Rosemary
I had these little dots in my sight following each of my grafts; they were most noticeable in low light, or when there were lots of sources of artificial light as in street lights.
I think I was looking at the sutures. They varied in size and intensity, I think due to the healing of my grafts into their respective eyes.
When the sutures were removed, they went away altogether.
Well done. Too bad Duke won't go into a horse box. I was looking forward to cheering you on at the Beijing Olympics.
Andrew
Good luck to Rosemary
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Andrew MacLean
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Re: Good luck to Rosemary
Andrew MacLean
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rosemary johnson
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Re: Good luck to Rosemary
Tee hee! - to be fair to Duke........ the week before he "moved house" to this field, he had been coaxed into a horsebox, taken off to the vets' place, pumped full of sedatives, and had needles stuck into his face to drain a swelling round his eye.
Not surprised he was saying "Not again, thanks!" at the thought of going in a horsebox again!
Strange how it owrks out, that I ride a horse who has had eye problems. But that's how it goes...
or went.
When I first knew him, he had a swollen area round the nasal end and underneath his left eye. He got taken to the vet to have the fluid drained off once, then the vet drained it again on a visit.
The verdict seemed to be that the vet though she could keep draining it, and it would just collect more fluid and swell up again.
SO far months, we just had to keep an eye on it, see how swollen it looked, and if it was getting any worse.
It went up and down a bit, but stayed pretty constant overall.
If it had got a lot worse, the vet said, we'd ahve to bring him in again and she'd have to cauterise (??) it, so no ore fluid could collect.
Then, only a few months ago, we suddenly realised it wasn't swollen any more - both eyes looked the same size.
I've got a photo of me riding him where you can just see the swollen part - but you have to know to look, as he has paler bits of fur round his eyes anyway.
How that all happened, we don't know. Maybe he had a bit of a blockage in a tear duct that eventually cleared. But it's fine now.
He just rolls the whites of his eyes at me when he doesn't want to be groomed!
Rosemary
PS: still no news on tests or onything. Going to change to having the antihistamines in the evening as feeling tired all day and awake all night.
Did some google searching,and it seems there have been reports of someone getting "steroid psychosis" on the same intravenous dose of dexamethasone I was given in the op. Also of someone who had it just from puffin gmy type of asthma inhalers.
So increasingly convinced what I need to do is to cut down on, and stay off, steroids, and hope all returns to normal.
Then to sort out the "balance"/"motion sense" and memory problems!
Not surprised he was saying "Not again, thanks!" at the thought of going in a horsebox again!
Strange how it owrks out, that I ride a horse who has had eye problems. But that's how it goes...
or went.
When I first knew him, he had a swollen area round the nasal end and underneath his left eye. He got taken to the vet to have the fluid drained off once, then the vet drained it again on a visit.
The verdict seemed to be that the vet though she could keep draining it, and it would just collect more fluid and swell up again.
SO far months, we just had to keep an eye on it, see how swollen it looked, and if it was getting any worse.
It went up and down a bit, but stayed pretty constant overall.
If it had got a lot worse, the vet said, we'd ahve to bring him in again and she'd have to cauterise (??) it, so no ore fluid could collect.
Then, only a few months ago, we suddenly realised it wasn't swollen any more - both eyes looked the same size.
I've got a photo of me riding him where you can just see the swollen part - but you have to know to look, as he has paler bits of fur round his eyes anyway.
How that all happened, we don't know. Maybe he had a bit of a blockage in a tear duct that eventually cleared. But it's fine now.
He just rolls the whites of his eyes at me when he doesn't want to be groomed!
Rosemary
PS: still no news on tests or onything. Going to change to having the antihistamines in the evening as feeling tired all day and awake all night.
Did some google searching,and it seems there have been reports of someone getting "steroid psychosis" on the same intravenous dose of dexamethasone I was given in the op. Also of someone who had it just from puffin gmy type of asthma inhalers.
So increasingly convinced what I need to do is to cut down on, and stay off, steroids, and hope all returns to normal.
Then to sort out the "balance"/"motion sense" and memory problems!
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rosemary johnson
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Re: Good luck to Rosemary
Well!
