Post Cross linking help

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

Gowrav
Newbie
Newbie
Posts: 4
Joined: Sat 19 Jun 2010 8:28 pm
Keratoconus: Yes, I have KC
Vision: Spectacles

Post Cross linking help

Postby Gowrav » Fri 11 May 2012 11:31 am

Hey guys,

I have had cross linking in both eyes nearly 2 months ago. Initially the prescriptions for both eyes improved slightly and I just had a eye test at specsavers (due to being discharged from the private clinic) and by left eye (the worser eye) has changed from having astigmatism of -3 to -6.25 and the optician said that this is a big change and could indicate the eye progressing despite having cross linking. I wanted to know while I wait to get in contact with my consultant if this is normal? I know the vision can fluctuate for around a year after the treatment. Any advice is welcome.
Thanks
Gowrav

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: Post Cross linking help

Postby Andrew MacLean » Thu 07 Jun 2012 12:58 pm

Gowrav

I have moved your post to the General Discussion Forum where I think it may attract more hits and possibly some response. I have left a shadow topic in place.

Andrew
Andrew MacLean

krolen
Contributor
Contributor
Posts: 25
Joined: Tue 14 Feb 2012 8:15 pm
Keratoconus: Yes, I have KC
Vision: Spectacles

Re: Post Cross linking help

Postby krolen » Wed 13 Jun 2012 4:14 pm

Hi Gowrav, Im not that long after clx so sadly I'm not able to offer my experience. I would definitely speak to the clicic you had it done at and ask their advice.

liam82
Regular contributor
Regular contributor
Posts: 121
Joined: Sat 08 Jan 2011 1:11 pm
Keratoconus: Yes, I have KC
Vision: I'm coping with no aids

Re: Post Cross linking help

Postby liam82 » Sat 16 Jun 2012 10:39 am

Gowrav, after crosslinking the eye will fluctuate for several months. Mine initially improved, then got worse then improved again.
All over the course of the last year.

Your private clinic should not have just discharged you after 2 months. You should be having regular follow ups over the course of a year

Ring them and ask to see the consultant, as they will be able to tell best whats happening with your eyes

caroline6505
Regular contributor
Regular contributor
Posts: 64
Joined: Wed 27 Apr 2011 4:08 pm
Keratoconus: Yes, I have KC
Vision: Other

Re: Post Cross linking help

Postby caroline6505 » Wed 20 Jun 2012 9:45 pm

Hi

Just out of interest, did you have epi on or off?

I have crosslinking (epi was disrupted rather than removed) done almost a year ago in both eyes (month apart). In my case, I think it took months for things to settle. I would speak to the clinic and see what they have to say. If you're unhappy with what you're being told see a second opinion from another specialist to get some advice.

Best wishes.

Caroline.


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 47 guests