
KC can be a gift
Moderators: Anne Klepacz, John Smith, Sweet
- eman samir
- Regular contributor
- Posts: 83
- Joined: Sat 26 Aug 2006 2:31 am
- Keratoconus: Yes, I have KC
- Vision: Spectacles
- Location: egypt
KC can be a gift
hey i won't ask you a question but i wanna tell you something....KC occur in 1:1000 to 2000 . god choosed you from all those people to have KC.i think you must be very proud of that .KC can be a reason for your strenght and change the whole of your life ...just think how it can do so......... 

- Andrew MacLean
- Moderator
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- Joined: Thu 15 Jan 2004 8:01 pm
- Keratoconus: Yes, I have KC
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- Location: Scotland
eman
I agree entirely. When KC led to my losing my sight I met with kindness from all sorts of people whom I would have not had an opportunity to meet.
At first, when the condition was diagnosed, I remember asking the obvious question: "Why me?" I got an answer; "Why not you?"
In the years since I have come to think of the way in which KC enables me to see the world, both literally and metaphorically, as a gift. Thank you for helping me to articulate this.
Yours aye
Andrew
I agree entirely. When KC led to my losing my sight I met with kindness from all sorts of people whom I would have not had an opportunity to meet.
At first, when the condition was diagnosed, I remember asking the obvious question: "Why me?" I got an answer; "Why not you?"
In the years since I have come to think of the way in which KC enables me to see the world, both literally and metaphorically, as a gift. Thank you for helping me to articulate this.
Yours aye
Andrew
Andrew MacLean
- Alison Fisher
- Forum Stalwart
- Posts: 334
- Joined: Sat 18 Mar 2006 12:56 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
- Location: Leicester
I'm really struggling to find the right words for this.
The 'bad' things that have happened in my life are the things that have had, in hindsight, the most influence on shaping the person I am now. As dreadful as some things have been, from this perspective, I'm glad they happened. But then I always try to find the good in things and am definitely a glass half full sort of a person. 


grafts in 1992 and 1996
- GarethB
- Ambassador
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- Joined: Sat 21 Aug 2004 3:31 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: Warwickshire
I have found that even when I could not see there were many things I could do, some better than when I had sight because I then used a different sense instead of my eyes.
Perfect example was when I re-painted a car after my first graft when partially sighted. Using touch I could get a finish far smoother than if you looked at the finish with your eyes. The end result was a paint finish that I achieved with a paint brush was as good if not better than if a spray gun were used.
The time to do the job was about the same and the satisfaction of achievemnet was great.
Now with KC part 2 it has menat I have been given oppertunities at work because they had no choice and as a result my carear prospects are much improved.
Perfect example was when I re-painted a car after my first graft when partially sighted. Using touch I could get a finish far smoother than if you looked at the finish with your eyes. The end result was a paint finish that I achieved with a paint brush was as good if not better than if a spray gun were used.
The time to do the job was about the same and the satisfaction of achievemnet was great.
Now with KC part 2 it has menat I have been given oppertunities at work because they had no choice and as a result my carear prospects are much improved.
Gareth
- Matthew_
- Champion
- Posts: 814
- Joined: Thu 13 Jul 2006 3:13 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: Gallafrey
I absolutely agree. Our KC ends being a part of who we are too. On a similar tack, I watched a program about Stephen Fry and his bi-polar personality. Although it was a terrible thing to have and to live with, he stated he wouldn't get rid of it if he had the choice! I am not sure I personally feel that way about KC but I am happy to accept that which is given to me and to enjoy the unexpected experiences which arise from it. I have managed to train my hearing to make the most of that and pick up on cues others might miss. Most of all I ahve got a lot better at listening and that has to be a good thing!

Get a life...get a dog!
Can't really say it's a gift I'd choose Eman but neither has it been something that has affected my life in any major way. If possible could I swap for another gift please, perhaps the ability to make people happy as a talented concert pianist?
I was a trustee of a charity for sufferers of cerebral palsy for some years and that certainly showed me how lucky with my lot I was. But looking beyond all physical talents or handicaps the only gift that really counts is the ability to be happy with whatever we are.
I was a trustee of a charity for sufferers of cerebral palsy for some years and that certainly showed me how lucky with my lot I was. But looking beyond all physical talents or handicaps the only gift that really counts is the ability to be happy with whatever we are.
- GarethB
- Ambassador
- Posts: 4916
- Joined: Sat 21 Aug 2004 3:31 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: Warwickshire
My experience of KC and when I was doing charity work at the local hospital I was often told the condition people had were only a disability when you let the disibility rule your life rather than the other way round.
A paraplegic friend at Uni was a very good swimmer, it was only on land he was confined to a mechanical chair. Someone tried to mug him by the canal as he took a short cut to Uni. He ran the nugger over knocking him into the canal. The mugger could not swim and was flailing around pleading for help. My friend said "Who's diabled now?".
He slid out of his chair and rescued the mugger and actually realised the error of his ways. Handed hmself in to the police and took his punishment. The mugger now works in London for a charity caring for the disabled.
A paraplegic friend at Uni was a very good swimmer, it was only on land he was confined to a mechanical chair. Someone tried to mug him by the canal as he took a short cut to Uni. He ran the nugger over knocking him into the canal. The mugger could not swim and was flailing around pleading for help. My friend said "Who's diabled now?".
He slid out of his chair and rescued the mugger and actually realised the error of his ways. Handed hmself in to the police and took his punishment. The mugger now works in London for a charity caring for the disabled.
Gareth
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