We have, if not a definitive "answer", at least a working hypothesis.
And I am very annoyed about .... someone, something, somewhere between my GP
surgery and the hospital path lab!
Rang GPs this morning. Got someone who didn't really know what I was talking about, didn't understand what she was looking at on her computer screen, etc etc.
She said she'd get Ruth, the asthma nurse, to phone me.
Gave up waiting and set out to see Duke, and Ruth rang half way to the tube station.
She has got in touch with the lab to whom my sample was sent, by arrangement with the nice anasesthetist at the eye hospital.
They say that the results we have is what they did.
SO! I asked the Eye Hospital if I could, please, be tested for the presence of metabolites (that is, qaste products produced by the body's processing of chemicals) of the opiod pain killers I was given, and especially any odd or unusual ones, as I suspected I may have been breaking the stuff down in an unusual way that took longer than normal (hence the hallucinations going on for longer than one would expect the stuff to be hanging around for.
What happened?
I have a piece of paper with a list of street drugs, all labelled "Negative" except, ironically, for the one whose legitimate use is by vets to sedate horses, which is labelled "NOt detected".
Apparently, that is ONE of the things that my friendly anaesthetist was recommended to tell put on the request form. He relayed this to my GP, who agreed to send off the sample with appropriate request.
I haven't seen the form.
Had enough difficulty finding anyone who knew what on earth was going on when I brought the sample in.
Lab apparently did the street drugs but and nothing else.
"Did they say why not?" I asked Ruth, but she hadn't asked.
SHe says she will contact them again and ask them to dig out the request form, to see what was actually on it, and to ask them why they didn't do the bits on the form that they didn't do (assuming they were onthe form, of course.....!)
I await results..... I can also sense yet another Freedom of Information Act request coming on - not to mention a formal complaint, though whether against the lab, the GP's, or both remains to be seen.
I am, naturally, very annoyed at this!!! - not least because, in order to get the best possible sample for testing, I had got out my oils, massage machines, exercide routines, etc, to try to tease out as much as I could of the STUFF that was still at the time coming out of long-unexercised muscles and triggering bits of recurrent "bad trip" - and if I'd misjudged it and got out too much at once, it could have been very nasty indeed.
Hiss, spit, rage, ...... etc!
Phoned hospital to pass on this news to nice anaesthetist, and he rang back and we had quite a chat.
While I was out in the field grooming Duke, as it happens.
I said that I'd eventually spotted a pattern to what in my life was linked to the recent bits of "bad trip" (like nightmares but awake) - puffing asthma inhalers in the evening, which I'd been doing more of with the hay fever season having come along.
He was ahead of me there in asking what sort of inhalers - the brown ones, which are supposed to prevent future attacks, and are corticosteroids, just like dexamethasone - and also in commenting on the nasty effects that steroids can have, including psychosis.
He asked if I'd been taking them in January at the time of the op - I can't remember!
I've had them for years, and not had this sort of trouble before, so if the problem is steroids, I've become hypersensitised tothem recently. Neither I nor Ruth had known whether that is possible, but it is the story of my life as I've been getting more hypersensitive to more and more things - I didn't used to be allergic to horses, cats, the Racing Post, etc etc! He agrees it is a phenomenon of the times - lots of people getting lots of hypersensitivities or allergies.
I've never liked pumping myself full of steroids all the time, so for years now I've been starting up the brown-inhaler regime at times - such as hay fever season - when I've started using the blue ("reliever") inhalers more and more, and stopped again when the asthma's better under control, pollen count dropping again, etc. And I've been wondering if this strategy might have meant I've been building up either a sensitivity or indeed a resistance to the stuff - I've not been convinced for ages now it was actually making much difference. Again, Ruth didn't know the answer to that one.
I was given a dose of dexa. equivalent to 40 puffs of brown inhaler all in one go, intravenously, during the op. I suggested this might have been enough - particularly in previous on-off regime had led to resistance - to cause all the hallucinations,e tc etc, as a case of steroid psychosis - or to have caused current hypersensitivity levels.
He was surprised - says they give 8mg intravenous dexa. often and it doesn't produce my results normally!
Very good news for all those concerned, I'm sure.
