Hello Catherine, I just wantesd to let you know that I am a KC sufferer, also luckily very mildly and live in Oundle. So if you want a chat or a moan please feel free to contact me. My E-Mail is Jacqueline@cheethamj.freeserve.co.uk Hope to hear from you soon.
I was once told by an optician that by not including enough fat in my diet was also a cause for uncomfortable lenses. Anyone else heard this one?
Quicktopic posts: Dec 2001
Moderators: Anne Klepacz, John Smith, Sweet
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carole morgan
it has been a while since I last posted a message as there has been a lot happening.
My employment has been terminated due to my inability to fulfil my contract as I cannot see well
I visited Moorfield Eye hospital on 3rd December as locally in Cardiff they did not seem to be making any headway in improving or maximising my visual potential.
Although the graft I had in my left eye(May 2000) appeared successful vision cannot be achieved and they are also at a loss as to why
As my vision is poor in my left eye 5 lines of a chart and lenses cannot be tolerated for longer than a few hours at a time I am not sure what to expect
I cannot drive or read easily and wondered if there s any mileage in pressing to be registered partially sighted+
Is anyone else aware of benefits or indeed in same situation
My employment has been terminated due to my inability to fulfil my contract as I cannot see well
I visited Moorfield Eye hospital on 3rd December as locally in Cardiff they did not seem to be making any headway in improving or maximising my visual potential.
Although the graft I had in my left eye(May 2000) appeared successful vision cannot be achieved and they are also at a loss as to why
As my vision is poor in my left eye 5 lines of a chart and lenses cannot be tolerated for longer than a few hours at a time I am not sure what to expect
I cannot drive or read easily and wondered if there s any mileage in pressing to be registered partially sighted+
Is anyone else aware of benefits or indeed in same situation
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Janet Manning
Dear Carole,
I too had to leave my job after grafts and am currently retraining to do something I can manage. Since I got sclerals frm Moorfields my sight is much improved.
One of my main concerns post graft was that I could no longer read in bed/ without lenses. I discovered Calibre, a charity which supplies unabridged taped books, for blind, partially sighted and print impaired people. It's a lending library, post free. It totally changed my life, particularly at times when I had no lenses.
Their number is 01296 432339. Membership is free, but it costs them about £40 per year per member. They rely solely on donations, so are glad of any help. It costs about £250 to record and produce a new book. Books are read by professionals and there are more than 5,000 titles to choose from.
Hope this info might help a little in the meantime. Do hope Moorfields can help you.
Janet Manning
I too had to leave my job after grafts and am currently retraining to do something I can manage. Since I got sclerals frm Moorfields my sight is much improved.
One of my main concerns post graft was that I could no longer read in bed/ without lenses. I discovered Calibre, a charity which supplies unabridged taped books, for blind, partially sighted and print impaired people. It's a lending library, post free. It totally changed my life, particularly at times when I had no lenses.
Their number is 01296 432339. Membership is free, but it costs them about £40 per year per member. They rely solely on donations, so are glad of any help. It costs about £250 to record and produce a new book. Books are read by professionals and there are more than 5,000 titles to choose from.
Hope this info might help a little in the meantime. Do hope Moorfields can help you.
Janet Manning
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Alex Perkins
Merry Christmas everyone!
It's now six months since I had my second graft done using the new procedures at the eye clinic in East Grinstead.
I am now back at work and have excelent unaided vision!
I simply cannot believe that I spent so many years as a KC sufferer trapped behind uncomfortable contact lenses.
I no longer have KC and my recovery has been remarkable.
I can only recommend that you all get down to see Mr Daya at the Queen Victoria Hospital. He has changed my outlook totally and improved my quality of life imeasurably. I only wish I had had the grafts sooner!
Good Luck everyone.
And A happy new year!!!
Alex
alex@perkins24.fsnet.co.uk
It's now six months since I had my second graft done using the new procedures at the eye clinic in East Grinstead.
I am now back at work and have excelent unaided vision!
I simply cannot believe that I spent so many years as a KC sufferer trapped behind uncomfortable contact lenses.
I no longer have KC and my recovery has been remarkable.
I can only recommend that you all get down to see Mr Daya at the Queen Victoria Hospital. He has changed my outlook totally and improved my quality of life imeasurably. I only wish I had had the grafts sooner!
Good Luck everyone.
And A happy new year!!!
Alex
alex@perkins24.fsnet.co.uk
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Sue Ingram
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helen williams
Posted a message a few weeks back about my allergies and KC. Eyes feel a lot better and saw contact lens specialist who changed my lens solution. However, I can still not wear them - my eyes water all the time and are still blurred - my vision is better when I take them out - which is not much, believe you me!!! Has anybody suffered this at all? I have had an allergy test which will take a month for result and seeing eye specialist this afternoon - would appreciate any comments about how I can get to wear the lenses - I try every day. I am still off sick from work as I cannot do my job, on computer for 8 hours a day, and am slowing getting more depressed.
Happy Christmas to you all!
Happy Christmas to you all!
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Amanda Stigle
Hi Helen
Sorry to hear that things have not improved for you.If you have tried different solutions with no improvement, it may be a reaction to the lens itself. What type of lenses do you wear? There are a many types on the market now.It is even possible to wear a soft lens under another lens ie a scleral lens. But, this is usually a last resort as it is very tricky to insert!
Basically you need to speak to an optomatrist about the otions available, I am sure there are alternatives that would help you.Which part of the country are you in?
GOOD LUCK-AND LET US KNOW HOW YOU GET ON.
Sorry to hear that things have not improved for you.If you have tried different solutions with no improvement, it may be a reaction to the lens itself. What type of lenses do you wear? There are a many types on the market now.It is even possible to wear a soft lens under another lens ie a scleral lens. But, this is usually a last resort as it is very tricky to insert!
Basically you need to speak to an optomatrist about the otions available, I am sure there are alternatives that would help you.Which part of the country are you in?
GOOD LUCK-AND LET US KNOW HOW YOU GET ON.
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helen williams
Amanda,
Thank you for your kind words. I saw eye specialist yesterday who said there are other options with contact lenses which we will try but will more than likely have to have a graft in my left eye. I was very shocked and quite emotional but I suppose I will get there. I live in Shrewsbury, Shropshire, so see specialist at my local hospital but the contact lens specialist is from Birmingham - he seems to be very good. This site is a godsend as it is wonderful to talk to people who can understand. Thank you again!!
Thank you for your kind words. I saw eye specialist yesterday who said there are other options with contact lenses which we will try but will more than likely have to have a graft in my left eye. I was very shocked and quite emotional but I suppose I will get there. I live in Shrewsbury, Shropshire, so see specialist at my local hospital but the contact lens specialist is from Birmingham - he seems to be very good. This site is a godsend as it is wonderful to talk to people who can understand. Thank you again!!
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helen williams
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Jacqueline Cheetham
Firstly Merry Christmas and Happy New Year to everyone..
Can anyone help me. For the past 4 or 5 months I have been suffering from the most incredible headaches. The pain is either in one eye or the other, or both. I'm not a headache sufferer normally. The Doctors really don't have much idea. I have to have some blood tests tomorrow. I wondered if any one else had problems like this, then at least I could live with it.
Can anyone help me. For the past 4 or 5 months I have been suffering from the most incredible headaches. The pain is either in one eye or the other, or both. I'm not a headache sufferer normally. The Doctors really don't have much idea. I have to have some blood tests tomorrow. I wondered if any one else had problems like this, then at least I could live with it.
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