Basically names are removed because the forum has to stay within English Law as that is where the group is registered. When I was a trustee of this group and a moderator we failed on I think two occassions to appropriatly moderate posts and in each case the group was threatend with legal action.
Any compensation and legal case would basically exhaust the Groups funds very quickly leaving the trustees to pick up the bill which could result in the trustees becoming bankrupt and would certainly lead to the end of the KC Group to give the valuble support they have done so for many years and would like to continue doing so.
Kerasoft 3 Lenses & NHS
Moderators: Anne Klepacz, John Smith, Sweet
- GarethB
- Ambassador
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- Joined: Sat 21 Aug 2004 3:31 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: Warwickshire
Re: Kerasoft 3 Lenses & NHS
Gareth
-
- Forum Stalwart
- Posts: 578
- Joined: Mon 20 Apr 2009 9:04 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Re: Kerasoft 3 Lenses & NHS
What I find ironic though is that medical notes can contain all sorts of libellous, unpleasant and untrue things about patients but we can't so easily sue them!
- MartinC
- Regular contributor
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- Keratoconus: Yes, I have KC
- Vision: Contact lenses
Re: Kerasoft 3 Lenses & NHS
My wife works in the NHS (not eyes) and their system is to put a staple in the corner of the treatment card of "difficult" patients!!
- MartinC
- Regular contributor
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- Keratoconus: Yes, I have KC
- Vision: Contact lenses
Re: Kerasoft 3 Lenses & NHS
As you well know, my optom considers me "special", not "difficult" 

- Lisa Nixon
- Regular contributor
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- Joined: Thu 25 Nov 2004 9:34 pm
- Location: Isle of Man
Re: Kerasoft 3 Lenses & NHS
I wore Kerasoft lenses for years before I needed a transplant. They were wonderful and gave me my life back. I know they don't suit everyone but you should at least be given the option to try them!
Only Robinson Crusoe got everything done by Friday!!
- Phantom
- Newbie
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- Keratoconus: Yes, I have KC
- Vision: Spectacles
Re: Kerasoft 3 Lenses & NHS
I know thats my thoughts exactly...
I am waiting to see if there is any NHS hospital near me which actively fits kerasoft lenses.
That way I can ask to be referred - as in my opinion if the hospital i am with wont do it, i should be able to visit another that will
Fingers crossed

I am waiting to see if there is any NHS hospital near me which actively fits kerasoft lenses.
That way I can ask to be referred - as in my opinion if the hospital i am with wont do it, i should be able to visit another that will
Fingers crossed

- Lisa Nixon
- Regular contributor
- Posts: 121
- Joined: Thu 25 Nov 2004 9:34 pm
- Location: Isle of Man
Re: Kerasoft 3 Lenses & NHS
Try my hospital, the Royal Liverpool, the opticians there are superb and spent ages fitting my lenses properly
Only Robinson Crusoe got everything done by Friday!!
- Phantom
- Newbie
- Posts: 9
- Joined: Sun 18 Apr 2010 11:37 am
- Keratoconus: Yes, I have KC
- Vision: Spectacles
Re: Kerasoft 3 Lenses & NHS
Lisa,
Thanks for the recommendation, and apologies for the huge delay.
After all this time trying to get Kerasoft lenses my local NHS were having none of it...
I only ever got the excuse that when they trialled them, they had a poor success rate in comparison to RGP lenses.
However, it seems from my understanding that the Kerasoft IC lenses are very good and have a high success rate!
As far as I know under the NHS Choices system I can request to be seen by any NHS hospital - therefore I am going to request a referral to a hospital I know offers Kerasoft IC lenses - it seems there isn't any private opticians in my area that offers them, and strangely no major national opticians offer such lenses - which is crazy!!
Thanks for the recommendation, and apologies for the huge delay.
After all this time trying to get Kerasoft lenses my local NHS were having none of it...
I only ever got the excuse that when they trialled them, they had a poor success rate in comparison to RGP lenses.
However, it seems from my understanding that the Kerasoft IC lenses are very good and have a high success rate!
As far as I know under the NHS Choices system I can request to be seen by any NHS hospital - therefore I am going to request a referral to a hospital I know offers Kerasoft IC lenses - it seems there isn't any private opticians in my area that offers them, and strangely no major national opticians offer such lenses - which is crazy!!
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