I said where on google I'd found previous case history which he said he'd look up; also of reports of steroid psychosis from the same sort of inhalers.
I'm oging to adopt as a working hypothesis that the way to avoid any recurrences is to avoid steroids as far as possible - have changed my inhalers and will be talking to my new consultant about whether it is possible to adjust eyedrops.
We talked a bit about how to prevent anything similar happening again, eg. if I'm rushed to hospital by ambulance after coming off a horse.
Generally, impression is that I'm somewhat unusual (!!!!!! - I can think of a few people who might be reading this and will be emitted hollow laughter - yup, you know who you are!) but progress is being made.
Now I await news from Ruth of why lab acted as they did. And being able to get emails to the eye hospital again.
Duke, BTW, had duly fallen asleep standing in the sub while I gabbed onthe phone - and was sufficiently miffed to be rudely awoken by me going back and starting brushing him again that he tried to bite a chunk out of my arm. Oh dear, yet another bruise!
Rosemary
We have, if not a definitive "answer", at least a working hypothesis.
And I am very annoyed about .... someone, something, somewhere between my GP
surgery and the hospital path lab!
Rang GPs this morning. Got someone who didn't really know what I was talking about, didn't understand what she was looking at on her computer screen, etc etc.
She said she'd get Ruth, the asthma nurse, to phone me.
Gave up waiting and set out to see Duke, and Ruth rang half way to the tube station.
She has got in touch with the lab to whom my sample was sent, by arrangement with the nice anasesthetist at the eye hospital.
They say that the results we have is what they did.
SO! I asked the Eye Hospital if I could, please, be tested for the presence of metabolites (that is, qaste products produced by the body's processing of chemicals) of the opiod pain killers I was given, and especially any odd or unusual ones, as I suspected I may have been breaking the stuff down in an unusual way that took longer than normal (hence the hallucinations going on for longer than one would expect the stuff to be hanging around for.
What happened?
I have a piece of paper with a list of street drugs, all labelled "Negative" except, ironically, for the one whose legitimate use is by vets to sedate horses, which is labelled "NOt detected".
Apparently, that is ONE of the things that my friendly anaesthetist was recommended to tell put on the request form. He relayed this to my GP, who agreed to send off the sample with appropriate request.
I haven't seen the form.
Had enough difficulty finding anyone who knew what on earth was going on when I brought the sample in.
Lab apparently did the street drugs but and nothing else.
"Did they say why not?" I asked Ruth, but she hadn't asked.
SHe says she will contact them again and ask them to dig out the request form, to see what was actually on it, and to ask them why they didn't do the bits on the form that they didn't do (assuming they were onthe form, of course.....!)
I await results..... I can also sense yet another Freedom of Information Act request coming on - not to mention a formal complaint, though whether against the lab, the GP's, or both remains to be seen.
I am, naturally, very annoyed at this!!! - not least because, in order to get the best possible sample for testing, I had got out my oils, massage machines, exercide routines, etc, to try to tease out as much as I could of the STUFF that was still at the time coming out of long-unexercised muscles and triggering bits of recurrent "bad trip" - and if I'd misjudged it and got out too much at once, it could have been very nasty indeed.
Hiss, spit, rage, ...... etc!
Phoned hospital to pass on this news to nice anaesthetist, and he rang back and we had quite a chat.
While I was out in the field grooming Duke, as it happens.
I said that I'd eventually spotted a pattern to what in my life was linked to the recent bits of "bad trip" (like nightmares but awake) - puffing asthma inhalers in the evening, which I'd been doing more of with the hay fever season having come along.
He was ahead of me there in asking what sort of inhalers - the brown ones, which are supposed to prevent future attacks, and are corticosteroids, just like dexamethasone - and also in commenting on the nasty effects that steroids can have, including psychosis.
He asked if I'd been taking them in January at the time of the op - I can't remember!
I've had them for years, and not had this sort of trouble before, so if the problem is steroids, I've become hypersensitised tothem recently. Neither I nor Ruth had known whether that is possible, but it is the story of my life as I've been getting more hypersensitive to more and more things - I didn't used to be allergic to horses, cats, the Racing Post, etc etc! He agrees it is a phenomenon of the times - lots of people getting lots of hypersensitivities or allergies.
