Cross Linking

[Andrew MacLean]

Jayuk and Gareth

I take my hat off to you both. To be in at the beginning of a new treatment must be both exhilarating and a little scary?

Sure you can be told the theoretical underpinning of the treatment. You can be told of the procedure, but you have to hope that there are no longer term hidden snares lurking undiscovered in the future.

I am way too late for this sort of intervention, but I might have given it active consideration had it been around when I was at an earlier stage.

Andrew

[Andrew MacLean]

Jayuk and Gareth

I take my hat off to you both. To be in at the beginning of a new treatment must be both exhilarating and a little scary?

Sure you can be told the theoretical underpinning of the treatment. You can be told of the procedure, but you have to hope that there are no longer term hidden snares lurking undiscovered in the future.

I am way too late for this sort of intervention, but I might have given it active consideration had it been around when I was at an earlier stage.

Andrew

[GarethB]

Andrew,

You are pefectly correct, but so far it would seem that there is less chance in the short term of my sight changing for the worse with this treatment.

Long term is as unknown, just like the KC progression is for any of us. The procedure is not that invasive and my corneas for the most part are strong so now is probably a good time for the treatment.

I have approached Dresden suggesting this may help with there research. It would be nice if they funded part of the treatment if we go ahead with it.

The way KC has progressed post graft is extremely rare although as I research further I am finding more cases. This might be because I am tring to find out as much as I can regarding grafts post 10 years so my results may be slightly distorted which is why I have not posted any of it until I am sure it is representative of the graft comunity. However all my research is turning up US results only.

[Andrew MacLean]

Gareth

Your involvement in the Dresden research may make a huge difference for KC people as yet undiagnosed.

All the best

We have a new consultant ophthalmologist now working alongside Dr Ramaesh at Gartnavel. he is coming to the next meeting of the Scottish group, and I shall certanily ask for his 'take' on all this

andrew

[jayboi2005]

Hello i contacted Dresden on
Kontakt:
Secretariat of University Eye Centre
Elke Otto
Tel: +49 (0)351/458-3381
E-Mail: elke.otto@uniklinikum-dresden.de

when i phone up they say HALLO HALLO HALLO and hang up. I dont speak German and the woman i dont think speaks English. Any help JAYUK

[Andrew MacLean]

I think you have an eMail contact. You could try this. Otherwise, why not get somebody who speaks German to write down in phonetic spelling the name of the department you want to speak to. When you get the University Switchboard, read out the message.

When you are through to the department ask in german if they speak english. If not ask if there is anyone who does speak english (again have this written down phonetically).

I don't know whether very many switchboard operators in British Universitites would be able tos keap German.

Andrew

[GarethB]

Basically

"Kontakt:
Secretariat of University Eye Centre"

is Contact; Secretary of Univerity Eye Centre.

If you do need something translating, I will see if my Geman wife would help.

Regards

Gareth

[Andrew MacLean]

Gareth

That's what I had in mind, Gareth. I studied at Salzburg, but the rather odd form of 'Austrian German' that they speak there would probably be as much use to Jayboi trying to make himself understood in Dresden as Aberdonian Elgnish would be in Tyneside!

[GarethB]

I know what you mean. I used to work in the German speaking part of Swizteland, where they do not speak German German, just like the ustrians do not speak German German

Now that has confused everyone. In the 'German' part of Switzeland, 75% is German I am familier with, 10% is French (most of the pleasentries to do with being polite), the rest is a mish mash of Italian and local pharses.

Could get drunk and be better understood in Swizeland than I could be at the farm I worked at in Yorkshire!!! The farmer would go more into Yorkshire and my southern accent would come out more and it was if we were from different planets!!!

Only problem I have in Germany is that if I forget a word or phrase, I will remebr it in Swiss which the Germans do not understand. Then I do the very English thing of shouting

As if that is going to work

[Andrew MacLean]

For most of its modern history, Salzburg has been an indepentent city state sandwitched between Bavaria, where they speak a fairly ideocyncratic form of German, and Austria where the German is even more indeocyncratic.

The government of Salzburg was in the hands of the Prince Archbishops who made sure that it was in the interest of each of their big neighbours to defend the source of their salt (hence Salzburg or Salt Fortress) from the other.

althoughnow part of greater Austria, the folk of Salzburg steadfastly refuse to abandon their unique bits of vocabulary and syntax. I love it, I loved the city and I loved the people! But if I were ever in a German City (say Berlin) and need help with my eyes, I'd be safer using English than my 'German' to ask for help.

I hope jayboi manages to make sense of all this, and finds the help he needs to make himself understood in Dresden.

Andrew