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Malena
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Joined: Thu 09 Mar 2006 10:14 pm
Location: California

Hi again

Postby Malena » Mon 13 Mar 2006 6:23 pm

Asif, that's what I though at the beginning.
The logic order for me was to removed the stiches first and then the fitting, but my doctor considered that it was safe to start with the fitting.
I'm giving to myself this month to try different contacts to my ungratfted eye. I hope I can find one that is comfortable.

Gareth, to tell you the truth, I don't have any idea what kind of stiches I have.
I also use eye drops many times a day to keep my eye lubricated, and I can wear them from 15 to 18 hours a day. That's pretty resonable not like before the transplant, I couldn't wear them more than 2 hours.

My doctor also told me that at the end, even if she find me a contact that I can wear 15 hours, I will need the transplant in my left eye. The problem is that she can not predict how long.

Rosemary, I'm using sclerals.
I'm not having problems with the piggy back, but I'm really disapointed that my doctor mentioned that after the transplant I was able to use regular gas permeable contact or even glasses, but that wasn't my case, I'm wearing sclerals (piggy back) something that I ended trying as a last option before doing the transplant.

Andrew, I wish I could share this beautiful sun from California to Scotland :D
I will keep you posted

Bye to all

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Asif
Regular contributor
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Posts: 141
Joined: Wed 01 Sep 2004 5:13 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles

Postby Asif » Mon 13 Mar 2006 9:17 pm

Malena

It sounds as though you may have a continuous stitch, where it is a single continuous stitch across the graft in a zig-zag fashion. This may be removed in peices by cutting at certain positions. You may also have interrupted stitches also where you have extra single stiches aswell. Ask you DR as these could be removed. I assume this as your Dr decided not yet to remove any and began to fit you with rgps at this stage. Well being able to wear lenses for that amount of time is great, not even I have found a lens that I can safely wear for that long wothout causing problems and I have been wearing many different lenses for the past few years.

To be on the safe side, I wouldnt recommend that you wear a lens in your grafted eye for more than 12 hours despite it feeling comfortable enough to do so, which is the recommended max wearing time, as you dont want to overwear your lens and damage your new cornea.

I think your making the right decision by trying out all possible available lenses in your ungrafted eye. I wouldnt get a graft based on someones prediction, but if your KC is aggressively advancing and have tried all possible lenses with none suitable than a graft may be cosidered. I am in the same situation, but am currently strugling to tolerate wearing lenses in my ungrafted eye for more than a few hours since my KC has advanced to its current stage.

Well good luck finding a lens for your ungrafted eye as we all need it and hope things go really well for your graft.

Asif

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Andrew MacLean
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Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Mon 13 Mar 2006 10:08 pm

Asif

Thast is exactly the position I was in until I was simply unable to tolerate a lens in either eye.

I'm with you: hold out as long as you can and then go forward to have the graft. The judgement call is to know when you have held out long enough.

Malena

All the best. You know that you will be in all our thoughts.

Andrew
Andrew MacLean

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rosemary johnson
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Joined: Tue 19 Oct 2004 8:42 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: East London, UK

Postby rosemary johnson » Tue 14 Mar 2006 7:42 pm

Malena is wearing sclerals:
Ah. right.
Well........ it may be that *at the moment* they can get you the best vision, and hence the best way to get on with life, with a scleral over the graft.
And it *may* be that this is a measure "for now" and that as the graft continues to settle down, which it can continue to do gradually for a long time, a corneal lens will become possible again.

Are you getting a decent level of vision with the grafted eye? - it may still be that this will continue to improve, so you can't be sure yet about the long term. It *might* be you still have to battle with sclerals, but t least you get to be able to see better.
Or, maybe not......
FOr that matter, what level of vision are you getting with the piggybacked sclerals in the ungrafted eye? - if you can cope with life with that level of vision, then why indeed got for a graft? - "yet", at least.

Did you always wear sclerals, or was this a recent development? - personally, I've always worn them, and would hate to be told I'd have to start getting to grips with the little corneal lenses, if/when I ever have to have a graft. Maybe if I'd started onthe little ones I'd think differently?!
Rosemary


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