I've never liked pumping myself full of steroids all the time, so for years now I've been starting up the brown-inhaler regime at times - such as hay fever season - when I've started using the blue ("reliever") inhalers more and more, and stopped again when the asthma's better under control, pollen count dropping again, etc. And I've been wondering if this strategy might have meant I've been building up either a sensitivity or indeed a resistance to the stuff - I've not been convinced for ages now it was actually making much difference. Again, Ruth didn't know the answer to that one.
I was given a dose of dexa. equivalent to 40 puffs of brown inhaler all in one go, intravenously, during the op. I suggested this might have been enough - particularly in previous on-off regime had led to resistance - to cause all the hallucinations,e tc etc, as a case of steroid psychosis - or to have caused current hypersensitivity levels.
He was surprised - says they give 8mg intravenous dexa. often and it doesn't produce my results normally!
Very good news for all those concerned, I'm sure.
I said where on google I'd found previous case history which he said he'd look up; also of reports of steroid psychosis from the same sort of inhalers.
I'm oging to adopt as a working hypothesis that the way to avoid any recurrences is to avoid steroids as far as possible - have changed my inhalers and will be talking to my new consultant about whether it is possible to adjust eyedrops.
We talked a bit about how to prevent anything similar happening again, eg. if I'm rushed to hospital by ambulance after coming off a horse.
Generally, impression is that I'm somewhat unusual (!!!!!! - I can think of a few people who might be reading this and will be emitted hollow laughter - yup, you know who you are!) but progress is being made.
Now I await news from Ruth of why lab acted as they did. And being able to get emails to the eye hospital again.
Duke, BTW, had duly fallen asleep standing in the sub while I gabbed onthe phone - and was sufficiently miffed to be rudely awoken by me going back and starting brushing him again that he tried to bite a chunk out of my arm. Oh dear, yet another bruise!
Rosemary
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Andrew MacLean
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Re: Good luck to Rosemary
Rosemary
One step forward ...
At least you have the working hypothesis, which is an advance on the day before. Actually it makes perfectly good sense to me that you take a medicine on and off for years so that your body starts to be intolerant then you get a massive hit of the same medicine and then your body goes "wait a minute!"
So it makes sense to a complete layman, now all you have to do is get the clever people to test the hypothesis and give it a thumbs up or a thumbs down!
At least Duke got a snooze out of it all.
Take care.
Andrew
One step forward ...
At least you have the working hypothesis, which is an advance on the day before. Actually it makes perfectly good sense to me that you take a medicine on and off for years so that your body starts to be intolerant then you get a massive hit of the same medicine and then your body goes "wait a minute!"
So it makes sense to a complete layman, now all you have to do is get the clever people to test the hypothesis and give it a thumbs up or a thumbs down!
At least Duke got a snooze out of it all.
Take care.
Andrew
Andrew MacLean
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Hilary Johnson
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Re: Good luck to Rosemary
Hi
Well, I was sceptical, but what I've found on the internet, and the fact that it seems to be working, do seem to make steroids sound like the cause.
Good. And probably easier to avoid in an emergency than anaesthetics.
But I don't understand how it links in with the previous neck-injury problems - any clues?
(I'm sure I have sometimes said something about a cynic being a disillusioned perfectionist, and I thought it was an original thing to say.)
Hilary
Well, I was sceptical, but what I've found on the internet, and the fact that it seems to be working, do seem to make steroids sound like the cause.
Good. And probably easier to avoid in an emergency than anaesthetics.
But I don't understand how it links in with the previous neck-injury problems - any clues?
(I'm sure I have sometimes said something about a cynic being a disillusioned perfectionist, and I thought it was an original thing to say.)
Hilary
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rosemary johnson
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Re: Good luck to Rosemary
A disillusioned perfectist sounds like a wonderful candidate for becoming a cynic.
What is the difference between a perfectionist and an idealist? - discuss.
[Possible answer: a perfectionist may expect themselves to be right all the time, and disillusionment may become self-destructive; an idealist expects all the world to be right. Can one apply perfectionism outisde oneself? - well, to those around one, but to third parties? Yes, but is this strictly perfectionism? I digress......]
