Quicktopic posts: May 2001

[Roger Jarvis]

Thanks Peter, hi to all

Wow! new Baby and a puppy, you have got my respect immediately. Your absolutely right about chatting on this site, but its just that I check my e-mails more often than surfing. Let us Know how you get on with the specs. has anyone ever discussed or discovered a method of rinsing off cleaning solution from the lenses, how about a tip of the day, should always be good for a bit of humour.

Regards
Roger

[Carole Woodruff]

I am new to this site and must say it’s excellent. My keratoconus was diagnosed late it seems, 12 years ago when I was 26. At the age of 29, I had a left transplant because my RGP lens wouldn’t stay in. This was in Adelaide, Oz and to be honest I didn’t think too much about it. In to hosp I went and took my 4 month old baby with me!! All went well. The sutures stayed in 15 months. There was a lot of astigmatism. Sight out of graft poor. In 1994 just weeks prior to our move back to the UK the surgeon took me back to theatre to re-fashion the graft (try for a better shape) and put in 3 sutures. This was done under a local anaesthetic as pregnant with twins!! (Not to be recommended, the LA was definitely worse than giving birth!!) Back home one stitch was removed and the other 2 remained. I eventually got fitted in Hitchin by a wonderful optometrist. The lens was very big but not as big a scleral. Fantastic 6/6 vision but years of probs wearing and tolerating it. Meanwhile my right keratoconic eye suffered years of abuse with me like so many of you wearing it all the time. It’s now rebelling. I find my lens painful and the eye always red. I’ve asked my optometrist about sclerals but she wants to try a keratoconic soft lens which has just come onto the market. She says my sight may not be so good but we’ll see! On 5/12/00 I had my 8 year old graft replaced. This was recommended by my surgeon because of lens intolerance in the grafted eye and awful shape. I thought long and hard about going through surgery again. At no stage did anyone mention sclerals to me. I just learned about these from contact with this group. I was fortunate to attend the conference and meet Mr. Pullen and fellow sufferers. My new graft is wonderful so far. From close examination in the mirror with the light in the right place I can see the continuous suture and it never fails to amaze me at the skill of my surgeon. Freddy, I’ve read your messages and fully appreciate what you’re going through. The good news is I now have temporary glasses and can see well out of my “new” eye. So my right eye is finally getting a rest from the RGP. I do feel a bit drunk though because the optometrist had to leave the right lens plain as my right eye is too bad for specs. Robert, I hope my story will encourage you not to be too scared of surgery. But I agree with Sue’s comments about sclerals because they may be good for you. I have been told that my surgeon is fully aware of sclerals and would have recommended them if he thought that a good choice for me.

Do I win the prize for the longest message? By the way I live in Milton Keynes. Any other locals out there?

[Alex]

Shortest?

[Kate Love]

Shorter!

[Tony Stigle]

Deleted by topic administrator 06-05-2001 12:08 AM

[Alex]

Sh!

[Mike Oliver]

re:-- David Or
I saw a young optometrist by that name at Moorfields{ when the contact lens dept. was at Holborn]during the late 1960s. He fitted my 2nd set of sclerals and I understood he went into private practice. I believe it is the same person. If so ,I can only say that he got me through difficult times when I was doing O and A levels and needed some stability.

[freddy]

Dear all
This may not be a short message!

Carol thanks for the encouragement. I too saw a great contact lens man in Hitchen - Mr Shepherd, and his side kick Mr Akay (also practices at Kettering). They tried so hard to get a good fit for me. I live near to Kettering which is not far from Milton Keynes. Email me direct if you want freddy.bull@btinternet.com.

I feel fine generally a month after the op. I still can't read easily and I do feel a bit frustrated by that. I have to remember not to try for too long and to find other things to do. The garden is getting lots of attention! The good news is that my operated eye is really healthy.

[Carole Woodruff]

Freddy

I also saw Mr.Shepherd. He trained with the optometrist I saw in Adelaide. Small world. Will e-mail you.

Am sorry I didn't win the prize for the longest (or shortest) message but it was very therapeutic getting that lot down on "paper"!

[Steve]

Dear All,
Those of you who use sclerals in one eye, do you use soft lenses or rgp's in the other? Have you any side effects using just the one scleral? i.e. aches,dizzyness,any feeling of 'unbalance' between both eyes? I would be grateful to hear any comments. Many thanks.