Is there anyone with KC who childdren have not got it.

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lola261184
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Is there anyone with KC who childdren have not got it.

Postby lola261184 » Fri 13 Oct 2017 10:38 pm

Hi my partner has KC only one seems to be in family at the moment.
Has anyone with KC had children who have not developed the KC x

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Lia Williams
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Re: Is there anyone with KC who childdren have not got it.

Postby Lia Williams » Sat 14 Oct 2017 7:56 pm

Hi Lola,

Although there is some evidence that KC is genetic only about 10% of people with KC have a family member who also has it.

So most people's children aren't affected.

Lia

lola261184
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Re: Is there anyone with KC who childdren have not got it.

Postby lola261184 » Sat 14 Oct 2017 9:03 pm

Thats good to hear i didnt know if once it had started was more frequent to pass down . My partner is only one in hi family we know of x
I saw posts where peoples children have got it just wondered if anbody had never passed it down if that makes sense. Thanks lia

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space_cadet
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Re: Is there anyone with KC who childdren have not got it.

Postby space_cadet » Mon 16 Oct 2017 6:25 pm

as far as I am aware no one in my family has a KC diagnoses aside from me, my rugrat is 5 in January and currently has no sign or indication of KC, if my small goes on to develop KC it will be one of those things and like every other obstacle that has come our way since the small was born we will deal with it.
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind. May 2017 a long cane user who is blind in a once sighted world

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John Smith
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Re: Is there anyone with KC who childdren have not got it.

Postby John Smith » Mon 16 Oct 2017 11:12 pm

Hi Lola,

From the talk that we had a couple of years ago by Mr. Tuft, the stats are something like:

If a parent has KC, then there is a 7% chance of a child developing KC.
If both parents have KC, then (depending on which genes each parent have) the odds are between 7-49%.
John

lola261184
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Re: Is there anyone with KC who childdren have not got it.

Postby lola261184 » Sat 21 Oct 2017 7:49 am

Thank you everone im such a worrier. His parents wear glasses but we dont think they have KC

Broderick
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Re: Is there anyone with KC who childdren have not got it.

Postby Broderick » Sat 04 Nov 2017 10:59 am

This is really reassuring to read! I am considering trying for children and was a bit concerned about passing it down. Also, space_cadet, I like your notion of rolling with it and just dealing with it!I feel like having KC teaches you to do that....always new challenges every year :) I'm sure little ones are the same!

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Re: Is there anyone with KC who childdren have not got it.

Postby Broderick » Sat 04 Nov 2017 10:59 am

This is really reassuring to read! I am considering trying for children and was a bit concerned about passing it down. Also, space_cadet, I like your notion of rolling with it and just dealing with it!I feel like having KC teaches you to do that....always new challenges every year :) I'm sure little ones are the same!

John Thatcher
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Re: Is there anyone with KC who childdren have not got it.

Postby John Thatcher » Sat 04 Nov 2017 11:37 am

To add to the positive messages Lola, I believe I was the only one in my family with KC across many aunts, uncles and cousins and none of my 3 children have it (they were closely monitored) or any of the 3 grandchildren (although they are all under 5 years old at present). I can't think of many people I've come into contact with where it occurs in consecutive generations.
John

lola261184
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Re: Is there anyone with KC who childdren have not got it.

Postby lola261184 » Thu 23 Nov 2017 6:08 pm

Thank you john


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