Yours may be an original thing to say - the person I know/knew (he moved to Spain) who used to say the thing about idealists may have thought it original to him, or may have been quoting - but I'm not sure I'd trust his attribution (he's a wind=up merchant).
I digress again.
Neck injury:
Well......
I think it is possible that both the original neck injury and the worsening of its effects in the op may have been something to do with getting very stiff, and that getting a stiff neck somehow caught up (a) blood vessel(s) and restricted blood flow.
On the course where I got the neck kinjury, I remember feeling very stiff - I described it around the time as "feeling like I was seizing up with lockjaw", and the strange feeling of going swimming and trying to unstiffen floating in the water (I was doing more bobbing about lazily than swimming up and down).
The stiffness wore off long before the rest of the odd effects, so quite how it could have trapped vessel(s) that stayed trapped for over 6 months, I do not know.
I think I was also getting stiff an dtensed up (though less so) on the day when whatever-it-was untrapped itself, so it could have been that relaxing after that did a better job of relaxing cleanly, so the bits trapped by getting stiff before worked loose properly. Like, the best way to relax something is to tense it up, then relax it (cf. ante-natal classes).
All this is speculation,r eally, because my memories are rather vague, and "reverse engineering" this stuff 9 years on can only really be guesswork.
Several of the substances I was given have listed side-effects of "rhabdomyolysis" - muscles set solid like iron rods, literally, pronounced with stress on the "ol".
Better known to some of us in its equine version, variously known as Monday Morning Disease, Setfast, Tying up or the equally unspellable, unpronounceable Azoturia.
The anaesthetists have to be aware of it, because if your lung muscles seize up, you stop breathing.
I asked them at the meeting on 2nd May if I was rhabdomyolysing (if there is such a word). They said it wasn't affecting my lungs and they hadn't noticed anything - but once I was lying there flat and flat out, if my neck or other skeletal muscles had been tensing up, they wouldn't necessarily have known - because they wouldn't identify it as soemthing to check for and take action on if it wasn't affecting my breathing - so it might have been happening and they not know.
They sounded sceptical, looked at each other quizzically..... but agreed they couldn't be sure I hadn't been getting stiff neck and shoulders while asleep that had loosened up again before I woke up.
It might actually explain quite a bit about why my muscles all felt so weird. I don't know what a horse geting over Monday Morning Disease feels like, but mine were mighty odd.
[That's one thing that totally freaked me out - I was expecting I might be waking up and non-compos mentis an dnot knowing where I was or who was talking to me, etc - what I was not expecting was to be suddenly wide awake with a very sudden jerk (like when you're woken up in the night by a bang you think might be a burglar) knowing exactly where I was, why, what had happened. etc etc..... but not able to move a single muscle, or so it felt. Apparently, I was able to move more than I thought, but was getting no feedback at all. Like I was suddenly fully conscious in one jump and paralysed.]
Steroid? SOmething else? combination? Who knows?
I have it on record of stiffening up all over - but not affecting breathing at all - under influence of steroid: when my (supply epithet) dentist used the adrenaline on me recently. I was sitting in his waiting room quivering and going rigid all over, and trying to tell myself hard to make things relax before I trapped that thing in my neck again....... with only partial success.
Link between traiing course neck injury and steroids a big mystery..... unless one wants to speculate a steroid stiffening reaction based on endogenous adrenaline and/or testosterone (and asthma in halers, being in country surrounded by o*l s**d r*p* fields! I certainly had a screwed up adrenaline system thereafter, but it would be a big jump of speculation.
Friendly anaesthetist sounded sceptical about rhabdomyolysis from steroid reaction causing the added brain damage.
Friendly anaesthetist, me thinks, doesn't like me talking about "brain damage" at all.
Can't rule it out, not pouring on cold water like some of my suggestions.
Neurologists' dismissive reaction may be right after all - but gave so much impression of not bothering to consider the suggestion or explain Why Not that I'm more inclined to wonder what my GP wrote to him than to take it at face value.
And it ain't wearing off so far........
