more darn misery

[james mckinlay]

had the clinic today and thought for once id get some good news haha ha ha

yeah right i got no prescription possible for spectacles anymore so now they are waiting to see what happens in the mean time i got no vision in my left eye which has been the norm post graft for almost a year now.

plus i have bad scarring which is making it harder to treat so like others right now im sick of the issues post graft.

also i have had to stop any the stuff i did before.

but its part of having KC so i need to live with it


but ill keep fighting anyways

james

[GarethB]

James,

As pointed out in another post it can tak 18 - 24 months to get good vision post graft, so based on this you are half way in the first chapter of being post graft which is quite a considerable journey to have travelled so congratulate yourself on that progress.

To be honest post graft, rather than giving up on things I could do before I choose to achieve what my friends and famill said were impossible. I rubbed down my first car to bare metal by hand and started to repaint it. I was registerd partially sighted at this time. So I could get paint on the car afterwards I used a brush instead of a spray gun. End result after hours of careful rubbing down and more paint I had a finsih which was as good as any professional respray. Also put the car back together, but did nead a hand with the wiring due to the colours, could not see the colour code stripe running along the wire. HAd some help putting the engine back, but mainly due to its weight, but I retuned it myself, no guages, just tuned the car until it sounded right. When it went for MOT and a final check at the garage they only had to make minor adjustments.

Just need to think outside the box and it is surprising what you can do.

What is it you have had to give up?

Perhaps we can find a way you can take it up again.

[james mckinlay]

yeah anno and i aint giving up on things im in this for the long haul and dont intent to let it beat me.

i used to play ice hockey and as u can guess not really a good thing post graft plus i did karate both of which the doc said no more so i stopped.

just a shame there aint a ice skating club for partially sighted in the glasgow area oh well not to worry.

cheers m8

james

[GarethB]

James,

I always thought Karate was more than just hitting things. There are all the moves and positions that go with it which help keep you fit. Can you carry on with that, just avoid the sparing side of things?

Doctors opinions vary wildly from area to area, after 12 months I was back playing rugby, used to be scrum half and leaving myself wide open for jokes, but hooker half the time too.

[Knight]

Yeah me too, was told to lay off with weight training and kick boxing, it actually hurts my eye if I try pushups and situps so I'm not even doing those atm. I used to spar a lot in the past when I did Karate and Tae Kwon Do as well, but it ended up my lenses kept slipping and 'one eye' fighting always left me prone to getting kicked in the head heh! So I tried fencing for a while, simply couldn't adapt, I kept going for a knee block when they lunged, couldn't help it but using your legs to defend in fencing isn't allowed lol, shame thou bc I'd have been good at it.
But like GB said, you can still practice and learn your katas, althou if like me, it was more fun practicing with sparing it can be really boring doing anything else.

Anyway, I'm curious you mentioned scarring, is that on the grafted eye, if so how'd that happen? That's one of my biggest concerns, already, to my grafted eye, there's a slight abrasion which happened the morning after my surgery ... my eye opened under the bandages and I never felt the dressing rub it!

[Andrew MacLean]

James

Was it Dempsey or Makepiece who used to say "Life is hard ..."

I have just had a chill realization that you may be too young to remember 1980's kitsch television. Oh well, it was one of them!

For what its worth, I was 18 months post graft before I got any sight worth speaking about, then it all came together. If I'd had the vocabulary, I'd have posted in the same vein as Knight's very beautiful soliloquy in another string.

My motto in other circles is "Always fighting, sometimes winning". with KC it has tended to be "Always fighting, at least until I start winning!"

All the best.

Andrew

[Andrew MacLean]

Post script

Are you coming to the meeting on Saturday? You may be able to spark up enough interest to book a session at Braehead for ice skaters with visual handicaps. This would mean that you could whiz about on the ice trying at the last minute to avoid hitting those of us who had fallen in front of you!

(I once took a friend who is a Dominican Friar onto the ice at the St Enoc Centre. Ten seconds on the ice and the Good Father fell and broke his ankle! The attendants were very good and scooped him off the ice. I got my car up to the back door and delivered him to the Southern General, which was the closes casuatly dept to his Priory. The clerk was taking his particulars, and went through the usual questions ... name ... address ... age ... occupation.

He gave the answers with due equinimity until the last two questions: Occupation Roman Catholic Priest, Marital Status ... here I stepped in and reminded the young clerk who was wearing a crucifix and might have known better that the Pope did not encourage priests in orders to marry! )

The clerk blushed, my friend glowered and I smiled the sort of beatific smile that Presbyerians muster only occasionally!

Andrew

[Knight]

...He gave the answers with due equinimity until the last two questions: Occupation Roman Catholic Priest, Marital Status ... here I stepped in and reminded the young clerk who was wearing a crucifix and might have known better that the Pope did not encourage priests in orders to marry!... The clerk blushed, my friend glowered and I smiled the sort of beatific smile that Presbyerians muster only occasionally!

That made me laugh so hard, nice image, great account, well put!

[james mckinlay]

thanks for the ideas everyone as for my scarring its something to with damage pre graft well so they say i dont know really as i never injured my eyes ever.

im going to the meeting on saturday so maybe the guest speaker will help.

ill try the group see if anyone is up for some ice skating or if anyone has heard of a group.

thanks a lot this has helped me a great deal

james

[Paul Osborne]

Post script

The clerk was taking his particulars, and went through the usual questions ... name ... address ... age ... occupation.

Andrew

Well at leas the clerk did not ask what religion he was.



Paul