Quicktopic posts: Jun 2003

[Dinkie]

From Laura To Moran. Just read tis whole web site each and every page and then if you have any queries just ask this site has been such a god send to many people that you should find it very helpful.
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[Willis]

Hi, this is my first visit to the site and feel quite glad to have finally made 'contact' with people in similar situations to myself. I was diagnosed as having keratoconus when I was 17 (I'm now 33). The past 16 years have been filled with regular hospital appointments and various contact lens fitting, which have all helped and enabled me to live a full and active life. However, the hospital team and I have noticed a gradual deterioration in my current range or vision.

From the outset I knew a corneal transplant may be my best option, but only reently realise how close that option has now become.

So... my reason for writing is to make contact with others who have had corneal transplant or who may have more information that I may learn from. The hospital team is great, but I am now at a point when I need to hear it from someone who is experiecing or has experienced this advanced stage of keratoconus.

I live in teh Leicestershire area if that helps.

Will

[sarah marsh]

FOR WILLIS
hi and welcome to the group,! you will find this site a god send and use it ! we all understand.
i have had an cornea transplant in August last year so feel free to ask anything !
you can email me on starlight7723366@aol.com
sarah

[sarah marsh]

MORAN
feel free to ask anything also !
email me if you want on starlight7723366@aol.com
sarah

[De88ie]

Hello Everyone, my name is Debbie and despite knowing i have KC for about 18 months now, i really didnt know anything about it until i came across this site last week. It has taken me this long to get over the shock! The most shocking thing being how little i have been told by the people who i have been to see whilst receiving treatment. you wouldnt believe the things i didnt know.
I moved last year and as a result have not been to the hospital for a check up in twelve months and also have not been wearing my lenses. After reading this site last week i have been to my doctors and now have an appointment for august.

[Ram]

Hi i am Ram and i am having "Keratoconus" .Can any body help me in how t go about treating it..

[Paul Bines]

Will,
I've had THREE Corneal grafts - the first about 12 years ago, and the last two in the last 8 months. If I can help please lmk!
Au Res.,
Paul

[Llinos]

HI
I have been diagnosed now for 18 years and am having 1 last chance with some new lenses, been 1 new pair every 3/4 weeks for 12 months, then I have to concider a transplant
I just found the site and wanted to say hi

[Jane]

I am the mother of a fiteen year old who has just been diagnosed with this eye problem. Although initially shocked by the news, we are trying to find out how how it is likely to affect his life, and possible career choices.

[WILLIS]

FOR PAUL & SARAH,

Thank you for your responses. sarah i'll mail you.

Paul, Three grafts...I do not feel it appropriate for me to ask for details, but can you share how long it was after the operation that your able to resume some regular routines? Did you experince any difficulties drectly after the op? Are there any general self care tips you have?

Will