Destressing SWMBO

[ChrisK]

ChrisK,

The support group has a range of fact sheets regarding KC, some can be downloaded from the link that is on the homepage. Others are mailed out by Anne Keplatz when you register your details with her. You then get regular news letters from the support group.

Some hospitals now do fact sheets that expllain the graft processs too if you need to go down that route.

Thanks Gareth, I must go read them as I found the forum but don't think I've been to the homepage

[ChrisK]

Paul.

The ticker is holding up well I must say my GP has been absolutely first class and things have been moving on promptly.

I do seem to have spent more time at the William Harvey these last couple of months then anywhere else though

In fact, thursday I am having my last of a series of tests. It's the stress test and then I return on friday where my consultant will go through all my results and let me know what operation I'll be having.

As soon as I know I can get myself back on the waiting list for my cornea transplant

[Paul Osborne]

Chris,

Am really pleased that things are going well for you. That seems like good news so far. Fingers crossed for Friday.

Fingers crossed that they put you back on the cornea list soon - hopefully you will be able to jump a few places.

Paul

[Andrew MacLean]

Well done

Not only do you go to get your sight restored, but you also come out of it with a good digital radio!

The "I could go blind" comment is not such a fib. Quite a lot of us have been registered blind. Thankfully some of us have had sight restored!

Andrew

[Paul Osborne]

Well done

Not only do you go to get your sight restored, but you also come out of it with a good digital radio!

The "I could go blind" comment is not such a fib. Quite a lot of us have been registered blind. Thankfully some of us have had sight restored!

Andrew

I can't knock the new radio bit, however it is as a friend pointed out "an extreme way to go about it and you can afford to buy one anyway you lazy sod!" - which is I agree a valid point!

I am hoping that I never have to register blind, particularly since I am partially deaf and my hearing is deteriorating slowly. Handily I am one of the guinea pigs for staff training with the new digital stuff that the NHS is issuing at the local hospital so I get access to the new stuff fairly quickly.

There are times when I do get really hacked off with it all and get quite low, but many thanks to the wife, the people here on this forum and my faith (not necessarily in that order) I get through it all.

Right thats lunch out of the way, back to decorating (just need to do a last coat on the rest of the walls and then the gloss work). Its a loverly sunny day, my eyes ache, my sunglasses have the wrong prescription and I am painting the room white! Also I have to finish it today as a new bed is being delivered tomorrow.

Marvellous.

Paul

[Andrew MacLean]

Paul

I also have a hearing problem. I have asymmetric bilateral hearing loss, and have (but do not wear as often as I ought to) digital hearing aids prescribed and provided by the local hospital. In the years that I was registered blind, my hearing problem was most difficult to deal with; I found all sorts of ways to get round the problems of being unable to see, but the prospect of being unable to hear music or listen to a radio play, or even to enjoy the scents and sounds of the theatre just filled me with dread.

In the end my hearing loss has proven quite manageable, although it does continue to deteriorate.

I think what I am saying is that if your sight does deteriorate over the short term, surgery does offer the good prospect of long term recovery. Would that they could do the same thing for hearing.

Andrew

ps how goes the decorating?

[Paul Osborne]

Paul
the prospect of being unable to hear music or listen to a radio play, or even to enjoy the scents and sounds of the theatre just filled me with dread.

In the end my hearing loss has proven quite manageable, although it does continue to deteriorate.

I think what I am saying is that if your sight does deteriorate over the short term, surgery does offer the good prospect of long term recovery. Would that they could do the same thing for hearing.

Andrew

ps how goes the decorating?

Dread thats the word. I am with you there. My hearing loss is manageable its the knowledge that it is getting slowly worse that browns me off from time to time. Mostly I am OK, just have bad days from time to time. If only surgery were an option for hearing. Theoretically stem cell research could help me but thats not possible just yet and of course their are the ethical issues to consider. However that is yet many years away I think.

Decorating: tea break time! Walls finished. Just need to gloss the skirting boards, door and the woodwork round the fitted wardrobes. So two-three hours work to go. Will be done tonight easy peasy. The logistics of furniture/stuff shuffling is going to be fun and the bed will be delivered somewhere between 12-5 - so I will be ready by 12 and the bed will arrive about 6 knowing my luck!

Paul

[Andrew MacLean]

But what a good idea to have set yourself a target pre-graft! Well done and all the best.

Andrew

[Susan Mason]

Best wishes for Friday, Chris. Hope all goes well.

Susan

[Paul Osborne]

But what a good idea to have set yourself a target pre-graft! Well done and all the best.

Andrew

Thats one way to put it. The other way was that we had an amazing self deconstructing bed, you only needed to roll over the right way and the earth moved. Forget anything more vigourous. So on the grounds that a collapsing bed is not going to be good for a grafted eye we decided to buy a new bed.

That led into getting a new bed - which resulted in me getting banned from the local Habitat (bed collapsed when I Fosby-Flopped onto it) on the way (so we bought new bed from somewhere else). At which point SWMBO decided that perhaps we should make the front "spare" room our room, hence the decorating.

I would really rather not be decorating, but yeah its quite theraputic.

Paul