Thank you Anne K for getting in touch with me the other night and for the chat.
My appointment is tomorrow in Manchester. After a week reading all the information and threads on this forum I feel a lot more reassured and less frightened now about what lies ahead. I have complied my list of questions and I now feel that I must only have a mild case. The leaflets and information packs give all the theory but this forum is invaluable in that people talk about day to day living with KC. I have read theough all the pages and now feel greatly reassured that I do have choices and there is light at the end of the tunnel.
I will post more details after my appointment tomorrow.
Thank you everybody
Judith
Thank you Anne/Appointment tomorrow
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- Judith Tomlinson Harrison
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Good luck with the appointment Judith.
I wish a place like this had been around when I was first diagnosed - I found getting any information at all was a real battle. Still, having said that after bringing myself up to date over the past couple of weeks about how KC is managed now I've got a whole new load of questions flying round my head.
I wish a place like this had been around when I was first diagnosed - I found getting any information at all was a real battle. Still, having said that after bringing myself up to date over the past couple of weeks about how KC is managed now I've got a whole new load of questions flying round my head.

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