Quicktopic posts: Jul 2003

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

Victoria Humphries

Postby Victoria Humphries » Fri 11 Jul 2003 11:58 am

OPTICIAN IN BATH

Ditto to all the comments re. the website. A MASSIVE improvement and very easy to navigate. Thanks.

Not sure if anyone can help me please. I have just moved to the Bath area and am looking for a sympathetic optician (ie one who actually knows about Keratoconus!). I have a fab contact lens optician (but he is in London!) but need someone for glasses. I am still able (just about) to wear glasses in the evenings (ie when not driving etc, and my eyes are tired) but need to find an optician who understands about the problems of glasses. Does anyone know anyone please. Thanks so much. victoriahumphries@berrymead.co.uk

Gillian

Postby Gillian » Fri 11 Jul 2003 2:16 pm

As a relatively new scleral lens wearer I find that some days are so much better than others.Some days I can wear them for hours - possibly 14 or 16 and other days I need to take them out after about 5 and insert them again. My eyes start to feel dry and are not comfortable.I also find that when I take them out my eyes remain sore for sometime after. I have also (I think) have got some little blood veseels that could have appeared since wearing these type of lenses. On the very positive side my vision seems very good - possibly a bit better than the cornals. Any ideas?

SueB

Postby SueB » Sat 12 Jul 2003 8:30 am

Hi Everyone,
I went to Moorfields last week and was advised that my vision has fallen below the legal limit for driving. They have ordered me some new lenses which may bring me up to the required level again but there is no guarantee. Basically, I have been told to test myself with the new lenses when I get them. If I can read a number plate at 75 feet I am okay to drive. If I cannot read it, then I shouldn't drive.
CAN ANYONE ADVISE ME ON THIS PLEASE?
Do I have to be able to read the number plate easily, or is it okay, as long as I can just make it out even if I do have to stare at it for a while until it comes into focus?
I am self employed and need my car to get to my customers premises. If I cannot drive, I will lose about two thirds of my business. My next appointment is not until January 2004. I also realise the consequences of driving with impaired vision. I don't want anything on my conscience, if I were to have an accident. I am aware that I have difficulty reading direction signs but as I now only drive on roads that I know this has not been an issue. I can see cars and people and other hazards in the road. I can also read road signs (shapes are easier to distinguish than letters and numbers).
Any advice via this site or direct to my e-mail address (SueBurbidge@aol.com) will be gratefuuly received. Thanks.

sarah marsh

Postby sarah marsh » Sat 12 Jul 2003 11:11 am

for sue ..re driving !
i had a cornea graph last aug but before i had op i was forced to give up driving till i had op.
i was put on waiting list in feb 2001 and wasnt allowed to drive again till 4/5 months after op which was dec/jan 2003.
i also had to give up my job as i had to drive 20 miles to get there each day and wasnt allowed to drive when dark ! my doctor signed me off but whether that was because i was going on waiting list which i think it was.
you can always email me on starlight7723366@aol.com
sarah

John Smith

Postby John Smith » Sat 12 Jul 2003 11:15 am

Thanks for all the comments on the new-look web site; it's still bascially the same site at the moment, I've just tidied things up a bit and applied a bit of consistancy across every page. Hopefully, the photos are all sorted out now. Future plans include moving the discussion pages off quicktopic and on to the site proper, and maybe some more articles...

Andrew Bosanquet

Postby Andrew Bosanquet » Sun 13 Jul 2003 5:12 am

Hi Victoria
Welcome to Bath! I have been in Bath for 25 years and always go to Bristol Eye Hospital for my keratoconus. Fred Giltroy-Tyler, the head optometrist is very knowledgeable and has worked very hard to find me new lenses whenever required. The Brislington Park & Ride takes you almost to the door. Contact me if you require further info.
Andrew agb@caltri.org

umbilica@umbilical.demon.

Postby umbilica@umbilical.demon. » Sun 13 Jul 2003 1:07 pm

Hallo again:

I finally got round to looking at the new-style web site.

Once I got there the main page just came out as a list of
options - fairly striaghtforward to understand when it comes up
and is read out for the first time. BUT! - every single link
appears as simply "[LINK]" - which isn't very helpful when
stepping through the links in a screen reader .... [LINK] [LINK] [LINK] [LINK]..... which one is which?? Please could these have some ALT= tags in, fairly urgently?!

Also, is it possible to do something about the introductory two
pages one has to link through? - the first one with a link name
something like u2net.... and then I think another screen with
just a long URL on it. It must have worked, as I just kept
pressing return on whatever was there, but it isn't very friendly.

Afraid I can't remember the old one well enough to comment on a
comparison. Would have been nice to find a site about an eye
condition without loadsa anonymous graphic (presumably?) links
in to give access problems, though, so hope these can be sorted
out.

Rosemary
--
Rosemary F. Johnson

John Smith

Postby John Smith » Mon 14 Jul 2003 8:24 am

Hello Rosemary,

Unfortunately, the site went live when it "looked good", but before it had been completely compatibility tested; although I didn't add any ALT texts, I didn't take any away either! Anyway, I think I've now put an ALT text on every image on the site. Let me know if I've missed anything.

As for the redirect pages, these are only temporary, and are a result of the way that Tony has linked from the old site to the new. For the time being, you could use http://KC.roundel.net to get to the site without being bothered by the links, which people using conventional browsers don't see. But that's no excuse.

John

Steve Jones

Postby Steve Jones » Mon 14 Jul 2003 11:46 am

hello all,
I work on the railway and i have just been told that i have Keratoconus. I would like to do safety work, but im unsure if this is allowed or not, even though i wear glasses. if anyone can tell me if i can become safety critical , let me know at stevyj1@aol.com.

Thankyou.
(ps i have been told that im just legal to drive)

manny gatt

Postby manny gatt » Mon 14 Jul 2003 5:28 pm

Ive just found your site and find it very good, I have had KC for 20 had a graft in my left eye 9 years ago, The eye clinic at addenbrooks Hospital looked after me very well especially through my rejection periods. I wear lenses and have no problems, Mr shephard in hitchin looks after me well.


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