Went to Moorfields Today

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

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GarethB
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Keratoconus: Yes, I have KC
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Postby GarethB » Wed 22 Feb 2006 8:29 am

Anne,

Any astigmatism left post op is basically small creases in the graft. If you sew, you will know how hard it is to sew a circular patch on something without small creases at the edges.
Gareth

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Anne B
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Postby Anne B » Wed 22 Feb 2006 8:48 am

Gareth

Hi thanks for your help. Not feeling great today do you get fed up with this l just dont understand it all.

what is a c3r?

Anne

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GarethB
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Keratoconus: Yes, I have KC
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Postby GarethB » Wed 22 Feb 2006 2:20 pm

Hi Anne,

Sorry to hear you're fed up, but to be honest that is why I visit here and ramble on a bit. I find it therapeutic.

What C3R is in a nutshell is a way where the crosslinking between layers of the cornea are stimulated to re-build and strengthen. KC is caused by the breakdown of this structure.

The procedure is very quick and simple, a rhiboflaving and co-enzymes are dropped onto the eye over a short period and exposed to low intensity UV light for about 3 minutes or so which activate the co-enzymes to do there stuff. Equivelent to 2 weeks in the Australian sun with no eye protetion.

Jayuk can go into more detail about this as he has had it done by the pioneers in Dresden and he has reported quite promosing results. I think it was about October last year so you may have to go back a bit, but a search for C3R on this site should yield results.

The results I have read about for mild cases of KC look very positive. I will have to go back to my notes regarding more advanced cases.

If you want some technical stuff, pm me your e-mail and I will forward the scientific papers Jayuk sent to me.

Gareth
Gareth

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jayuk
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Postby jayuk » Wed 22 Feb 2006 2:26 pm

Anne

As Gareth mentioned; I have a post on this from my own experience located here

http://www.keratoconus-group.org.uk/for ... hlight=c3r

If you have any other Q's feel free to ask

J
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

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Anne B
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Postby Anne B » Wed 22 Feb 2006 2:32 pm

Hi
Thanks for that. While im on a roll what are Intacs?

Anne

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GarethB
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Postby GarethB » Wed 22 Feb 2006 2:32 pm

Jay,

I was going to put a sarcastic comment in my earlier post about C3R as I knew you would be able to put a link straight away :D

What is the unaided vision in the C3R eye now?
Gareth

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rosemary johnson
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Postby rosemary johnson » Fri 24 Feb 2006 10:17 pm

anne asked what was astigmatism:

When you have an eye test, has your optician/optometrist ever asked you to look at a pattern with a lones of lines played out like a picture of a hedgehog, and asked if some of them look further apart than others?
That's testing for astigmatism.
People with perfectly normal vision see all the radiating lines as being evenly spaced and regular. SOmeone with astigmatism thinks the hedgehog is having a bad hair day, with the spikes all close and sticking together in some parts, and all standing out and sticking out at other parts.
SO you tell the optician the spikes are finer and more separated at, say, two o'clock, and she tries a different sort of test lens, and then is looks like the hedgehog has ofund the Wash'n'Go.

The astigmatism effect happens if the person's cornea isn't round like a saucer that goes under a coffee cup, but more like one of those oval saucers than go under a gravy boat - if you have a mum or a granny who goes in for such things as gravy boats or the like!

Rosemary

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jayuk
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Postby jayuk » Fri 24 Feb 2006 10:31 pm

Gareth

Unaided vision is basically 5 fingers I would say 1.5 arms length...before C3R it was about 10 inches from face lol

I havent worn a lenses since I have had the C3R.....I am going to get another Topo end of March...and I think that will more than likely be the final decider as to how well it has halted the KC and also flattended the cornea....

J
KC is about facing the challenges it creates rather than accepting the problems it generates -

(C) Copyright 2005 KP

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Andrew MacLean
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Postby Andrew MacLean » Sat 25 Feb 2006 4:04 pm

Intacs are partial ring implants that are inserted around the asymetric astigmatism caused by KC to draw the cornea into a more natural position. The procedure is reversible.

There is talk again of introducing the procedure as part of the emnu of items that can be offered to patients in glasgow, depending on the severity of their condition.

Andrew
Andrew MacLean

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GarethB
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Postby GarethB » Sat 25 Feb 2006 7:01 pm

Hi Jay,

Definitly appears you have managed to regress the KC to some extent which is excellent as the main aim was to halt the progression and try and offset an occuarnce of hydrops.

You must be well pleased.
Gareth


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