Does opening and reading a letter that makes one absolutely furious result in sudden rush of testosterone to the brain???? - if so, steroid reaction could possibly explain sudden brief onset of vision of strangling person who'd sent me letter saying they'd taxed my redundancy money at 40% when it should be tax free. I was certainly very, very furious!!!!!!!!!!!
If so, I'll live in hope the sensitivity will slowly fade. The screwed up adrenaline reactions did calm down eventually.
Meanwhile, I still have the muscles feeling like jelly and rapidly exhausted, which you may also have seen in the stuff on steroid reactions.
Well, that's thoughts...... very vague, but emories of neck injury surroundings are (I'm glad to say, in other senses).
Rosemary
What is the difference between a perfectionist and an idealist? - discuss.
[Possible answer: a perfectionist may expect themselves to be right all the time, and disillusionment may become self-destructive; an idealist expects all the world to be right. Can one apply perfectionism outisde oneself? - well, to those around one, but to third parties? Yes, but is this strictly perfectionism? I digress......]
Yours may be an original thing to say - the person I know/knew (he moved to Spain) who used to say the thing about idealists may have thought it original to him, or may have been quoting - but I'm not sure I'd trust his attribution (he's a wind=up merchant).
I digress again.
Neck injury:
Well......
I think it is possible that both the original neck injury and the worsening of its effects in the op may have been something to do with getting very stiff, and that getting a stiff neck somehow caught up (a) blood vessel(s) and restricted blood flow.
On the course where I got the neck kinjury, I remember feeling very stiff - I described it around the time as "feeling like I was seizing up with lockjaw", and the strange feeling of going swimming and trying to unstiffen floating in the water (I was doing more bobbing about lazily than swimming up and down).
The stiffness wore off long before the rest of the odd effects, so quite how it could have trapped vessel(s) that stayed trapped for over 6 months, I do not know.
I think I was also getting stiff an dtensed up (though less so) on the day when whatever-it-was untrapped itself, so it could have been that relaxing after that did a better job of relaxing cleanly, so the bits trapped by getting stiff before worked loose properly. Like, the best way to relax something is to tense it up, then relax it (cf. ante-natal classes).
All this is speculation,r eally, because my memories are rather vague, and "reverse engineering" this stuff 9 years on can only really be guesswork.
Several of the substances I was given have listed side-effects of "rhabdomyolysis" - muscles set solid like iron rods, literally, pronounced with stress on the "ol".
Better known to some of us in its equine version, variously known as Monday Morning Disease, Setfast, Tying up or the equally unspellable, unpronounceable Azoturia.
The anaesthetists have to be aware of it, because if your lung muscles seize up, you stop breathing.
I asked them at the meeting on 2nd May if I was rhabdomyolysing (if there is such a word). They said it wasn't affecting my lungs and they hadn't noticed anything - but once I was lying there flat and flat out, if my neck or other skeletal muscles had been tensing up, they wouldn't necessarily have known - because they wouldn't identify it as soemthing to check for and take action on if it wasn't affecting my breathing - so it might have been happening and they not know.
They sounded sceptical, looked at each other quizzically..... but agreed they couldn't be sure I hadn't been getting stiff neck and shoulders while asleep that had loosened up again before I woke up.
It might actually explain quite a bit about why my muscles all felt so weird. I don't know what a horse geting over Monday Morning Disease feels like, but mine were mighty odd.
[That's one thing that totally freaked me out - I was expecting I might be waking up and non-compos mentis an dnot knowing where I was or who was talking to me, etc - what I was not expecting was to be suddenly wide awake with a very sudden jerk (like when you're woken up in the night by a bang you think might be a burglar) knowing exactly where I was, why, what had happened. etc etc..... but not able to move a single muscle, or so it felt. Apparently, I was able to move more than I thought, but was getting no feedback at all. Like I was suddenly fully conscious in one jump and paralysed.]
Steroid? SOmething else? combination? Who knows?
I have it on record of stiffening up all over - but not affecting breathing at all - under influence of steroid: when my (supply epithet) dentist used the adrenaline on me recently. I was sitting in his waiting room quivering and going rigid all over, and trying to tell myself hard to make things relax before I trapped that thing in my neck again....... with only partial success.
