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Quicktopic posts: Dec 2002
Moderators: Anne Klepacz, John Smith, Sweet
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Laura
Firstly I must say I like the xmas layout of the front page. Secondly after months of waiting I'm finally going to see someone about my KC!! I just wondered could anyone give me any info as to how my first consultation might go. I know I'm goin to see an optician for the first hour then I have a two hour appointment with the specialist, but I aren't really sure what to expect. Its not till February so I've plenty of time to find out. I guess I'm just a little nervous. Also I get very itchy sensitive eyes will this affect me wearing contacts? Any feedback would be gratefully received. Hope you can help. Laura
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umbilica@umbilical.demon.
RUPY said:
We reached Moorfields around 2.20am, the doctor covering A&E was VERY rude to my brother.....
Luckily it wasn't anything serious but this bad expereince has
made my brother think twice about going to A&E. I was just
wondering if this has happened to anyone else? And what I can do to make sure it does not happen to anyone else.
Yes, it has happened to me - though not at Moorfields, nor about anything to do with eyes.
I've only been to Moorfields A&E once, where they were polite,
if anything a bit distant. When I next went to my regular
appointment, the person I saw there a) said that what I'd been
told in A&E was wrong, and that A&E were always doing that; and
b) didn't have my notes, apparently as they'd not come back from their urgent diversion over to A&E when I went there.
As regards what to do to make sure it doesn't happen again....
let me know when you find out! You could try writing to the
Chief Executive (of Moorfields) or asking the KC group reps to
take it up - as a general issue - at one of their meetings with MEH, I suppose.
The problems I've had with Moorfields is the ill-manners of one
of the medical social workers - I even found myself in the
intensely embarrassing position of having to apologise for
Moorfields for her bad manners to Leytonstone Job Centre, when
she rang up my local DEA service and was apparently very rude to them. I made representations to Moorfields about this, but -
need I say? - haven't had the smidgeon of an apology yet.
I think the problem with rudeness is systemic to the medics of
this world, who habitually treat everyone as idiots (probably
because they expect to be brighter than everyone else around,
which the entry requirements for medical schools probably mean
they often are - though not always!); ditto with the social
workers (who aren't). In the case of medics, modern medical
training and the AIDS pandemic are changing things.
[It's also possible that improved NHS funding, so there is not
the perennial problem of too few staff trying to do too much
with too few resources, and hence less stress and improved
morale, may improve attitudes - but no doubt Tony S. will ban
any such suggestion as being a highly "political" posting!]
Rosemary
--
Rosemary F. Johnson
We reached Moorfields around 2.20am, the doctor covering A&E was VERY rude to my brother.....
Luckily it wasn't anything serious but this bad expereince has
made my brother think twice about going to A&E. I was just
wondering if this has happened to anyone else? And what I can do to make sure it does not happen to anyone else.
Yes, it has happened to me - though not at Moorfields, nor about anything to do with eyes.
I've only been to Moorfields A&E once, where they were polite,
if anything a bit distant. When I next went to my regular
appointment, the person I saw there a) said that what I'd been
told in A&E was wrong, and that A&E were always doing that; and
b) didn't have my notes, apparently as they'd not come back from their urgent diversion over to A&E when I went there.
As regards what to do to make sure it doesn't happen again....
let me know when you find out! You could try writing to the
Chief Executive (of Moorfields) or asking the KC group reps to
take it up - as a general issue - at one of their meetings with MEH, I suppose.
The problems I've had with Moorfields is the ill-manners of one
of the medical social workers - I even found myself in the
intensely embarrassing position of having to apologise for
Moorfields for her bad manners to Leytonstone Job Centre, when
she rang up my local DEA service and was apparently very rude to them. I made representations to Moorfields about this, but -
need I say? - haven't had the smidgeon of an apology yet.
I think the problem with rudeness is systemic to the medics of
this world, who habitually treat everyone as idiots (probably
because they expect to be brighter than everyone else around,
which the entry requirements for medical schools probably mean
they often are - though not always!); ditto with the social
workers (who aren't). In the case of medics, modern medical
training and the AIDS pandemic are changing things.
[It's also possible that improved NHS funding, so there is not
the perennial problem of too few staff trying to do too much
with too few resources, and hence less stress and improved
morale, may improve attitudes - but no doubt Tony S. will ban
any such suggestion as being a highly "political" posting!]
