 2 wweks more to see the topografy. My opinion in the future ill need hard cl and not will be changd for me. Just the experience to do something and probabilly the conuz will go down in the original area but can move for another place. Who knows? Rs just in the end i can answer the questions. But is very dificult to answer to friends and family that its not a laser procedure. Every day people ask to me if i can see100% without lenses or glasses. Im just know thats is not easy posop. And nobody know how it wll be in the future. Just guesses. Only thing to do is waiting and pray. But for people with bad vision and no expectation i would recomend, not for a good konus. For now.

[Luciano]

Kk sorry about the mistakes. I was inthe phone after some beers. Thanks

[drink]

Luciano, Thanks for the reply, that was very good. How many weeks has it been now since the keraflex procedure? also do you wear soft lenses now to correct vision?

Also others who have had keraflex done, your experiences with keraflex would be real good to hear and helpful for all.

[Lynn White]

Hi All

Again, I do not want to be seen to be throwing cold water on a new procedure.. far from it. However, a period of vision getting better (In Luciano's case) does not mean this will last, nor does it mean that other people will have the same result. Some may have better, some may have worse.

I really want to caution against taking other people's results and projecting them onto your own situation. It really does not work that way with keratooconus. Everyone is really very different.

However... good to hear that things are improving Luciano! I know its so frustrating that others think you have this procedure and then everything is all right! You have to remember that others find it hard to cope with the idea of vision loss, so its almost a form of protection to think "Oh..you are OK now?" so they do not have to think you are having problems. This is just human nature.

I think everyone who has KC goes through the same problems.

Lynn

[liam82]

Definitely. Its encouraging though to hear from someone with actual experience of the procedure.

I've been looking into T-CAT, instead, but there seems to be so little information regarding it and only one place that does it. I cant find any testomonials anywhere to say what peoples experiences have been like after!