A KC sufferer FROM VENEZUELA

[egregor]

Greetings to all from venezuela, I been a KC sufferer for around 10 years ( i am 30 years old)..my story is that my worst KC (left eye) had been corrected for year succesfully by using SoftPerms, I coud never use RGP or hard lenses I guess since I was a soft lens user since a child and couldnt stand a hard or RGP. The softperms I mainly use them to go to the beach, driva at night, sports. because I couldnt wear them for more than 6 hours or so. And on daily basis I used my normal prescription glasses wich of course gave me awful vision (the right could get some good correction but the left eye is useful) but I have live like this for a long time and I got used to that life...but know things have gotten worse, my eyes are hurting like hell after 2 hours of softperm use but i still need them to wear them to play baseball, see at night, etc so I just suffer the hours and that is it, the worst pain is in the beach!...also I developed a big scar on the left eye and my vision seems to be worsening, my right eye have a KC but very mild one. My longtime opthalmologist is an anti-transplant guy but since my vision is worsening and havent found a MIRACLE SOFT TYPE OF CONTACT LENS (HELP IF YOU KNOW SOMETHING LIKE THE SOFTPERM THAT COULD WEAR LONGER!!! ANY NEW INVENTION, ILL FLY TO WHEREVER COUNTRY NEEDED)....i went to a cornea specialist and he told me that i should have had the intervention about 1 year ago, that i need a keratoplasty con my Left eye and an Intact later for my right one....I havent decide it , and still thinking about it!...what do you guys think?...He also said that there is a good procedure less invasive that is DSEK or DLEK how good is that?-......

[jayuk]

EG

Welcome to the forum!!

Having a transplant or continuing down the Lens route is a decision only you can make......as to be honest only you can determine if you can continue with lenses.

What I will say is that you may want to check out Scleral Lenses and also Piggybacking lenses....as these MAY help/aid you in getting better vision; and keeping you off the transplant table!

DLEK et al are all relatively new transplant procedures....however they only transplant the back layer of the corneal (Endothelial) and its generaly used for those suffering from Fuchs Syndrome...

Another procedure which he MAY have been referring to was DALK which is another procedure which only removes the primary layers of the cornea and replace them..

HTH

Jay

[egregor]

DLEK & DSEK Sutureless Corneal Transplant Surgery Techniques

http://www.dlek-dsek.com/index.htm

[John Smith]

Egregor,

Jayuk is correct - look at the web page you linked to... it's talking about Endothelial keratoplasty - the transplanting of just the back layer of the cornea.

In keratoconus though, it's the front and middle layers of the cornea which have a problem; indeed, the latest techniques (DALK) will replace everything EXCEPT the rear endothelium.

Alas, DLEK is not a cure-all for those with Keratoconus.

[Sallyuk]

Dear Egregor,

Welcome to the site .

I also wear soft lenses as I cannot tolerate the RGP's. Along with my lenses I have to wear my glasses or my vision is severely limited. My optometrist provides me with what I think are Soft K lenses by Acuity which I am easily able to tolerate for up to 16 hours a day. It might be worth checking these out as they are very comfortable (most of the time). The address of the company is:
Acuity Contact Lenses
Plumpton Rd, Hoddesdon, HERTFORDSHIRE, EN11 0LB
United Kingdom
Tel. +441992 445035
I hope this is of help, good luck in your search.

Sally