New member with a few questions

General forum for the UK Keratoconus and self-help group members.

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Andrew MacLean
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Postby Andrew MacLean » Tue 21 Mar 2006 7:56 pm

SebastianRys

Sorry to hear your news, but glad to welcome you to the forum.

Andrew
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rosemary johnson
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Postby rosemary johnson » Tue 21 Mar 2006 8:08 pm

Hallo Sebastian and welcome to the foru.
I well understand your concerns, and wish you luck.
Are you allowed to fly in contacts these days, without having to have glasses handy to put on if a lens pops out? - if so, that's an improvement from KC-er's poit of view.
Hope you get hte lenses sorted out soon.
Rosmeary

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GarethB
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Postby GarethB » Tue 21 Mar 2006 9:44 pm

Sebastian,

If C3R halts the progression of KC, your existing lens may well be fine. If it regresses the KC which it has in many cases, never cured it, you may well be able to revrt to glasses and avoid the lens issues.

Unfortunatly the only way to know is to have the treatment, impossible to make anysort of prediction with KC.
Gareth

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Postby SebastianRys » Wed 22 Mar 2006 3:54 am

Ok so I went to my eye doctor and he said the fittment is good, but he did order a new pair for me that has a bigger diamater(1ml bigger is what I think he said). Does anyone know what advantages does a bigger diamater have in a RGP lens ? also here is the link to doctor I see.

http://www.vision-institute.com/director/hersh.html

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Sweet
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Postby Sweet » Wed 22 Mar 2006 3:58 am

Gee you are up early! LOL!!

It should make a better fit according to the shape of your cornea. Being slightly bigger will hopefully sit nicer on a steep cone and your eyelids would be able to pass over it better. Also this is sometimes used to cover any dry areas or sore spots so that they aren't constantly rubbed by blinking. Mine is slightly bigger for this reason so that the two dry areas don't get rubbed so often.

Hoping it works out for you!

Sweet X x X
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Andrew MacLean
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Postby Andrew MacLean » Wed 22 Mar 2006 7:45 am

Sebastian

I guess that it probably does. But this is no different from the experience of people with KC who have never had C3R. Our cones progress, so that we need constantly to have lenses re-fitted.

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Last edited by Andrew MacLean on Wed 22 Mar 2006 10:05 am, edited 1 time in total.
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GarethB
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Postby GarethB » Wed 22 Mar 2006 8:36 am

Sebastian,

The larger diameter may also mean the rim of the lens now sits under the eye lid margins, so when you blink the lids just slide over rather than pushing the lens before sliding over the lens.

Might reduce the movement somewhat. I know many optoms refer to fit as how the lens sits over the cone and touches the cornea. Others take fit to mean this and how the eye lids move over the lens.

What looks good at first fitting may need tweeking at a check up as in your case. Keep the cone fit the same, but opush the rim out a bit further.
Gareth

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Postby jayuk » Wed 22 Mar 2006 10:36 am

Seb

Gareth and Sweet provided a very good summary of the larger diameter lens!...Comfort will more than likely be better; however I would suspect that you may need a few referals back to the fitter....as one issue with the larger diameter; and even Intra-lymbal lenses; is that if the fitting is not correct; the bearing on the central parts of the cone can be excessive over periods of time (hours of wear) and may give a dull pain......however...as always; if you are with a experienced CL fitter....these issues may no longer be issues :-)

J
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

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Andrew MacLean
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Postby Andrew MacLean » Wed 22 Mar 2006 10:43 am

A question: Is there a difference in wear time between larger and smaller lenses?
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GarethB
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Postby GarethB » Wed 22 Mar 2006 10:46 am

My left eye has a larger lens and the wear time is much higher than the right with the smaller lens :D
Gareth


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