C3R Warning Link

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
Matthew_
Champion
Champion
Posts: 814
Joined: Thu 13 Jul 2006 3:13 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Gallafrey

Postby Matthew_ » Wed 27 Jun 2007 1:20 pm

I really admire the passion you all have not to mention the great deal of knowledge on this and other subjects. Without it this website wouldn't work. So you are all to be congratulated on that.
I love to see people passionate about something, its a refreshing change! We just have to be that little bit careful that in helping others we do not bash people with a different view who are also trying to help others.
There is no question of 'bugging', everyone's view is very welcome.
Image

Get a life...get a dog!

User avatar
tommy.dean
Regular contributor
Regular contributor
Posts: 111
Joined: Tue 10 Jan 2006 11:13 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and good vision
Location: Blackburn
Contact:

Postby tommy.dean » Thu 28 Jun 2007 2:13 pm

hari, what a good post mate, your spot on with what your saying about professionals promoting different treatments for their own personal gain, also what you say about living with a transplant, if everybody who has had one for keratoconus was completely honest, i'm sure they would say they'd rather have had a treatment which was bespoke to our disease. I don't agree with the american doc saying that intacts are a better option than c3r for the solving the "progression issue" of our disease how could they be c3r directly mutates the weakened collagen structure by strengthening it, it's the only pro-active treatment i'm aware of, where as intacts are reacting to the break down in the bowman's layer by adding the little pieces don't get me wrong tho i think intacts are brilliant, my dream would be to wake up 5 years ago and have c3r preformed then intacts inserted instead of having two transplants, I just want other KC'ers to have all the treatments made available to them so that their keratoconus doesn't affect them in their life's because it shouldn't.
tom


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