Keracatonus Cross Linking C3-R® Help!

General forum for the UK Keratoconus and self-help group members.

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lars
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Posts: 46
Joined: Thu 15 May 2008 2:33 am
Keratoconus: Yes, I have KC
Vision: Other

Re: Keracatonus Cross Linking C3-R® Help!

Postby lars » Tue 20 Jan 2009 10:33 am

Firstly, thank you Lynn for your post, cls and cxl are different indeed.

Rosemary, you are right, I am sure that this percentage is different from country to country as well as the percentage of incidence of KC, what I wanted to show is that there are some statistics in general.

Andrew, just like Pepe said, this was the epi-off method and was only performed this way because of the fast healing it offers. Doctors argue about its efficacy. I am not crazy, I know that no treatment is 100% effective, that is the same with cxl. On the contrary I am trying to find any papers or bad experiences, I am sure cxl-club will help a lot. If anybody has read sth, I would be very interested to read about.
Something last, the difference with grafts is that cxl does not restore vision, just helps it from getting worse (--> vs time again)

I hope everything goes well for all of us (independent of cxl).

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pepepepe
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Posts: 137
Joined: Sat 16 Aug 2008 12:13 pm
Keratoconus: Yes, I have KC

Re: Keracatonus Cross Linking C3-R® Help!

Postby pepepepe » Tue 20 Jan 2009 3:20 pm

Lennie,

Which treatment are you talking about once diagnoses you get through the NHS ? (Intacs/transplants ain't tried before contact lenses nor is CXL on the NHS, so what is this treatment ?)

viewtopic.php?f=1&t=1468&p=18681&hilit=treatment#p18681

You said that the Kerasoft is not getting trailed but in this post they are ?

viewtopic.php?f=1&t=3965&p=39693&hilit=treatment#p39693

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GarethB
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Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Re: Keracatonus Cross Linking C3-R® Help!

Postby GarethB » Tue 20 Jan 2009 6:29 pm

This thread was brought to the attention of the moderators on the moring of Sunday 18 January.

Since reviewing this topic over the past coupe of days we have concluded that it has not only detracted from the original question asked but is now going in 'circles' and ceased to be productive.

Therefore this topic is now considered close.
Gareth


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