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General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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DJ Smak
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Location: Canada

Postby DJ Smak » Tue 14 Mar 2006 12:00 am

Yeah, I've never had that test done, he hasn't even mentioned it. I might ask him to send me out of town to see the specialists for more opinions. The thing is, here, the doctors take offense if you know what you're talking about, that is if you talk to them with knowledge of what you have or you ask too many questions. My dad came with me today and he was asking the doctor questions and he seemed annoyed. Either way, I am usually persistant when it comes to anything medical, even if im put on medication, i will research it online obsessively to the point i feel i have enough information o set my mind at ease.

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Andrew MacLean
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Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Tue 14 Mar 2006 7:25 am

DJ

Over here, I\m not so sure that the doctors take offense but they can be a bit surprised when a patient engages them in intelligent conversation about his condition. but once their surprise os over they do tend to engage in a sensible conversation with the patient.

All the best with your research

Andrew
Andrew MacLean

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DJ Smak
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Joined: Fri 14 Oct 2005 11:36 pm
Location: Canada

Postby DJ Smak » Wed 15 Mar 2006 11:16 pm

I hope when i go for my next refit that my lenses fit good and i can get on. Still wondering though if scleral lenses are supposed to be completly clear as in no tinge? Its kind of awkward handling them when you can hardly see them and it was a bit easier when i had my old corneal RGP's because they had a blue tinge to them. I'm thinking the blue tinge would show up on the scleras of my eyes though. What do ya think?

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Andrew MacLean
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Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Thu 16 Mar 2006 8:46 am

My RGP corneal lenses always had a tint, but my scleral never did. I did not think to question it, but I'm glad you did. Why not ask your optometrist? Let us know the answer.

Maybe they ust think that Sclerals are so huge that if you can't see them you can feel about until you find them :?

Andrew
Andrew MacLean

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chrism
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Posts: 47
Joined: Sun 05 Feb 2006 5:25 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: Massachusetts (USA)

Postby chrism » Thu 16 Mar 2006 9:12 pm


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GarethB
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Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Thu 16 Mar 2006 9:31 pm

That lens would just freak people out, I think a day glow yellow would be more appropriate or a blood red :D
Gareth

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Andrew MacLean
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Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Fri 17 Mar 2006 2:37 pm

My son would take to wearing lenses if they would give himn one of those black sclerals! he does not have KC, he doesn't even wear glasses, but I think he'd make the sacrifice!

8)
Andrew MacLean


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