KC and uveitis

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

lindamargaret
Contributor
Contributor
Posts: 10
Joined: Fri 14 Mar 2008 2:19 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

KC and uveitis

Postby lindamargaret » Sat 29 Mar 2008 9:56 am

hi
i am 50 and have KC for 30 years, it has been stable for all that time, but always a struggle with my contacs as i suffer from severe allergys that affect my eyes daily.
15 months ago i got uveitis in my left eye,since then it has been more difficult to fit a lens and my vision seems worse in that eye.
i have also had an ulcer on that eye witch has left a scar,but that has only been a problem latly although i had it 30 years ago.
anyone who has got same problems, can you let me know how you have got on with both conditions
lindamargaret

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: KC and uveitis

Postby Andrew MacLean » Mon 31 Mar 2008 8:39 am

lindamargaret

Welcome to the forum

I am sorry to learn that you have uveitis as well as keratoconus, and do know that this can make wearing contact lenses impossible. What has your ophthalmologist suggested as a way forward?

All the best

Andrew
Andrew MacLean

lindamargaret
Contributor
Contributor
Posts: 10
Joined: Fri 14 Mar 2008 2:19 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: KC and uveitis

Postby lindamargaret » Mon 31 Mar 2008 9:06 pm

Andrew MacLean wrote:lindamargaret

Welcome to the forum

I am sorry to learn that you have uveitis as well as keratoconus, and do know that this can make wearing contact lenses impossible. What has your ophthalmologist suggested as a way forward?

All the best

Andrew

hi andrew
i can still wear my lenses although it has been very difficult to get a good fit in my left eye.
linda margaret

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: KC and uveitis

Postby Andrew MacLean » Wed 02 Apr 2008 6:28 am

The difficulties of fitting KC eyes with contact lenses are part of the experience we share! actually, just knowing that other people had the same problems I did was one of the things that began to make it possible for me to cope with KC, the troubles of lenses that popped out or slid round to the back of my eye and the general discomfort of lenses irritating my eyelids, or the agony that accompanied the intrusion of a tiny speck of dust into my eye alongside my lens.

What sorts of lens have they tried? I went through almost every sort of RGP corneal, including rose k, before they started to try soft, hybrid and piggy back lenses in my eyes. In the end they gave me a scleral and of all the lenses I ever had, that was my favorite.

All the best.

Andrew
Andrew MacLean

User avatar
robcm
Contributor
Contributor
Posts: 20
Joined: Sun 06 Apr 2008 10:19 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London

Re: KC and uveitis

Postby robcm » Sun 06 Apr 2008 10:33 pm

I had uveitis once in each eye when wearing sofperm lenses too much. each episode meant about a month of steroid drops and atropine and an inability to wear a lens until it had entirely cleared. there seems to be no clear medical link between KC and uveitis. since i moved on to scleral lenses the uveitis has not returned. there seemed to problem with scleral lenses and i never regretted moving on to them. hope you find a solution, rob

lindamargaret
Contributor
Contributor
Posts: 10
Joined: Fri 14 Mar 2008 2:19 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: KC and uveitis

Postby lindamargaret » Tue 20 May 2008 2:48 pm

Andrew MacLean wrote:The difficulties of fitting KC eyes with contact lenses are part of the experience we share! actually, just knowing that other people had the same problems I did was one of the things that began to make it possible for me to cope with KC, the troubles of lenses that popped out or slid round to the back of my eye and the general discomfort of lenses irritating my eyelids, or the agony that accompanied the intrusion of a tiny speck of dust into my eye alongside my lens.

What sorts of lens have they tried? I went through almost every sort of RGP corneal, including rose k, before they started to try soft, hybrid and piggy back lenses in my eyes. In the end they gave me a scleral and of all the lenses I ever had, that was my favorite.

All the best.

Andrew

hi andrew
i have been back to hospital and optitians was offered intacs in my left eye but as i have good vision in my right eye still i will stick with lenses for now, so are going to have some new one fitted
linda

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: KC and uveitis

Postby Andrew MacLean » Tue 20 May 2008 3:29 pm

Linda

All the best with your new lenses. Let us know how you get on.

Andrew
Andrew MacLean

lindamargaret
Contributor
Contributor
Posts: 10
Joined: Fri 14 Mar 2008 2:19 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses

Re: KC and uveitis

Postby lindamargaret » Sun 31 Aug 2008 3:21 pm

i am having another bad attack of uvitis in my left eye again, so cant wear my lens at all

i feel really fed up with it, i just hope it doesnt make the KC worse again this time.
linda

private104

Re: KC and uveitis

Postby private104 » Sun 31 Aug 2008 3:48 pm

Hey there. Take care. It must be ghastly to have both KC and Uevitis. Really on your team here; just sorry to be so helpless.

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: KC and uveitis

Postby Andrew MacLean » Sun 31 Aug 2008 4:30 pm

lindamargaret

I guess we all agree with Private104. All the best; and do please stay in touch.

Andrew
Andrew MacLean


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 66 guests