How long before the fog disappears....

General forum for the UK Keratoconus and self-help group members.

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Andrew MacLean
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Postby Andrew MacLean » Mon 13 Feb 2006 3:44 pm

Per

You will remain in our thoughts as you continue through this long process.

Andrew
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John Smith
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Postby John Smith » Mon 13 Feb 2006 6:22 pm

Per,

Yes, in my experience the morning/afternoon thing makes all the difference. I've recently had two refractions done at 10am, and both made my astyg. axis 110 degrees. From which, they made glasses I couldn't use.

On my consultant's advice, I had a 5pm refraction done. Result: 117.5 degrees instead. So I now need new specs for the afternoon! I end up wearing the current set at odd angles (presumably 7.5 degrees!) in the evening to see in reasonable focus!

Hang on in there, and let's hope that the enothelial cells continue in their improvement.
John

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Postby Per » Tue 14 Feb 2006 2:05 pm

Yes, evenings are best. Had a chat with the surgeon thar did my graft today(a different one than the one I see regularly), and he was surprised it had taken so long. He said he used to recommend eye-drps tha helps claring up if it was slow. Do any of you have any experience with that ? It doesn´t heal, only assist in the process.

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Postby Per » Thu 23 Feb 2006 9:15 pm

I have now got my drops. Ophtasiloxane. Any of you with "slow" grafts familiar with those drops? Their function is to help the endothelia-cells to clear up the graft.

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Postby Per » Fri 24 Feb 2006 10:46 pm

Thanks for the immediate response. Have a nice week-end ! :lol:

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Postby John Smith » Sat 25 Feb 2006 4:18 am

Hi Per,

No, I've not heard of Ophtasiloxane - and I would have thought that I may have done since we have similar symptoms.

Just goes to show that if you hang in there and be patient, your graft will probably "kick-in" and you'll get better morning vision.

Hope you do!
John

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Postby Andrew MacLean » Sat 25 Feb 2006 3:57 pm

John Smith wrote:Hi Per,

No, I've not heard of Ophtasiloxane - and I would have thought that I may have done since we have similar symptoms.



John, don't forget that Per is in foreign parts. Could it be that the drops are marketed in Norway under different names?

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John Smith
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Postby John Smith » Sat 25 Feb 2006 4:10 pm

That's very possible Andrew; but I've also not had a drop prescribed for that function :(

My guess is that "slow" endothelial cells and "insufficient" endoithelial cells have similar symptoms, but need to be treated differently (i.e. Per's condition is actually treatable).
John

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Postby Andrew MacLean » Sat 25 Feb 2006 4:37 pm

The problem is, John, that I don't imagine that Per's doctor speaks to him in English. "slow" is not a symonym of "insufficient", but when translated through a third language you might get one from another.

This is the eternal problem of translation, and it is why some words are never translated. an example is the compound noun endothelium. This is from the latin "endo" meaning within and the greek "thele" meaning nipple.

Life is a great puzzle. Add the confusion of language and the puzzle becomes an enigma.

Andrew
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Postby Per » Sat 25 Feb 2006 8:06 pm

Hi, there!

The condition is like John says (sorry , my English is not good). Insufficient endothelial cells , as they work slower than they are supposed to to. Probably because many of them have died in the transplant-process. We will never know.

The drops are french. Produced by Alcon. So they are imported. i have had 4 drops today, and superclear vision! Adviced to have 6 drops a day for one week and then once a day in the morning until next appointment at the clinic. As I understood the drops only remove humidity from the graft. It doesn`t cure or revive the cells But by easing the job for the cells they may have a better chance to get into normal function. Well, even with lenses I never saw anything like this. So I hope it will settle and the cells start pumping.

Guess what I paid for the drops? 230 NOK. ca 20 pounds :)

Have a nice VISIBLE evening !
Last edited by Per on Sat 25 Feb 2006 8:12 pm, edited 1 time in total.


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