Link between traiing course neck injury and steroids a big mystery..... unless one wants to speculate a steroid stiffening reaction based on endogenous adrenaline and/or testosterone (and asthma in halers, being in country surrounded by o*l s**d r*p* fields! I certainly had a screwed up adrenaline system thereafter, but it would be a big jump of speculation.
Friendly anaesthetist sounded sceptical about rhabdomyolysis from steroid reaction causing the added brain damage.
Friendly anaesthetist, me thinks, doesn't like me talking about "brain damage" at all.
Can't rule it out, not pouring on cold water like some of my suggestions.
Neurologists' dismissive reaction may be right after all - but gave so much impression of not bothering to consider the suggestion or explain Why Not that I'm more inclined to wonder what my GP wrote to him than to take it at face value.
And it ain't wearing off so far........
Does opening and reading a letter that makes one absolutely furious result in sudden rush of testosterone to the brain???? - if so, steroid reaction could possibly explain sudden brief onset of vision of strangling person who'd sent me letter saying they'd taxed my redundancy money at 40% when it should be tax free. I was certainly very, very furious!!!!!!!!!!!
If so, I'll live in hope the sensitivity will slowly fade. The screwed up adrenaline reactions did calm down eventually.
Meanwhile, I still have the muscles feeling like jelly and rapidly exhausted, which you may also have seen in the stuff on steroid reactions.
Well, that's thoughts...... very vague, but emories of neck injury surroundings are (I'm glad to say, in other senses).
Rosemary
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Andrew MacLean
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Re: Good luck to Rosemary
Rosemary
The saga seems to have no end. Thank you for posting, and for taking time. You are an example to us all of ways in which the two-liner can not convey everything.
You have the support of all of us as you continue to make your way through this labyrinth.
Andrew
The saga seems to have no end. Thank you for posting, and for taking time. You are an example to us all of ways in which the two-liner can not convey everything.
You have the support of all of us as you continue to make your way through this labyrinth.
Andrew
Andrew MacLean
-
rosemary johnson
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Re: Good luck to Rosemary
Andrew, you are so kind!!!! - the more normal reaction is to think I rabbit on incessantly about things no-one else is really interested in.
As I'm sure my sister would tell you....... !
Rosemary
As I'm sure my sister would tell you....... !
Rosemary
-
rosemary johnson
- Champion
- Posts: 1478
- Joined: Tue 19 Oct 2004 8:42 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: East London, UK
Re: Good luck to Rosemary
Thought I should do something useful earlier.... like housekeeping.
Nope, not hoovering or ironing. Clearing out the old unwanted messages from some of my email mailboxes.
Found one I wrote just a few days before the op.
It was talking about possible advantages of having the op..... like being able to see the traffic coming up behind me when riding out on the road - and feeling less dizzy when riding across field or along paths.
Ha ha.
Ha bloody ha.
balance and dizziness is still giving periodic problems.
Email in question then went on to talk about the prospect i might be able to get my bike out, service it and start cycling about again.
I stopped reading it at that point, logged off in a hurry and went to do something else instead.
Haven't even dared to think about trying to cycle again - or if that is going to be possible.
Waaaarghhhhh!
Rosemary
Nope, not hoovering or ironing. Clearing out the old unwanted messages from some of my email mailboxes.
Found one I wrote just a few days before the op.
It was talking about possible advantages of having the op..... like being able to see the traffic coming up behind me when riding out on the road - and feeling less dizzy when riding across field or along paths.
Ha ha.
Ha bloody ha.
balance and dizziness is still giving periodic problems.
Email in question then went on to talk about the prospect i might be able to get my bike out, service it and start cycling about again.
I stopped reading it at that point, logged off in a hurry and went to do something else instead.
Haven't even dared to think about trying to cycle again - or if that is going to be possible.
Waaaarghhhhh!
Rosemary
-
rosemary johnson
- Champion
- Posts: 1478
- Joined: Tue 19 Oct 2004 8:42 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: East London, UK
Re: Good luck to Rosemary
Well, I have found out what happened to the sample and the why the odd test results!
