Quicktopic posts: Jan 2003

[Clare Feary]

Hi Sue
I have been to the opticians today and picked up my new lenses. I cannot believe how much more I can see with the contacts and also how comfy they are. It just goes to show that it only takes one good optician to make you feel more optimistic about KC and in turn make life a little bit easier. Hopefully these will be ok for now and so reduce the need for a graft.
I have a question for anyone in general. I have heard that this is an inherited condition. What are the chances of my two boys getting this condition and also do I need to make sure that they have early checkups. The eldest is four and the youngest is under six months so they are a bit young for trips to the optician but if they are going to have KC then I want them to be prepared for what could happen.
Thanks everyone!!!!!

[Sue Ingram]

Hi Bob (1297), Sorry to hear that you are having problems recently. Sounds like you have the same thing that happened to me after wearing rgp corneal lenses for over 20 years 24/7 - my eyes just did not want to do it anymore!! However, I now have scleral lenses which are 100% more comfortable than rgp corneals, can't fall out and no dust can get behind them; this has therefore kept me off the operating table - I was pretty scared at the prospect too. I have been wearing sclerals now for 3-4 years.

There is info on scleral lenses on the KC Group Website http://www.keratoconus-group.org.uk but if you would like more details, have any questions etc, please do not hesitate to contact me on sue.ingram@virgin.net.

There are many people who have successful corneal transplants, although they do usually still have to wear some sort of lens afterwards, but I think it is worth ensuring that you have tried all the other options available before taking the plunge - you never know, there might be something that works for you. Take care and let us know how you get on. SUE

[Sue Ingram]

Hi Clare (1303), What excellent news! So glad you are pleased with your new lenses. Yes, you are absolutely right - the key thing about managing KC is to find an extremely patient optician who has expertise in fitting lenses on the wierd and wonderful eyes of us KCers.

With regard to the inheritence factor; I believe that KC can run in families but it often tends to be amongst siblings rather than from one generation to the next - although obviously this can happen too. You will find that most people with KC do not have anyone in their family with it and cannot seem to find anyone in previous generations who had it; it seems to be very sporadically inherited. I believe there is a research study taking place to look into the genetics of KC - think there is info on the KC website http://www.keratoconus-group.org.uk.

Not sure whether anyone at present can tell you the likelihood of your children actually having KC in the future. Sorry to be so vague; is there anyone else who knows anything further??

Good luck with the new lenses, Clare. Take care. SUE

[Tony Stigle]

There is info on the Genetics of KC on this groups website at.. (Again)
http://www.keratoconus-group.org.uk/
Under the title
Contributions about Keratoconus from experts.

Tony

[Clare Feary]

Thanks Tony and Sue for your comments!!!

[Tony Stigle]

cheratocono (KC Italy)

[Dawn]

Clare Feary

My daugher is 5, when she was 3 she started having yearly check up's at the local hospital as I mentioned to my Health Visitor that I had KC.

She has shown no signs so far and probably never will but it gives me peace of mind to know that she is checked and ok, and if she does get it we can deal with it. She actually enjoys going because she gets her eyes tested like mummy!

If you are concerned speak to your Health Visitor and I am sure they will be able to arrange a check up for your children when they reach a suitable age.

Regards
Dawn

[Bob Hillcock]

Hi Thanks for the support in particular thanks to Sue and Patricia, I appreciate you taking the time.I certainly feel more at ease now,I think it was too much to to take in at first.Iam still waiting to see the surgeon and will let you know the outcome.
In the meantime does anyone know the lenght of time Iam likely to be off work for each eye and also how long before each eye is operated on.
Thanks again everyone
Bob

[Patricia Ferrand]

I was out of work for 4 weeks. I could have gone back after 3 weeks but took a little vacation. My doctor suggest to operate on my other eye within 6 month to a year. I decided to wait a year.
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[ziggy]

Hi

I am a new sufferer of this condition. I have been a contact lens to wear..currently it affects one eye only.

Can some one tell me...how they first came across the disorder and how they coped..


thanks,,D.."