The BMA's view!

[Andrew MacLean]

The problem is that these books are journalistic rather than schollarly. I have never read anything in one of these 'general readership' books that was anything close to accurate about issues on which I had any specialist knowledge. The assumption that they got everything else right never bears close examination, either.

Oh well. Sombody makes money on the oublication and everybody else is nearly well informed about lots of things.

Andrew

[新洲å°Â]

Speaking of books, can anyone recommend me any reliable books on KC? I'm still quite new to KC so I try to find out as much as possible on it.

Information on KC, even in public libraries, is quite rare over here. (might be even be rarer than KC itself)

[Andrew MacLean]

mattsaze

Good to know we have a friend in such exulted places!

[jayuk]

Conner

Very hard to actually get current books on KC.....the best place for info on KC, is in this case the Internet and this site......whilst that may sound corny.....it really is the truth....

J

[GarethB]

Much of the groups info can be downloaded from this site.

[Prue B]

Actually, this site gives a balanced view. The members seem to realise and embrace the fact that KC is a different journey for each of us. The highs and lows vary but the support, always so freely given helps, because no one but us, knows what we go through.

[新洲å°Â]

Very hard to actually get current books on KC.....the best place for info on KC, is in this case the Internet and this site......whilst that may sound corny.....it really is the truth....

Yeah, I totally agree.. So far, I have only came across 2 comprehensive sources of information on the Internet. One is from this website and the other is from Wikipedia (article is entitled "Keratoconus"). If I remembered correctly, the compiler of that article is looking for some opto doctors to verify the report. Great chance to weed out all those misleading information.

[新洲å°Â]

http://en.wikipedia.org/wiki/Keratoconus

I accessed the site a month ago and they were looking for optos then. But, when I accessed the site just now, I could't find the related links.

But, nevertheless, they still encourage people from the public to feedback to them.

[Carol Vines]

the entry reads how i was told of KC when i was diagnosed 25 years ago. i was told i had to wear hard contact lenses or go blind, talk about frightening a 14 year old into wearing them no matter how painful

the lenses were made to fit "tight" to the cornea to stop KC progressing any further and my mum was heartbroken to be told all her children,grandchildren etc would develop KC.

10 years on and my first visit to moorfields their experience of KC treatment had vastly improved. while they felt family members may develop KC they assured me it was not a reason to not have children, nor a reason for my siblings to be concerned. also the "tight" lens fit theory had changed, realising that if KC is going to progress then the lens fit will not stop it - so i was fitted with lenses that were actually more comfortable to wear.

i personally find this group the best place to ask questions on KC, such a vast amount of experiences and you never feel alone with the condition, medical books just don't have enough space to explain our sort of condition.

i shall now go and explain to my oh that the reason i require lots of chocolate/sweet food is because i have KC

[GarethB]

Carol,

Next cake and chocolate will be put forward as a cause of KC