The request form had a space for "clinical details" in which my GP had written "adverse reaction to remifentinyl and/or opioids".
The "Request" box that tells them what to test for just said "Opioids".
The lab it went to had never heard of remifentanyl, and had certainly never tested for it. But they didn't worry about that, because it wasn't in the "request" box. They knew what to do with what it did say in the request box - "opioids" - send it off to another local hospital lab.
The second hospital had never done a test for remifentanyl before either.
They had done a test for its relative, fentanyl.
Did they do a test for fentanyl metabolites? - nope; that wasn't what they were asked for! The request just asked for "opioids".
So they did what they'd normally do when asked to teest for opioids (or opiates, presumably): run it through their street drugs testing routine.
Aaarghhhhhh!!!!!!!!!!!
wibble wbble, whimper, whimper, SCREEEEEEEEAAAAAMMM!!!
Ruth has found out the name of the person to refer it to, and exactly what to write where, to try again - in which case it will probably have to go off to a completely different third-party hospital. And she's written out a form and put it and a sample bottle in the "letters for collection by patients" file in case I want to try again.
If they find anything at this remove, I'll be as surprised as my friendly anaesthetist.
Meanwhile, after going out with new lens in to meeting in house full of cats on hay fevery day and in bright sun yesterday, I got home with rather sore and sticky eye.
Removed lens, applied dexa. eye drops - also to othr eye as advised for hay fever. And another dose latr.....
SPent most of last night lying awake tossing and turning with grafted eye feeling sore, wondering if putting new lens in wasn't doing it much good and if not what that meant.... and what might happen..... and found myself wanting to scream and throw things and hit someone and if That Surgeon had walked into the room he'd have regretted it...
Got up, went to kitchen to get mug of hot choc, piece of ginger cake and British HOrse Society annual report to read.
Not the worst piece of "bad trip" by a very long way.... but if I'm getting that near to one on just 8 eye drops of dexa, that's scarey.
Can't wait to get to see new consultant or her team and talk about changing the eye drops.
Meanwhile, my emails are apparently still not getting through to said friendly anaesthetist.....
Rosemary
The request form had a space for "clinical details" in which my GP had written "adverse reaction to remifentinyl and/or opioids".
The "Request" box that tells them what to test for just said "Opioids".
The lab it went to had never heard of remifentanyl, and had certainly never tested for it. But they didn't worry about that, because it wasn't in the "request" box. They knew what to do with what it did say in the request box - "opioids" - send it off to another local hospital lab.
The second hospital had never done a test for remifentanyl before either.
They had done a test for its relative, fentanyl.
Did they do a test for fentanyl metabolites? - nope; that wasn't what they were asked for! The request just asked for "opioids".
So they did what they'd normally do when asked to teest for opioids (or opiates, presumably): run it through their street drugs testing routine.
Aaarghhhhhh!!!!!!!!!!!
wibble wbble, whimper, whimper, SCREEEEEEEEAAAAAMMM!!!
Ruth has found out the name of the person to refer it to, and exactly what to write where, to try again - in which case it will probably have to go off to a completely different third-party hospital. And she's written out a form and put it and a sample bottle in the "letters for collection by patients" file in case I want to try again.
If they find anything at this remove, I'll be as surprised as my friendly anaesthetist.
Meanwhile, after going out with new lens in to meeting in house full of cats on hay fevery day and in bright sun yesterday, I got home with rather sore and sticky eye.
Removed lens, applied dexa. eye drops - also to othr eye as advised for hay fever. And another dose latr.....
SPent most of last night lying awake tossing and turning with grafted eye feeling sore, wondering if putting new lens in wasn't doing it much good and if not what that meant.... and what might happen..... and found myself wanting to scream and throw things and hit someone and if That Surgeon had walked into the room he'd have regretted it...
Got up, went to kitchen to get mug of hot choc, piece of ginger cake and British HOrse Society annual report to read.
Not the worst piece of "bad trip" by a very long way.... but if I'm getting that near to one on just 8 eye drops of dexa, that's scarey.
Can't wait to get to see new consultant or her team and talk about changing the eye drops.
Meanwhile, my emails are apparently still not getting through to said friendly anaesthetist.....
Rosemary
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