corneal specialists New York

[dmac831]

Hello, I am new to this site and have appreciated many of the personal experiences that so many have shared. My situation is pretty much the extreme. I have 20/200 vision with a lens or glass (in the good eye!). I am researching corneal specialists and getting a second opinion soon. Was wondering if anyone out there has had a positive experience with any New York city or area doctors. One other thing, how bad does the eye look post-op? Some of the post-op photos look horrific and I can't imagine from the photos that the post-op pain be any less than excruciating. I appreciate any replies and thanks for your time!

[Andrew MacLean]

dmac831

Welcome to the forum.

I am afraid that pohotographs can be deceptive. for my part I'd describe post op pain as "minimal". I was written up for painkillers, but didn't need any.

I don't know about New York city doctors, but I am pretty sure that there must be some ophthalmologists doing good work there.

All the best, let us know how you get on.

Andrew

[NYC_Desi_Kid]

Hi,

I am also a resident in NYC with Keratoconus, and am a patient at Laser and Corneal Surgery Associates

http://www.lasiknyc.com/

Hope this helps.

[Andrew MacLean]

NYC_Desi_Kid

Welcome friend!

My family came from Chicago back to Scotland, but I am still glad to meet folks from the Big Apple!

Anyone lese from NYV out there. We have a growing contribution to our on line community from the United States, along with folks from the rest of Europe, from Australia, New Zealand, Egypt and all sorts of places

Andrew

[dmac831]

Thank you for the recent replies, appreciate the support and any information that can help in this agonizing decision.
For the NYC reply from Desi kid regarding the lasiknyc site, have you had a corneal transplant? Are you waiting, deciding. post-op? I am in the deciding phases for 4 months now and can barely see this computer well enough to type this response, UGH!! For all those who have gone through with the surgeries, wishing all the best on a healthy and rapid road to recovery!
Thanks so much!

[Andrew MacLean]

dmac831

The important thing in all this is that you are in control of your treatment.

If you decide to go ahead with transplant surgery, then we all wish you well. If not; we wish you well with that, too. I have found this a good place to ask questions and a good place to share experiences.

Andrew

[NYC_Desi_Kid]

Thank you for the warm welcome. I have actually visited this forum quite frequently over the past year or so, but only posted for the first time yesterday.

I am a 29 year-old male, born and raised in New York. I was diagnosed with KC when I was 13 years old, and have been wearing RGPs since then.

The KC is more advanced in my left eye, but I also have it in my right eye. One year ago, I suffered my first case of hydrops in my left eye. That was a very scary and trying time, but fortunately they hydrops cleared up in about 6 weeks. I cannot tell you how much comfort I received from this forum during the time of my hydrops, reading about others' experiences and knowing that there was light at the end of the tunnel.

In terms of where I am today, I am still getting by fairly well with my RGPs. I can wear them in my eyes continously for 14 hours or so, per day, before my eyes start to really get tired. Using Refresh Liquigel eye drops all day while wearing RGPs keeps them lubricated and fitting nicely. An hour before going to bed at night, I take my lenses out and wear my glasses to give the eyes a "chance to breathe" before going to sleep. That helps prevent any soreness from occurring the next day from lens wearing.

The corneal specialist and my lens fitter have both indicated that although I am a candidate for a transplant in my left eye, it is not an urgent need if I can get by with my RGPs, and the impact that wearing RGPs has on my lifestyle. So for now, I am putting off the transplant.

dmac831, hope this answers your question.

[chrism]

I can't help with the NYC area.. but if people need referrals for Massachusetts, let me know.





(Go Sox!)

[dmac831]

desi nyc,

hey, thanks so much for your replies. one question, what are hydrops? maybe i should know this, having KC for 10 years or maybe i am very fortunate to not know what this is! I have had ulcers, abrasions, all that from the hard lens wear. and i will try the refresh liquigel... at this point, I am kind of realizing that an operation is inevitable, unless they come out with a cure soon, so i might as well just go for it and hope for the best. kudos to you for being able to wear those RGP's, hope the comfort lasts for a long, long time!

[NYC_Desi_Kid]

Here is a good description of hydrops, right from this forum:

http://www.keratoconus-group.org.uk/exp ... nd_kc.html