Message from Rosemary

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Re: Message from Rosemary

Postby Andrew MacLean » Tue 04 Aug 2009 6:18 am

:D Truth is, Rosemary, we are all concerned about you. None of us enjoys your unfolding saga any more than you do, but we worry even when you are not posting.

All the best with your new GP. I see the GP as they key member of any team; my own GP is the interface between me and all the hospital departments I attend. She takes time to explain anything I have not understood and she advises me on what to do next. A good GP is worth even more money than those actors who pretend to be doctors in tv soaps :D

All the best Rosemary.

Andrew
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Re: Message from Rosemary

Postby rosemary johnson » Tue 04 Aug 2009 10:32 am

THanks, ANdrew!

iN MY EXPERIENCE, gpS ARE THE PEOPLE WQHOSE DOOR i HAVE NEVER DARKENED FROM ONE YEAR END TO THE NEXT, AND WHEN i DO NEED ONE ALL i GET IS

1: "WWHO DO YOU NORMALLY SEE?" - abnswerL no-onw, I'm not normally ill!

or

2: "Your notes haven;'t arrived from your old |GP yet" - so they won't do anything, even if I have collapsed in a field the previous day......

And they are the gatekeepers - or gateblockers, in the case of the one I@m not staying with - between me and the specialists I really need to see.

What ever one hears about the terrible perils of a US type system - and I do NOT!!!! for one minute want to recommend a system where your health depends on your bank balance - or that you can build up a bill to the medical profession of over $100,000 anbd have no way to start paying it, as a couple of my US friends have had..... whatever it's perils, there is something to be said for a system where you go go where you need without an almost total stranger in the way adding nothing but XCHinese whispers.

ANd, of course, where the relevant specialists are used to having to advertise their serivces and what their specialisms are, so prospects patients/clinets can find them.

I've found recently the only way to find who I ought to be seeing is to get in touch with the Private Patients' departments and see who it is who reckons it is them who wants my molney. After 60 yewars of the NHS< don't you think that stinks|?? - as I said to now-ex GP#'s practice manager about why lead Gpo IN HER PRACTICE WAS DOING SWEET fa AND i HAD NOW COLLAPSED IN PARK AND HAD TOBE TAKEN TO a&e BVY AMBULANCE.

Sporry, keyboard a bit rocky.... oops again.

Rosemary

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Re: Message from Rosemary

Postby Barbara Davis » Tue 04 Aug 2009 10:38 am

<Hug>

Glad to see you back but commiserations, of course, about some of the other stuff.

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Re: Message from Rosemary

Postby Hilary Johnson » Mon 10 Aug 2009 11:20 am

Hi R welcome back.
And I just about made sense of your typing....

For doctors to be behaving as they are ("Who do you normally see?" and refusing to act until they see your notes) I can only imagine they must be taking you for a "frequent flier" i.e. one of those patients who keep going to the doctor with vague and bizarre symptoms but, however many tests and specialist appointments they are given, they can never be diagnosed with anything.

Of course no GP would ever say "I think you may be a malingerer, I want to see if your last GP got wise to you before I spend any of my budget on you" so it's not out in the open, and you can't defend yourself.

You could try asking them straight out whether they really do take you for one of those patients, and even what it is that gives them that impression. It could be something as daft as - they think you are lying because you are not making normal eye contact with them (Duh! ... of course you're not, you can't see them!)

If it is something trivial like that, it's easy to just look more at them - even if you can't see them and/or they are ugly!

I once saw a "careers consultant" who said she didn't believe what I was telling her because I didn't look at her enough. The next time I saw her she commented that I was "making better eye contact". I didn't have the heart to tell her that, the first time, I was looking at her hands not her face because she was wering panckae makeup and at least her hands were more honest, but the second time, she had her nails painted as scarlet talons which made her face the better option. In retrospect, I wish I had, given how rude she was to me later. (I walked out on her in the end, but that's another story).

Ollie sounds very cute - I await the link to the pictures - and of you looking like Dick Dastardly. Who is Mutley??!!! (Or would people pay to do that??)

