Quicktopic posts: Sep 2002

[Dov Uhrmasher]

Thanks everyone for your messages.

I went to the doctor yesterday. Appartantly my KC has not changed over the last 3 years. However it seems to be more unstable. When I went to my optician 6 weeks ago I could not see the A on the chart - yesterday I could see the third from bottom line.

I am being fitted for contacts next month (Rose-K). I will try and persevere - but we will see!!!

The doctor recommended Livostin drops for the sore eyes. Does anyone know what these drops do and are there any side effects.

Thanks

Dov Uhrmasher

[Ulka Patel]

hi
i am from baroda gujarat. are you from india too????????? do u have keratoconus and do u visit madras????

ulka

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[senthil]

hi Ulka,
im from india but here in UK for short term assignment from my singapore office. me too having early stage of KC. I went to see the Dr. in Sankaranethrylaya in Madras. they say wear glasses @ the moment. can u email to siva69@hotmail.com or siva69@yahoo.com , he will give more info about good ODs in India.

pray to swami for you ..

regs,
senthil

[emmafletch]

Hi

I'm seeing Proffesor Buckley, in London on wednesday. I ahve been referred to him by my specialist in Hereford as when I saw him 3 weeks ago he said I am rejecting my lenses. My eyes are constantly sore, I get shooting pains in them, and they areso red red that people keep commenting about them all the time. I was wondering if anyone else has seen Prof Buckley? Is he nice. also what can i expect him to be able to do?

Thanks

Emma

[Emma Reilly]

Hi Everyone,
Sorry its been so long since I wrote. Back at school now and dispite my difficulties last year I came out with 2A*, 1A, 5B and 1C in my GCSEs. I am now embarking on my AS Levels, German, English, Sociology and History.
In terms of my eyes I have now got advanced KC in both eyes and have thankfully got used to my lenses but still find that my vision is very limited. I think this year the school are trying to help me a bit more so fingers crossed this year might be a bit easier for me. I think it helps that my new Form teacher is partially sighted too! Antway must go, hope to talk to you all soon.

Emma x

[Hitesh Patel]

Hi Carol(885), Sue(890), John(898) and Senthil(905),

Thank you all for giving valuable advise and comfort to my daughter Ulka Patel(808 onwards).

Carol, Sue and John, I will enquire if this is possible through NHS in UK.

It was me who posted on 12 July 2002 (794).

Very greatful to you all.

Regards

Hitesh Patel

[Sue Ingram]

Hi Dipti (907), I have never had problems sleeping, in fact I have usually gone before my head hits the pillow! I have had KC for over 25 years' now. I would think your sleeping patterns would be how they are regardless of KC. However, I have not had a graft so I don't know whether this would affect your sleep - anyone had a graft and experienced problems with their sleep?

Hope you manage to find a solution - I do find that if I don't have enough sleep, my eyes are alot more itchy and sore and cannot tolerate the lenses so well and then this becomes a vicious circle - could this be affecting your sleep? Or is it that maybe you are worrying about your eyes and this is causing you not to sleep?? It could be many things.

Have you been offered a scleral lens for your right eye? It might be worth seeing if this works for you rather than having to have another graft. Take care and I hope things sort themselves out for you. SUE

[Sue Ingram]

Dear Emma (914), Professor Buckley is very nice - you will like him. I saw him re my eyes about 15 years' ago now and he also spoke at the 1st KC Conference last year in London. I know what you mean about shooting pains - I have experienced these once before and it was a bit like a red hot poker being put through my eye each time! Are you wearing rgp corneals at present? Make sure you ask Professor Buckley about scleral lenses - they are more comfortable to wear and seem to have sorted out the problems I had with wearing corneal lenses. Good luck on Wednesday and let us know how you get on. Take care and keep smiling :-) SUE

[racing@umbilical.demon.co]

Sue was saying: I know what
you mean about shooting pains - I have experienced these once
before and it was a bit like a red hot poker being put through
my eye each time!

That's what it feels like to me whenever someone sets off a
camera flashgun anywhere near me! - or even not very near me.
It's excrutiating!! It's also very frustrating, because I've
had to give up doing all sorts of things - such as singing in
choirs, going to concerts or lots of other events - because
there may be people there taking photos. Does anyone else have
this too?

By the way, Sue, where do these numbers you put in your replies
come from? I get the messages by email; maybe the numbers are
only on the web site?

To Dipti: I've long suffered from insomnia (on and off), but
I've never had a graft, so it can't be that! I wonder, though,
since you say yours started from the graft operation, whether it might be related either to a) the general anaesthetic, which
some people say takes a long time to work out of the system
fully, or b) simply the change in routine from your normal
active life to being a patient and having to take it easy, not
getting so much exercise and your whole daily routine being
disrupted? That is, your sleep patterns got knocked out of
their normal rhythm at the time and have never readjusted.

Alternatively - could it be related to drugs (medication, I
mean)? Did you/are you having to take steroid-based drugs to
prevent rejections? I suppose it's possible steroids may keep
you awake, like coffee....

Hope you can crack it, anyway - it can be a right nuisance,
can't it?

To Emma (Reilly): Well done with the exam results! - and good
luck with the AS levels. Your school certainly should be
supporting you - so I hope you can make sure they do!

Rosemary

--
Rosemary F. Johnson

[Amanda Stigle]

Dear Emma Reilly
WELL DONE! Great exam results. Lets hope this academic year is easier for you.
Emma Fletcher, sorry I didn't reply straight away. I have been on holiday, and it has taken a few days to catch up on the e-mails.
Not long now before the sponsered Thames walk, if you are not able to join Mike please help by sponsoring him or any of us who are taking part. If you want to join in just for one day, that's fine. The more the merrier!