Share your Story. It is interesting to learn how others cope by sharing experiences. Simply email your story to: chair@keratoconus-group.org.uk. You can remain anonymous if you wish. You can also comment on the stories below and add useful thoughts and information.
I’m 27 and live in edinburgh and was originally told I had KC when I was 12 years old I can remember it well as I was surprised being told I had this strange condition that I’d never heard of, before being told by my optition that I had nothing to worry about. Looking back…
I was first diagnosed with KC around 11 years ago, but I really didn’t think that much about it at the time, and it hardly bothered me for the first few years. I used to go for regular eye tests and the opticians would always mention it, but we tend to move areas quite regularly…
It started when he was a teenager, with a gradual deterioration of his sight – first in his right eye and then in his left. But Jonathan Pickles was already short-sighted, and at first he thought the blurred vision was connected to that. It wasn’t until he went to get his eyes tested at 18…
My brief history After having KC for 10 years and exploring various possibilities, I went on the waiting list for a graft in January 2003. Following an episode of hydrops and corneal scarring, I felt it was a necessary choice for my left eye, luckily vision in my right eye is still very reasonable. What…
I write this passage to pass on my own experience of having and living with keratoconus. Although the condition has been for me frustrating and limiting in certain aspects, my personal view is that it has not proved to be a disability and has not prevented me leading a full and ‘normal’ life. The first…
My story begins in 1972 when I was 25. I was working in a bank in London and was starting to notice that the figures in the ledgers, appeared to be double. I had been wearing glasses for a few years and the optician referred me to Moorfields. I explained that I was getting double…