H

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Re: Message from Rosemary

Postby rosemary johnson » Mon 10 Aug 2009 4:33 pm

Hi H,

Logging on from the office again quickly, now got keyboard level but see see screen from here.

I think the "new" (now ex-) GP was doing what he was because of incompetance!! - having asked around about him, I've had several bad reports. When the PCT complaints office ask who the GP is and when you tell them, the response is, "Oh, yeah, them!" you get the imporession it is not only me who is unimpressed.

Aklso asked my local councillor, who said he and his wife are officially registered with him, but won't touch him (or his wife who is another partner) with proverbial bargepole after his inaction nearly killed his wife!!! - diagnosed eventually, thanks to official private medicine benefits, as having Addison's disease, nbiow there's a surprise!¬!! COmplaints office at PCT alos suggested Iregister with the new practice elsewhere which I've now done. We wait and see.

It does, actually, give the impression off of being not a happy place - and I've been in waiting room when someone else has been holding forth with great feeling and venokm about lousy treatment to her mother. It was two or maybe tthree practices that merged to move into posh new centre together and I think the merger didn'[t work out too well - the forward-going younger doctors and others from the m ore forward practices haven't, I guess gelled with the other, and the guy who has ended up as senior partner (and his wife) who I was technically on the books of, and probably should retire..... The receptionists don't look happy, the practice manager doesn't look as happy with the way things are going as she might - she agreed with me at one point that "After 690years of the NHS, don't you think that stinks?" and in the end, it was her, I thinnk bending the rules, who gfot me through to Barts. The office staff wto whom I said that refusing to give patients copies of their referral letters was totally unacceptable in 2009 also thoroughly affggreed with me but weren't supposed to say so...! - and it does not take an enven moderately competant office over twice the legaltime limit to make any response to a subject access request (to medical records) under the DPA - and then the practice manager sorted it out by "just doing it" without any authorisation with a medic.......

Think I'm well out of that - and those who can get to keep seeing the good ones from the other merged practices, good luck to them. The old man actually changed my appointmentwith one of them to him, Poaching patients because he can't keep his own??????


Actually "Who do you normally see?" is the normal question by my dentist's reception staff - to which answer is "John". So probably not too un-0sensible a question. But you'd liek to think they would understnad an answer of "No-one, I'm not normally ill" a bit better.

Practice nurse, incidentally, who was the only one I did ever normally see, seemed to think that particular GP might be one who miught respond like that......

I busily hoping Bsarts find out what the probnlem is - and even that the steroid problems might be klinked tothe can't-understand-motion-sensations and even memory problems, and can then get them sorted like that and tell the neurologists what they missed!!!

Ollie is definitely cute, even going black fast - very fast|! His fgeet are growing at the toes and down at the hells already, so the farrrier is going to be taking a look at him on Friday. Farrier's bills already!!!!!

Duke's saddle is withthe saddler being mended (nothing serious, just wear and tear) just as the work has finished and the workmen gone, and the lane has been resurfaced as their last task. SO we can take Duke up the lane without the potholes, stones, grit etc getting in his sore feet. I oput his brdile on and led him othe other day, then yesterday Danny said I was going to rid ehim up the lane bareback...... not the best time to try riding bareback first time ever, when eyes too sore to get lenses in, and loadsa cows and a big scarey bull lookinf at us over the fence from the field next door!

Rosemary

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Re: Message from Rosemary

Postby rosemary johnson » Thu 20 Aug 2009 11:18 pm

I've been trying to post this for last week.
Every time - and twice tongiht so far!! - computer has hyng and I've lost it all.
v v fed up with this!
trying again - in short messages.
hospital apptmt re eyes last weds.
well, supposedly 3 - CL, corneal consultant, glaucoma clinic.
excapt corneal cons. not in today and her deputy didn't want to see e.
Same last time - fed up with this.
saw other two.
will post this and hope not to lose it....

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Re: Message from Rosemary

Postby rosemary johnson » Thu 20 Aug 2009 11:35 pm

would you be-adam'n;eve it - posted that bit and it hung again?!
v v v v pee'd off.

