doing my head in now FLAMIN NHS!

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John Smith
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Keratoconus: Yes, I have KC
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Postby John Smith » Wed 22 Feb 2006 12:19 am

jayboi2005 wrote:i can't walk into another Opticians because they say you have had a sight test less than 3 months ago so we cannot give you another. :roll:
Have you tried? Have you tried a reputable independant? Have you explained the situation to the opticians? If not, then do so.

Failing all else, explain all this to the job centre's "Access to work" team. Under DDA rules, you'll get a sight test pronto, I'll be bound.

The help is out there, but unfortunately, you do have to go out there to find it yourself.

Please don't get disheartened, things will improve.
John

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Susan Mason
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Postby Susan Mason » Wed 22 Feb 2006 12:56 am

Hi
I had the same problem with a long wait for my first hospital appoitmnet. My local optician had changed and he worked for an opticians of the 'high street' brand and whilst at a check up after the birth of my son I was calmly told I was going blind. Well you can imagine my reaction and no matter how many questions I asked him he wouldn't tell me why he thought this. I was referred via my GP to the local hospital and after 2 or 3 months I received a letter where I was quoted minimum 34 weeks wait to start off. After 9 months I received another letter asking did I still want to be on the waiting list, which you can imagine I didn't take well at all.

For me in the mean time I had no other choice than to go private and luckily for just under £100 I managed to get a decent prescription for some glasses and some words of wisdom about inexperienced opticians in fast in/fast out establishments. Now this could be a little unfair as it may not always be the case however, it does seem that if you only ever see straight forwards cases, well you never get to progress and if your employer trades on cheap and fast turn around well possibly you have no opportunity to try your hand at some of the more trying patients.

In the end some 15 months later I had no choice other than to be seen by the hospital, where my KC was eventually confirmed and I was told what the problem was. This appointment also I had to wait for and after several weeks where I found it really difficult to work I resorted to ringing the hospital and speaking nicely to the receptionist advising her I could no longer see to work and as such I was getting to the point where I may not be able to provided for my family, or I may loose my job. This resulted in me getting a phone call back several hours later, at her suggestion and also an appointment with the consultant some 4 weeks later.

What I am saying here is you need to keep pressing them for this. The receptionists are quite in the know and can pull the strings when they feel they need to. You need to be calm with them and keep your temper whilst painting the terrible situation you are in. After all they are not personally responsible however, they are the ones who can make it work for you.

The syspem basically appears to have quite a few problems in it and whilst it does not make anyone feel any better at this sort of time it is not uncommon for these sort of waits it seems.
I personally also feel that it seems to in some ways be worked on the matter that if you are told you have a wait and then do not ring and plead your case it is assumed that you are in no hurry to be seen.

Do try also access to work at the local jobcentre plus and action for blind people to see if they can help.

Your GP should also be of support to you at this time.

best wishes

Susan
don't let the people that mean nothing to you get you down, because in the end they are worth nothing to you, they are just your obstacles in life to trip you up!

jayboi2005
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Postby jayboi2005 » Wed 22 Feb 2006 9:45 am

well i went to my GP today have Tonsilitis just to top it all off. So while i was there i asked about my referal, and the answer was SORRY! if you have been told your appointment is that soon you are doing quite well. He also said there isnt much they can do as it is very busy. :?

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jayuk
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Postby jayuk » Wed 22 Feb 2006 1:25 pm

JB

Thats just piss poor!!

A question for you; how well, if at all, can you function without lenses?....

J
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

jayboi2005
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Postby jayboi2005 » Wed 22 Feb 2006 2:37 pm

well i am ok walking around and things like that. But i cant see driving standard so thats a mess, cant read text for long before i feel sick and when i can see it its got to be big. Its just a pain, i dont bother trying to do much because i just seel sick and get a headace when i do.

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Andrew MacLean
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Postby Andrew MacLean » Wed 22 Feb 2006 2:41 pm

JB

All the more reason why you ought to go to the hospital. If you feel uncomfortably about that, go to see your GP and ask if (s)he can have you moved up the list. I don't know if it is possible, but it is probably worth a try.

All the best

Andrew
Andrew MacLean

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GarethB
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Postby GarethB » Wed 22 Feb 2006 3:51 pm

I was refferd in March 04 and got a hospital date for October 04. After being told I wwas OK by my GP to race in July 04 and getting sent home from work in August 04 as I had headaches reading the computer screen, my GP got the appointment brougt forward to mid August 04 where i found I was not legal to drive and should nevver of gone racing :shock: That resulted in 3.5 months signed off work.

Seems like eye casualty is becoming more of the option to go down.
Gareth

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Andrew MacLean
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Postby Andrew MacLean » Wed 22 Feb 2006 3:57 pm

J-B

At least your tonsilitis is being attended to.

Susan makes some good points, and her advice is well worth following.

But I'd go off sick from pursuing the answer to your KC questions while the tonsilitis is clearing up. The best of us can become jaded if we try to accomplish things while we are under par.

All the best

Andrew
Andrew MacLean

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Lynn White
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Postby Lynn White » Wed 22 Feb 2006 5:45 pm

Hi JB...

As an optom, let me explain this voucher thing for you and others...!

You get an automatic free eyesight test and voucher because of your age. You only get a complex voucher if your prescription is over -10.00D and you are an adult and otherwise have no valid claim to have an NHS sight test on income grounds. And btw you CAN be under 10.00DS if you are KC so you don't automatically get a complex voucher if you are KC!!

Now, you ARE actually entitled to another test at any time if you want a second opinion. If you go to a good independent and explain the situation, they can put through a sight test form and issue another voucher. They have to put a code on the form to explain why you are having an "early" retest - but thats all. They can quite legitimately claim you are having problems.

So my advice would be the same as others here.. go somewhere else and start again. Getting brought forward on the waiting list at hospital is very difficult because everyone else is in the same boat.

As I have said before... the hospital system is NOT adequate and as KC is not as common as say cataracts, it does not get the same priority and money thrown at it.

If you need any more info JB, just ask!

Lynn

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John Smith
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Keratoconus: Yes, I have KC
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Postby John Smith » Wed 22 Feb 2006 7:10 pm

Lynn, thanks for clearing that up.

JB, I stand with my original advice - get well from the tonsilitis and then visit another optician. Don't use one of the "big names" (SS, D&A, Boots etc) - they can be wonderful, but in general the independants are better.
John


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