Graft waiting list

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
Ste_Russ
Contributor
Contributor
Posts: 16
Joined: Sun 17 Jun 2007 7:22 pm
Keratoconus: Yes, I have KC
Vision: Other

Graft waiting list

Postby Ste_Russ » Fri 25 Jan 2008 3:57 pm

Hello All

I ve been entered on to the transplant waiting list .......after asking few questions and receiving good answers I forgot to ask how long the wait is for a tansplant :roll: . Apparently I will need a large section of cornea replacing due to the defect been in the lower left quadrant of my left eye .

I was just wondering iF anyone has a ruff idea of the wait I will have

I am under Dr Cota , Renee Eye Clinic , St Helens , Merseyside .


Many Thanks

Chris Pope
Contributor
Contributor
Posts: 40
Joined: Sun 13 Jan 2008 7:39 pm
Keratoconus: Yes, I have KC
Vision: On the waiting list for a graft

Re: Graft waiting list

Postby Chris Pope » Fri 25 Jan 2008 11:11 pm

I was originally told that it would be a 3 months waiting list before a graft would be available from the Bristol Eye bank. To my surprise I got a call this week (7 days after the request) to be told my op would be carried out on the 6th of February. Now I don't know if this if the norm or if I just got lucky. I do have Bupa cover but I don't think that has any bearing on the graft list but it may have helped with the theatre slot.The admin manger at the hospital seemed just as surprised as me , my theory is the consultant has rushed it through before I could change my mind!!!!!
good luck.
Chris

User avatar
Ste_Russ
Contributor
Contributor
Posts: 16
Joined: Sun 17 Jun 2007 7:22 pm
Keratoconus: Yes, I have KC
Vision: Other

Re: Graft waiting list

Postby Ste_Russ » Sat 26 Jan 2008 11:55 am

Thanks for reply Chris

I 'll just have to wait I suppose

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: Graft waiting list

Postby Andrew MacLean » Sat 26 Jan 2008 12:45 pm

The honest answer to your question is that the time varies. One variable is your age. they don't much like grafting tissue from old donors into young eyes.

If it is any help, the longest I had to wait was just short of three months.

Andrew
Andrew MacLean

User avatar
Ste_Russ
Contributor
Contributor
Posts: 16
Joined: Sun 17 Jun 2007 7:22 pm
Keratoconus: Yes, I have KC
Vision: Other

Re: Graft waiting list

Postby Ste_Russ » Sat 26 Jan 2008 3:31 pm

Thanks Andrew

They did advise been 39 I might have to wait longer for a younger donor

nan64
Newbie
Newbie
Posts: 4
Joined: Thu 18 Oct 2007 10:11 am
Keratoconus: No, I don't suffer from KC

Re: Graft waiting list

Postby nan64 » Sun 27 Jan 2008 8:50 pm

My Son has been waiting since October for a corneal graft at the Bristol eye hospital. He was initially told it would be 3 to 4 months but last week had a telephone call offering an appointment in April which will be roughly about 6 months.

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: Graft waiting list

Postby Andrew MacLean » Mon 28 Jan 2008 7:15 am

nan

Welcome to the forum

I know that the wait can be frustrating, but as your son now has a date, we all hope that his surgery is a big success, and that his sight returns quickly.

Tell him he is in our thoughts, and maybe even direct him to the forum!

All the best

Andrew
Andrew MacLean

User avatar
nicola jayne
Regular contributor
Regular contributor
Posts: 109
Joined: Tue 21 Feb 2006 12:34 pm
Location: lanelli
Contact:

Re: Graft waiting list

Postby nicola jayne » Mon 28 Jan 2008 1:37 pm

Hiya
I also waited 6 months for a graft, I am 27 and live in wales.
just incase that helped :P

kind regards
nicola


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 35 guests