Got to hospital. eyes v red and sore and exuding goo and crusty in mornings.
Said thought got an infection again.
They say not.
they say it it is not rejecting - "very clear and very quiet".
As if I'm supposed to be delighted!
they say stiitches wwell embedded.
GRRRRR!!!!! frustration!! I ant the wretched thing OUT!!! OUT!!!!!! OUT!!!!!!
Reported on latest situation with the endocrinologists - said good news was had got to see relevent speicailist -
- despite best efforts of parts of hsopital to make sure I can never get any health care again!!!
Also reporte don arrival of Ollie - duly charmed.
!!
Taled about how liout how original problem for which I was referred to medic for first time in years was light sensiticity.
Was stunned to be offered graft and now it has made it far worse.
ANd transpires not directly related to eyes at all (!) and dsurgeon never tho surgeon never thought it was so graft never going to do any good.
Because now worse am being referred to "cosmetic" detppt -
for "blackout contact lens with false eye on front and black from inside.
This to cut out brightness and pain on brightest days/worst conditions.
And look slightly less odd than going round with it crewed up tight shut against glare in bright sun/against oncomingheadlights waiting for bus at ight.
- or a lack patch, with or without skiull and crossbones!
more in part 3

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Re: Message from Rosemary

Postby rosemary johnson » Thu 20 Aug 2009 11:54 pm

and part 3 just got lost in another hung-up.
trying again.
CL got me to put both lenses in.
hadn't had lens in grafted eye since January apptmt. Felt very uncomfy putting it in again.
vision as ever.
says it still fits fine and is OK to wear if I want to try it again.
thinks may give more than an hour or two now and worth trying.
don't hold you breath - just don't want to know.
Glaucoma guy left me to his deputy.
IOP 15 in grafted eye, 10 in other.
lights v v v painful but says backs of eyes look ok.
apparently one is tilted.

part 4 follows

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Re: Message from Rosemary

Postby rosemary johnson » Fri 21 Aug 2009 11:58 pm

part 4 swallowed in another hangup last night.
gave up and went to bed
computer hung and lost it again today.
vvvvvvvv fed up.
hope you can make sense of this.
very easy to get ahead of computer thenscreen looks a mess.
if get too far ahead, ?buffer overflow and crash.
ho hum
try again.
glaucoma guy reckons red sore gooey eyes down to hay fever
prescribed anti hay fever eye drops.
non-steroid, and safe after graft he says.
3 days later, eyes more red and sore than ever and gooey.
lids stuck together in morning
friends telling me my eyes look wollen - have I another horse fly ite?
stopped drops
eyes back to "normal" red sore stickyness.
phamacist thhnks this is Adverse Reaction and won't wear off.
Ho hum.
thanks good ness for prescription season tickets.
part 5 follows with luck (!)

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Re: Message from Rosemary

Postby rosemary johnson » Sat 22 Aug 2009 12:15 am

part 5 (fingers crossed)
hospital say come back in 6 months.
Inc apptmt with cornea cons I haven't seen since Jan.
hate hate hate going to that place and wonder why I bother.
Awaiting letter from "consmetic" people about "blackout" lens.
this would be either soft lens or PMMA (perspex) scleral.
they can't put the painted fake eye onto rgp scleral lens .
Can see 2 possile problems:
1. can only keep powered lens in for c 2hours when last tried (grated eye).
If can't see out to realise world going very misty, risks doing harm by leaving in far too long.
2. really need the blackout aainst bright liht in height of bright sunny day. or low light sunny morning/evening.
but just as with powered lens, when really need to have it's benefit, even for an hour or so, not always got good hygienic facilites for putting in lens.
in middle of filed withhorses, for example!
Do not want horse sweat, fur and horse poo (!) getting in soft lens structure!!
We shall see.
meanwhile, got collection of insect bites on arms, shoulders etc.
presumably as a result of cortisole from these, been feeling really tired, exhausted, sshakey, etc etc.
Can't go on linke this. SOOOOOOO! hope Barts find what the problems is.
Appointmnet for health check up with new GP in morning.
wish me luck!
rosemary


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