Rosemary
--
Rosemary F. Johnson
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Sue Ingram
Dear All, I agree with Laura - lovely Christmas trees, Tony! Check out the KC Group Website at http://www.keratoconus-group.org.uk. SUE
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Amanda Stigle
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KIM
Hello everyone, I have finally been given a gpl which I have been wearing for nearly two weeks but am having great trouble getting the thing out of my eye, I am only wearing the lens for up to four hours at a time until I am used to it but it can take me anything up to 30 minutes to get the stubborn thing out, the optician has shown me one method of opening my eye as wide as possible, pulling it taught from the outside corner and blinking but this really isnt working for me, does anyone have any tips or suggestions or is this just something I will need to practise at, meanwhile grinning and bearing it! any reply's will be much appreciated, Thankyou all, KIM :-)
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Clare Feary
Dear All,
Thanks Sue and Roy for your advice on lenses. I am due to see the consultant on 23rd Dec to see what lenses are suitable. Although I have decided that after my experiences with RGP lenses (Ihad to go to A&E to have one removed) I really don not want to try those ones again but am going with an open mind.
Could someone explain what scleral lenses are? Reading over past messages I get the impression that alot of people with KC use them. But I do not have a clue what they are.
I think that I just what to get as much info as poss before I go to see the consultant. Although since finding this discussion page and the web site about a month ago I can honestly say that for the first time since being diagnosed with KC (about 15 years) I have discovered more info and put my mind at rest. Its nice to know that people who are going through the same are just a click away!!
Thanks Sue and Roy for your advice on lenses. I am due to see the consultant on 23rd Dec to see what lenses are suitable. Although I have decided that after my experiences with RGP lenses (Ihad to go to A&E to have one removed) I really don not want to try those ones again but am going with an open mind.
Could someone explain what scleral lenses are? Reading over past messages I get the impression that alot of people with KC use them. But I do not have a clue what they are.
I think that I just what to get as much info as poss before I go to see the consultant. Although since finding this discussion page and the web site about a month ago I can honestly say that for the first time since being diagnosed with KC (about 15 years) I have discovered more info and put my mind at rest. Its nice to know that people who are going through the same are just a click away!!
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Sue Ingram
Hi Clare, There is info re scleral lenses on the KC Group Website, http://www.keratoconus-group.org.uk, however, they are lenses which cover your whole eye so they are alot larger than rgp corneal lenses. You have to fill them up with a physiological saline called Amidose and then insert them into your eye. They are more comfortable than corneal lenses, however, sometimes the vision is not as good as with corneal lenses (I need to wear glasses with my sclerals in order to bring my vision up to scratch). They do not fall out and you cannot get any dust behind them! They do look a bit scary to start with (especially if you are used to dealing with little tiny corneals!), but you soon get used to this and it all becomes quite normal.
Ask your optician about all the options available to you; don't give up on rgp corneals just yet - I believe there are different types these days and you might find one of these is more suitable for you this time round. Trying to get any lens out when you first start wearing them can be a nightmare but with a bit of patience, one day you find you suddenly get the knack and you wonder what all the fuss was about! Take care and let us know how you get on. Good luck. SUE
Ask your optician about all the options available to you; don't give up on rgp corneals just yet - I believe there are different types these days and you might find one of these is more suitable for you this time round. Trying to get any lens out when you first start wearing them can be a nightmare but with a bit of patience, one day you find you suddenly get the knack and you wonder what all the fuss was about! Take care and let us know how you get on. Good luck. SUE
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John Smith
Hello Kim,
The blinking technique is a good one, and certainly works for me.
1. Go wide-eyed in both eyes (much easier than just trying to open one eye wide)
(for the left eye)
2. Using your left hand, pull the "ear-side" corner of the eye towards the ear.
3. Look at the tip of your nose.
4. Hold your right hand in front of the left eye. These things have the ability to ping off into oblivion!
5. blink.
(repeat for right eye, but use other hands!)
Sometimes the blink doesn't remove the lens, but leaves it dangling from the lower lid.
Keep on trying. It's a great technique, and is VERY quick once you get used to it.
John
The blinking technique is a good one, and certainly works for me.
1. Go wide-eyed in both eyes (much easier than just trying to open one eye wide)
(for the left eye)
2. Using your left hand, pull the "ear-side" corner of the eye towards the ear.
3. Look at the tip of your nose.
4. Hold your right hand in front of the left eye. These things have the ability to ping off into oblivion!
5. blink.
(repeat for right eye, but use other hands!)
Sometimes the blink doesn't remove the lens, but leaves it dangling from the lower lid.
Keep on trying. It's a great technique, and is VERY quick once you get used to it.
John
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