Walking away

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

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Lesley Foster
Forum Stalwart
Forum Stalwart
Posts: 490
Joined: Wed 18 May 2005 10:23 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: Southam, Warwickshire via Milborne Port, Somerset.

Postby Lesley Foster » Mon 13 Feb 2006 6:42 pm

Hi Sweet,

Sorry you feel so low. Lots of hugs are coming your way as well as thoughts and prayers.

Take care.

love

Lesley. x
Live long and Prosper.

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Paul Morgan
Chatterbox
Chatterbox
Posts: 291
Joined: Sat 06 Nov 2004 3:11 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: Yeovil, Somerset

Postby Paul Morgan » Mon 13 Feb 2006 7:39 pm

It's just a bad day Sweet.....I thought I was going to have one today what with my lens drama and all.

Posted my troubles on here, and was immediately cheered by the witty remarks and support.

Well I'm still here at my bloody desk, it's almost 7.40pm, and I can go home in 20 minutes.

The glasses have done their job well...not as good as lenses, but the upside has to be giving my eyes a day off from the lens.

Anyway the moral has to be Sweet, take a deep breath, it can't be as bad as all that, read Jay's words carefully, he's right you know it will all come right eventually.

God just think how you'd feel if we'd lost the rugby!!!!! :D

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Knight
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Posts: 188
Joined: Thu 12 May 2005 1:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: classified

Postby Knight » Mon 13 Feb 2006 8:49 pm

WOW !

I dont believe it, I wont. You're like a feature of the KC Forum!
I have to say as well, no matter what, paying or not, NHS regardless, graft success does vary heaps, everyone's case is different, when we all sign on that dotted line for the operation we know the potential outcomes - in the smallprint it does say somewhere DALK although successful can take 18mths or longer for good vision. As you know a corneal graft is usually a last resort and often by that point other issues need to be taken into account but with it being a last resort, that doesn't mean end of the line
We all have shitty days Sweet, and we're all allowed a good vent! It would be a terrible shame if you threw the towel in now after everything you achieved.

I'm not sure what else to say, goodluck and best wishes eh! Come back soon!
Only those with KC know the hidden beauty of a Christmas Tree.

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Sajeev
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Posts: 319
Joined: Thu 18 Mar 2004 10:56 pm
Location: London

Postby Sajeev » Mon 13 Feb 2006 9:06 pm

I had to write as I'm forever greatful to you Sweet for the very balanced, wise, thoughtful, and correct! advice you gave me a long time ago... I will never forget that... it was sound advice, which was and is priceless...your prespective on things to me has been always correct and if i ever did wish the best for someone on a forum... it has to be for you...

I think things will come around, they always do... I think there is a lot of good to come to you Sweet... I really do believe that...

Just take you time... we are here to listern, So please do keep in touch with everyone, by PM, email, phone and just talk...

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John Smith
Moderator
Moderator
Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Mon 13 Feb 2006 10:24 pm

Sweet,

I think it's obvious that there are a lot of people here who value your presence, and are looking forward to your return.

We all hope that you're feeling better soon, and that you'll be back with us again.

John
x

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james mckinlay
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Chatterbox
Posts: 211
Joined: Wed 01 Jun 2005 9:49 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: cumbernauld just outside glasgow
Contact:

Postby james mckinlay » Tue 14 Feb 2006 1:09 am

SWEET YOU CANT LEAVE US I KNOW HOW IT FEELS TO HAVE A POOR GRAFT SUCCESS I MYSLEF HAD HTIS WITH THE LEFT EYE AND NOW IM BLIND IN IT.

BUT I KNOW ONE THING YOU HAVE MADE ME LAUGH AND SMILE WHEN I FELT LIKE THROWING IN THE TOWEL.

YOU HAVE BEEN AN INSPIRATION TO USERS ON THE FORUM I UNDERSTAND YOU ARE HAVING A TIME OF IT BUT BE AWARE GRAFTS CAN TAKE 2 YEARS TO HEAL AND THEN U CAN SEE THE FULL EFFECTS OF IT ITS A LOMG FIGHT AND ID BE GLAD TO HELP ANYWAY I CAN.

PLEASE KNOW YOU HAVE A LOT OF PEOPLE WHO WILL MISS YOU ON HERE AND I CAN SAY IT WONT BE THE SAME WITHOUT YOU

PLEASE KEEP YOUR CHIN UP AND FIGHT.

I HOPE YOU FEEL BETTER

XXXX
JAMES

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Anne Klepacz
Committee
Committee
Posts: 2298
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Walking away

Postby Anne Klepacz » Tue 14 Feb 2006 2:24 pm

Sweet, I hardly need to add to the chorus of voices telling you that you CAN'T leave the forum! But please don't despair of your graft so early on. I had no benefit from my first graft until I was finally given a lens to wear on it 2 yrs after the op (in the meantime the other eye was deteriorating rapidly). But the lens enabled me to see all my cobwebs for the first time, and now I get good vision with either contact lenses or glasses. It can take a long time before a graft will give usable vision - not everyone will have Knight's results so early on. But you WILL get there eventually, however frustrating the setbacks are. We're all thinking of you and wishing you an UP very soon.
Anne

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Paul Osborne
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Chatterbox
Posts: 254
Joined: Tue 11 Oct 2005 9:54 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Canterbury, Kent

Postby Paul Osborne » Tue 14 Feb 2006 10:22 pm

Sweet.

Take care and take the time you need, we all need a bit of space from time to time.

Thanks for all your support and I look forward to seeing you here again.

Paul

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Sweet
Committee
Committee
Posts: 2240
Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Postby Sweet » Fri 17 Feb 2006 2:41 pm

Thank you to everyone here who posted a reply and sent me loads of emails, pms and text messages. It really does mean a lot though i'm not always in a good place to hear it. I'm not very good at taking any support but thanks to everyone here who sent it.

I haven't left this forum just needed some time to get away and think. Went to my follow up today which wasn't so bad. I did have two lines with pinholes before most of the stitches got removed and i lost them, now i make three lines with pinholes. So while i gained a month of stress i also gained another line, which makes better news i think.

Eye pressure was fine and staining on my other eye is better so i don't need to go back for another three months unless i have any problems. Need to continue with FML drops four times a day and be careful with the rest of my stitches.

So ... i am around just maybe not posting as much as i normally do but if you need me i'm on yahoo mail. Just needing some time out here as while i can stop stressing about my eye for a minute i have a lot of other things that i need to work out.

I will be at the AGM though so if i don't post before then i will see you there!

Sweet
Sweet X x X

Image

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GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Fri 17 Feb 2006 2:50 pm

Hopefully I can make the AGM and I will give you a gentle slap for being a typical nurse when it comes to not being well :D

Will explain when I give you a slap :twisted:

Good to know you are well and did not go far.
Gareth


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